Semin Hear 2016; 37(03): 257-271
DOI: 10.1055/s-0036-1584406
Review Article
Thieme Medical Publishers 333 Seventh Avenue, New York, NY 10001, USA.

Relevance of the International Classification of Functioning, Disability and Health: Children & Youth Version in Early Hearing Detection and Intervention Programs

Marlene P. Bagatto
1   National Centre for Audiology, Faculty of Health Sciences, Western University, London, Ontario, Canada
,
Sheila T. Moodie
2   National Centre for Audiology and School of Communication Sciences and Disorders, Faculty of Health Sciences, Western University, London, Ontario, Canada
› Author Affiliations
Further Information

Publication History

Publication Date:
20 July 2016 (online)

Abstract

Early hearing detection and intervention (EHDI) programs have been guided by principles from the Joint Committee on Infant Hearing and an international consensus of best practice principles for family-centered early intervention. Both resources provide a solid foundation from which to design, implement, and sustain a high-quality, family-centered EHDI program. As a result, infants born with permanent hearing loss and their families will have the support they need to develop communication skills. These families also will benefit from programs that align with the framework offered by the World Health Organization's International Classification of Functioning, Disability and Health: Children & Youth Version (ICF-CY). Within this framework, health and functioning is defined and measured by describing the consequences of the health condition (i.e., hearing loss) in terms of body function, structures, activity, and participation as well as social aspects of the child. This article describes the relevance of the ICF-CY for EHDI programs and offers a modified approach by including aspects of quality of life and human development across time.

