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CC BY-NC-ND 4.0 · Avicenna J Med 2021; 11(03): 152-155
DOI: 10.1055/s-0041-1735382
Original Article

Evaluation of Burden and Anxiety in Caregivers of Patients with Pediatric Celiac Disease in the COVID-19 Pandemic

Ibrahim Hakan Bucak 
1   Department of Pediatrics, Adiyaman University School of Medicine, Adiyaman, Turkey
,
Gokhan Tumgor
2   Department of Pediatric Gastroenterology, Cukurova University School of Medicine, Adana, Turkey
,
Habip Almis 
1   Department of Pediatrics, Adiyaman University School of Medicine, Adiyaman, Turkey
,
Sumeyye Kose
1   Department of Pediatrics, Adiyaman University School of Medicine, Adiyaman, Turkey
,
Cagla Nur Dogan 
3   Department of Pediatrics, Cukurova University School of Medicine, Adana, Turkey
,
Mehmet Turgut 
4   Department of Pediatric Infectious Disease, Adiyaman University School of Medicine, Adiyaman, Turkey
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Abstract

Background Anxiety and caregiver burden increase among caregivers for individuals with chronic disease. The purpose of this study was to compare the anxiety levels and caregiver burden among caregivers for cases with pediatric celiac disease (CD) before and during the COVID-19 pandemic.

Materials The Zarit Burden Interview (ZBI) and the Beck Anxiety Inventory (BAI) were applied to 29 parents caring for pediatric CD patients in January 2020, when COVID-19 cases had not yet been seen in Turkey. The study was designed prospectively. The scales were also reapplied to the same study group online during the COVID-19 pandemic (May 2020). The results were then compared.

Results Parents caring for 29 cases of pediatric CD; 21 mothers (72.4%), six fathers (20.7%), and two aunts (6.9%) took part in the study. Mean ZBI scores before and during the COVID-19 pandemic were 27.51 ± 14.12 (8–73) and 38.68 ± 10.95 (21–57), respectively (p < 0.01). Mean BAI scores before and during the COVID-19 pandemic were 13.27 ± 7.65 (1–27) and 23.48 ± 12.40 (2–48), respectively (p < 0.01).

Conclusion Increased anxiety and caregiver burden among caregivers of pediatric CD cases during the COVID-19 pandemic were identified for the first time in the literature in this study.

Keywords

coronavirus disease 2019 - celiac disease - anxiety - burden


Publication History

Article published online:
06 September 2021

© 2021. Syrian American Medical Society. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial-License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/).

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