In Würde zu sich stehen – Konzept und Wirksamkeit eines peer-geleiteten Programms zu Offenlegung und Stigmabewältigung

Zusammenfassung

Hintergrund Menschen mit psychischen Erkrankungen stehen aufgrund verbreiteter Stigmatisierung oft vor der schwierigen Entscheidung, ob sie ihre Erkrankung anderen gegenüber offenlegen sollen.

Methode Konzept und Inhalte von ‚In Würde zu sich stehen‘ (IWS), einem kompakten peer-geleiteten Gruppenprogramm, werden beschrieben.

Ergebnisse IWS unterstützt Teilnehmer mit psychischen Erkrankungen bei Offenlegungsentscheidungen und Stigmabewältigung. Drei RCTs zeigen positive Effekte von IWS.

Schlussfolgerungen Fragen der Wirksamkeit, Implementierung und Weiterentwicklung von IWS werden diskutiert.

Abstract

Background Due to the stigma associated with mental disorders, many people with mental illness face the difficult choice whether to disclose their illness to others. (Non-)Disclosure is a key reaction in coping with stigma. Disclosure as well as non-disclosure have risks and benefits, depending on the environment and the individual.

Methods “Honest, Open, Proud” (HOP; German: „In Würde zu sich stehen“/IWS) is a peer-led group program to support people with mental illness in their disclosure decisions. It is not HOP’s aim to make participants disclose, but to support a well-informed and empowered decision.

Results Currently three RCTs, with several others underway, show HOP’s positive effects in terms of reductions in stigma stress, disclosure distress, self-stigma, or depressive symptoms. Adolescent participants reported better quality of life, recovery, and attitudes to help-seeking. Adaptations for different diagnoses and age groups have been developed.

Conclusions HOP appears to be a feasible and effective program to support people with mental illness in their disclosure decisions and in their coping with stigma. Future developments and public health implications are discussed.

Schlüsselwörter

Stigma - Offenlegung - Geheimhaltung - peer-geleitete Intervention - Gruppenprogramm - Evaluation

Keywords

stigma - disclosure - secrecy - peer-led intervention - group program - evaluation

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