CC BY-NC-ND 4.0 · Geburtshilfe Frauenheilkd 2023; 83(07): 835-842
DOI: 10.1055/a-2061-6845
GebFra Science
Original Article/Originalarbeit

QS ENDO Pilot – A Study by the Stiftung Endometrioseforschung (SEF) on the Quality of Care Provided to Patients with Endometriosis in Certified Endometriosis Centers in the DACH Region

Article in several languages: English | deutsch
Ivo Meinhold-Heerlein
1   Zentrum für Frauenheilkunde und Geburtshilfe der Justus Liebig-Universität Gießen, Gießen, Germany
,
Magdalena Zeppernick
1   Zentrum für Frauenheilkunde und Geburtshilfe der Justus Liebig-Universität Gießen, Gießen, Germany
,
Monika Martina Wölfler
2   Frauenklinik der medizinischen Universität Graz, Graz, Austria
,
Elisabeth Janschek
3   LKH Villach, Villach, Austria
,
Sebastian Bornemann
4   MMF Research GmbH, Münster, Germany
,
Laura Holtmann
4   MMF Research GmbH, Münster, Germany
,
Frank Oehmke
1   Zentrum für Frauenheilkunde und Geburtshilfe der Justus Liebig-Universität Gießen, Gießen, Germany
,
Darius Salehin
6   Johanniter GmbH; Evangelisches Krankenhaus Bethesda, Mönchengladbach, Germany
,
Chi Mi Scheible
6   Johanniter GmbH; Evangelisches Krankenhaus Bethesda, Mönchengladbach, Germany
,
Iris Brandes
5   Institut für Epidemiologie, Sozialmedizin und Gesundheitssystemforschung, Medizinische Hochschule Hannover, Hannover, Germany
,
Sigrid Vingerhagen-Pethick
7   Drammen Hospital, Drammen, Norway
,
Claus-Peter Cornelius
17   Rehaklinik für Gynäkologie, Eisenmoorbad AG, Bad Schmiedeberg, Germany
,
Alexander Boosz
8   Städtisches Klinikum Karlsruhe, Karlsruhe, Germany
,
Bernhard Krämer
9   Universitätsfrauenklinik Tübingen, Tübingen, Germany
,
Martin Sillem
10   Stiftung Endometriose-Forschung, Westerstede, Germany
11   Praxisklinik am Rosengarten, Mannheim, Germany
,
Klaus Bühler †
10   Stiftung Endometriose-Forschung, Westerstede, Germany
12   Klinik für Frauenheilkunde, Geburtshilfe und Reproduktionsmedizin, Universitätskliniken des Saarlandes, Homburg/Saar, Germany
13   Frauenärzte am Staden, Saarbrücken, Germany
14   Klinik für Frauenheilkunde und Fortpflanzungsmedizin Universitätsklinikum Jena, Jena, Germany
,
Jörg Keckstein
10   Stiftung Endometriose-Forschung, Westerstede, Germany
15   Endometriosezentrum Keckstein, Villach, Austria
16   Klinik für Frauenheilkunde und Geburtshilfe, Universitätsklinikum Ulm, Ulm, Germany
,
Karl-Werner Schweppe
10   Stiftung Endometriose-Forschung, Westerstede, Germany
,
Felix Zeppernick
1   Zentrum für Frauenheilkunde und Geburtshilfe der Justus Liebig-Universität Gießen, Gießen, Germany
,
for the AG QS Endo of the Stiftung Endometrioseforschung (SEF) › Author Affiliations

Abstract

Introduction Endometriosis significantly reduces patientsʼ quality of life and is additionally a burden on healthcare and social security systems. There are currently no quality indicators for the treatment of endometriosis. The care of patients with endometriosis must be considered inadequate. QS ENDO aims to record the quality of care available in the DACH region and to introduce quality indicators for the diagnosis and treatment of endometriosis as part of providing quality assurance in endometriosis care. The first phase, QS ENDO Real, recorded the reality of current care using a questionnaire. The second phase, QS ENDO Pilot, investigated the treatment of 435 patients who underwent surgical treatment within a defined one month period in certified endometriosis centers.

Material and Methods An online tool was used to gather information about 9 points which covered both prior patient history and the process of clinical diagnosis. Surgery reports were reviewed to obtain information about the surgical approach, the investigated sites, findings of any histological examinations, the use of classification systems, and information about resection status.

Results 85.3% of patients were asked all 4 questions about their prior medical history. All 5 diagnostic steps were carried out in 34.5% of patients. The 3 areas needed to describe potential sites of disease were recorded in 67.1% of patients. Samples for histological examination were taken in 84.1% of patients. The endometriosis stage was classified in 94.7% of surgeries. A combination of the rASRM and the ENZIAN classifications, which is needed for complex cases, was used in 46.1% of patients. Complete resection was achieved in 81.6% of surgical procedures.

Conclusion For the first time, the quality of care in certified endometriosis centers has been recorded using QS ENDO Pilot. Despite the high certification standards, a substantial number of required indicators were omitted.

* Members of the QS Endo Working Group who attended the Weissensee conferences of the SEF in 2016, 2017, and 2018: Dubravko Barisic, Alexander Boosz, Claus-Peter Cornelius, Iris Brandes, Klaus Bühler, Gerald Fischerlehner, Nannette Grübling, Elisabeth Janschek, Bernhard Krämer, Anna Kubus, Ivo Meinhold-Heerlein, Frank Oehmke, Peter Oppelt, Ralf Rothmund, Darius Salehin, Chi Mi Scheible, Miriam Schempershofe, Vanadin Seifert-Klauss, Omar Shebl, Kathrin Steinberger, Daniela Söffge, Sigrid Vingerhagen-Pethick, Peter Widschwendter, Pauline Wimberger, Monika Wölfler, Felix Zeppernick, Magdalena Zeppernick.


Supporting Information



Publication History

Received: 13 January 2023

Accepted after revision: 19 March 2023

Article published online:
23 May 2023

© 2023. The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commecial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/)

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