 
  • References

  • 1 Centers for Disease Control and Prevention. National Center on Birth Defects and Developmental Disabilities. 2013. Available at: www.cdc.gov/ncbddd/index.html . Accessed June 1, 2016
  • 2 American Academy of Pediatrics, Joint Committee on Infant Hearing. Year 2007 position statement: principles and guidelines for early hearing detection and intervention programs. Pediatrics 2007; 120 (4) 898-921
  • 3 Muse C, Harrison J, Yoshinaga-Itano C , et al; Joint Committee on Infant Hearing of the American Academy of Pediatrics. Supplement to the JCIH 2007 position statement: principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Pediatrics 2013; 131 (4) e1324-e1349
  • 4 Joint Committee on Infant Hearing. 1994 position statement. 1994 Available at: http://www.jcih.org/JCIH1994.pdf . Accessed June 1, 2016
  • 5 Joint Committee on Infant Hearing; American Academy of Audiology; American Academy of Pediatrics; American Speech-Language-Hearing Association; Directors of Speech and Hearing Programs in State Health and Welfare Agencies. Year 2000 position statement: principles and guidelines for early hearing detection and intervention programs. Joint Committee on Infant Hearing, American Academy of Audiology, American Academy of Pediatrics, American Speech-Language-Hearing Association, and Directors of Speech and Hearing Programs in State Health and Welfare Agencies. Pediatrics 2000; 106 (4) 798-817
  • 6 Moeller MP, Carr G, Seaver L, Stredler-Brown A, Holzinger D. Best practices in family-centered early intervention for children who are deaf or hard of hearing: an international consensus statement. J Deaf Stud Deaf Educ 2013; 18 (4) 429-445
  • 7 World Health Organization. International Classification of Functioning, Disability and Health: Children & Youth Version. Geneva, Switzerland: World Health Organization; 2007
  • 8 Bartlett DJ, Macnab J, Macarthur C , et al. Advancing rehabilitation research: an interactionist perspective to guide question and design. Disabil Rehabil 2006; 28 (19) 1169-1176
  • 9 McDougall J, Wright V, Rosenbaum P. The ICF model of functioning and disability: incorporating quality of life and human development. Dev Neurorehabil 2010; 13 (3) 204-211
  • 10 Vohr B, Jodoin-Krauzyk J, Tucker R, Johnson MJ, Topol D, Ahlgren M. Early language outcomes of early-identified infants with permanent hearing loss at 12 to 16 months of age. Pediatrics 2008; 122 (3) 535-544
  • 11 Bagatto MP, Moodie ST, Malandrino AC, Richert FM, Clench DA, Scollie SD. The University of Western Ontario Pediatric Audiological Monitoring Protocol (UWO PedAMP). Trends Amplif 2011; 15 (1) 57-76
  • 12 McCreery RW, Bentler RA, Roush PA. Characteristics of hearing aid fittings in infants and young children. Ear Hear 2013; 34 (6) 701-710
  • 13 American Academy of Audiology. American Academy of Audiology clinical practice guidelines on pediatric amplification. 2013 Available at: http://audiology-web.s3.amazonaws.com/migrated/PediatricAmplificationGuidelines.pdf_539975b3e7e9f1.74471798.pdf . Accessed June 1, 2016
  • 14 Bagatto M, Scollie SD, Hyde M, Seewald R. Protocol for the provision of amplification within the Ontario infant hearing program. Int J Audiol 2010; 49 (Suppl. 01) S70-S79
  • 15 Hickson L, Scarinci N. Older adults with acquired hearing impairment: applying the ICF in rehabilitation. Semin Speech Lang 2007; 28 (4) 283-290
  • 16 Traci M, Koester LS. Parent–infant interactions: a transactional approach to understanding the development of deaf infants. In: The Oxford Handbook of Deaf Studies, Language and Education, Vol. 1, 2nd ed. 2011. Available at: www.oxfordhandbooks.com . Accessed June 1, 2016
  • 17 An M, Palisano RJ. Family-professional collaboration in pediatric rehabilitation: a practice model. Disabil Rehabil 2014; 36 (5) 434-440
  • 18 King G, Tucker MA, Baldwin P, Lowry K, LaPorta J, Martens L. A life needs model of pediatric service delivery: services to support community participation and quality of life for children and youth with disabilities. Phys Occup Ther Pediatr 2002; 22 (2) 53-77
  • 19 Bosteels S, Van Hove G, Vandenbroeck M. The roller-coaster of experiences: becoming the parent of a deaf child. Disabil Soc 2012; 27 (7) 1-14
  • 20 Bradham TS. Analysis of family support in EHDI systems. Volta Review 2011; 111: 181-194
  • 21 Matthijs L, Loots G, Mouvet K , et al. First information parents receive after UNHS detection of their baby's hearing loss. J Deaf Stud Deaf Educ 2012; 17 (4) 387-401
  • 22 Hyde M, Punch R, Komesaroff L. Coming to a decision about cochlear implantation: parents making choices for their deaf children. J Deaf Stud Deaf Educ 2010; 15 (2) 162-178
  • 23 Henderson RJ, Johnson A, Moodie S. Parent-to-parent support for parents with children who are deaf or hard of hearing: a conceptual framework. Am J Audiol 2014; 23 (4) 437-448
  • 24 Simeonsson RJ. ICF-CY: a universal tool for documentation of disability. J Policy Pract Intell Disabil 2009; 6 (2) 70-72
  • 25 Bronfenbrenner U. The bioecological model from a life course perspective: reflections of a participant observer. In: Examining Lives in Context: Perspectives on the Ecology of Human Development. 1995:599–618
  • 26 Lippman LH, Moore KA, McIntosh H. Positive indicators of child well-being: a conceptual framework, measures, and methodological issues. Appl Res Qual Life 2011; 6 (4) 425-449
  • 27 Spagnola M, Fiese BH. Family routines and rituals. Infants Young Child 2007; 20 (4) 284-299
  • 28 McDougall J, Wright V. The ICF-CY and goal attainment scaling: benefits of their combined use for pediatric practice. Disabil Rehabil 2009; 31 (16) 1362-1372
  • 29 King G, Chiarello L. Family-centered care for children with cerebral palsy: conceptual and practical considerations to advance care and practice. J Child Neurol 2014; 29 (8) 1046-1054
  • 30 King G. Perspectives on measuring participation: going forward. Child Care Health Dev 2013; 39 (4) 466-469
  • 31 Björck-Åkesson E, Wilder J, Granlund M , et al. The International Classification of Functioning, Disability and Health and the version for children and youth as a tool in child habilitation/early childhood intervention—feasibility and usefulness as a common language and frame of reference for practice. Disabil Rehabil 2010; 32 (Suppl. 01) S125-S138
  • 32 Adolfsson M, Björck-Akesson E, Lim CI. Code sets for everyday life situations of children aged 0–6: sleeping, mealtimes and play—a study based on the International Classification of Functioning, Disability and Health for Children and Youth. Br J Occup Ther 2013; 76 (3) 127-136
  • 33 Papoušek M. Communication in early infancy: an arena of intersubjective learning. Infant Behav Dev 2007; 30 (2) 258-266
  • 34 Adolfsson M. Applying the ICF-CY to identify children's everyday life situations: a step towards participation-focused code sets. Int J Soc Welf 2013; 22 (2) 195-206
  • 35 Danermark B, Granberg S, Kramer SE, Selb M, Möller C. The creation of a comprehensive and a brief core set for hearing loss using the international classification of functioning, disability and health. Am J Audiol 2013; 22 (2) 323-328
  • 36 Moodie ST, Kothari A, Bagatto MP, Seewald R, Miller LT, Scollie SD. Knowledge translation in audiology: promoting the clinical application of best evidence. Trends Amplif 2011; 15 (1) 5-22
  • 37 King G, Rigby P, Batorowicz B. Conceptualizing participation in context for children and youth with disabilities: an activity setting perspective. Disabil Rehabil 2013; 35 (18) 1578-1585
  • 38 King GA, Law M, King S , et al. Measuring children's participation in recreation and leisure activities: construct validation of the CAPE and PAC. Child Care Health Dev 2007; 33 (1) 28-39
  • 39 King G, Rigby P, Batorowicz B , et al. Development of a direct observation measure of environmental qualities of activity settings. Dev Med Child Neurol 2014; 56 (8) 763-769
  • 40 Coster W, Law M, Bedell G, Khetani M, Cousins M, Teplicky R. Development of the participation and environment measure for children and youth: conceptual basis. Disabil Rehabil 2012; 34 (3) 238-246
  • 41 Zimmo S, Jennings MB, Scollie S , et al. Adolescent self-efficacy questionnaire for hearing loss (ASEQ-HL). Poster presented at: Warren Estabrooks Speaker Series; April 24, 2015; Toronto, Canada
  • 42 King G, Currie M, Petersen P. Child and parent engagement in the mental health intervention process: a motivational framework. Child Adolesc Ment Health 2014; 19 (1) 2-8
  • 43 Bailey DB, Raspa M, Fox LC. What is the future of family outcomes and family-centered services?. Top Early Child Spec Educ 2012; 31 (4) 216-223