ABSTRACT
Assessment of outcomes after craniofacial surgery for skull base tumors poses unique
challenges because of the rarity of the problem and heterogeneity in clinical behavior
of these tumors. Collaborative studies of outcome provide an opportunity for meaningful
analysis of not just tumor-related outcome, but also quality of life after treatment
in these patients. This article introduces the use of a Web-based data collection
method that can function as a collaborative registry and a tool for collection of
quality of life data.
KEYWORDS
Skull base neoplasms/surgery - questionnaires - neoplasms/psychology - international
cooperation - software design
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Snehal G PatelM.D.
Department of Surgery, Memorial Sloan-Kettering Cancer Center
1275 York Avenue, Suite H120, New York, NY 10065
Email: patels@mskcc.org
