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JuKiP - Ihr Fachmagazin für Gesundheits- und Kinderkrankenpflege 2017; 06(02): 58-62
DOI: 10.1055/s-0043-102645
Praxis
Palliativpflege
Georg Thieme Verlag KG Stuttgart · New York

Wenn ein Kind stirbt

Ulrika Kreicbergs
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Publication History

Publication Date:
06 April 2017 (online)

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Zusammenfassung

Auswirkungen über den Tod hinaus Der Verlust eines Kindes ist das traumatischste Erlebnis für eine Familie, unabhängig von Religion, Ethnie oder Sozialstatus. In Deutschland sterben jedes Jahr fast 3.500 Kinder aufgrund einer lebensverkürzenden Krankheit.1 Betroffen davon sind fast doppelt so viele Menschen – dazu gehören neben der Familie und Angehörigen auch Pflegekräfte.

 

  • Literatur

  • 1 Groh G, Feddersen B, Fuhrer M. et al. Specialized home palliative care for adults and children: differences and similarities. Journal of palliative medicine 07/2014; 17 (07) 803-810
    CrossrefPubMedGoogle Scholar
  • 2 Li J, Laursen TM, Precht DH. et al. Hospitalization for mental illness among parents after the death of a child. The New England journal of medicine 24.03.2005; 352 (12) 1190-1196
    CrossrefPubMedGoogle Scholar
  • 3 Li J, Precht DH, Mortensen PB. et al. Mortality in parents after death of a child in Denmark: a nationwide follow-up study. Lancet 01.02.2003; 361 (9355) 363-367
    CrossrefPubMedGoogle Scholar
  • 4 Kreicbergs U, Valdimarsdottir U, Steineck G. et al. A population-based nationwide study of parents’ perceptions of a questionnaire on their child’s death due to cancer. Lancet 28.08.2004; 364 (9 436) 787-789
    CrossrefPubMedGoogle Scholar
  • 5 Kreicbergs U, Valdimarsdottir U, Onelov E. et al. Anxiety and depression in parents 4–9 years after the loss of a child owing to a malignancy: a population-based follow-up. Psychological medicine 11/2004; 34 (08) 1431-1441
    CrossrefPubMedGoogle Scholar
  • 6 Levetown M. Communicating with children and families: from everyday interactions to skill in conveying distressing information. Pediatrics 05/2008; 121 (05) e1441-1460
    CrossrefPubMedGoogle Scholar
  • 7 Lannen P, Wolfe J, Mack J. et al. Absorbing information about a child’s incurable cancer. Oncology 2010; 78 (3–4) 259-266
    CrossrefPubMedGoogle Scholar
  • 8 Valdimarsdottir U, Kreicbergs U, Hauksdottir A. et al. Parents’ intellectual and emotional awareness of their child’s impending death to cancer: a population-based long-term follow-up study. The lancet oncology 08/2007; 8 (08) 706-714
    CrossrefPubMedGoogle Scholar
  • 9 Mack JW, Wolfe J, Grier HE. et al. Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. Journal of clinical oncology: official journal of the American Society of Clinical Oncology 20.11.2006; 24 (33) 5265-5270
    CrossrefPubMedGoogle Scholar
  • 10 Surkan PJ, Dickman PW, Steineck G. et al. Home care of a child dying of a malignancy and parental awareness of a child’s impending death. Palliative medicine 04/2006; 20 (03) 161-169
    CrossrefPubMedGoogle Scholar
  • 11 Remedios C, Willenberg L, Zordan R. et al. A pre-test and post-test study of the physical and psychological effects of out-of-home respite care on caregivers of children with life-threatening conditions. Palliative medicine 03/2015; 29 (03) 223-230
    CrossrefPubMedGoogle Scholar
  • 12 Kreicbergs U, Valdimarsdottir U, Onelov E. et al. Talking about death with children who have severe malignant disease. The New England journal of medicine 16.09.2004; 351 (12) 1175-1186
    CrossrefPubMedGoogle Scholar
  • 13 Jalmsell L, Kontio T, Stein M. et al. On the Child’s Own Initiative: Parents Communicate with Their Dying Child About Death. Death studies Jan–Jun 2015; 39 (1–5) 111-117
    CrossrefPubMedGoogle Scholar
  • 14 Jalmsell L, Kreicbergs U, Onelov E. et al. Symptoms affecting children with malignancies during the last month of life: a nationwide follow-up. Pediatrics 04/2006; 117 (04) 1314-1320
    CrossrefPubMedGoogle Scholar
  • 15 Kreicbergs U, Valdimarsdottir U, Onelov E. et al. Care-related distress: a nationwide study of parents who lost their child to cancer. Journal of clinical oncology: official journal of the American Society of Clinical Oncology 20.12.2005; 23 (36) 9162-9171
    CrossrefPubMedGoogle Scholar
  • 16 Lovgren M, Jalmsell L, Eilegard Wallin A. et al. Siblings’ experiences of their brother’s or sister’s cancer death: a nationwide follow-up 2–9 years later. Psycho-oncology 04/2016; 25 (04) 435-440
    CrossrefPubMedGoogle Scholar
  • 17 Jalmsell L, Kreicbergs U, Onelov E. et al. Anxiety is contagious-symptoms of anxiety in the terminally ill child affect long-term psychological well-being in bereaved parents. Pediatric blood & cancer 05/2010; 54 (05) 751-757
    PubMedGoogle Scholar
  • 18 Eilegard A, Steineck G, Nyberg T. et al. Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier. Psycho-oncology 03/2013; 22 (03) 683-691
    CrossrefPubMedGoogle Scholar
  • 19 Lovgren M, Bylund-Grenklo T, Jalmsell L. et al. Bereaved Siblings’ Advice to Health Care Professionals Working With Children With Cancer and Their Families. Journal of pediatric oncology nursing: official journal of the Association of Pediatric Oncology Nurses 07/2016; 33 (04) 297-305
    CrossrefPubMedGoogle Scholar
  • 20 Wallin AE, Steineck G, Nyberg T. et al. Insufficient communication and anxiety in cancer-bereaved siblings: A nationwide long-term follow-up. Palliative & supportive care 30.10.2015; 1-7
    PubMedGoogle Scholar
  • 21 Eilertsen ME, Eilegard A, Steineck G. et al. Impact of social support on bereaved siblings’ anxiety: a nationwide follow-up. Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses Nov–Dec 2013; 30 (06) 301-310
    PubMedGoogle Scholar
  • 22 Lannen PK, Wolfe J, Prigerson HG. et al. Unresolved grief in a national sample of bereaved parents: impaired mental and physical health 4 to 9 years later. Journal of clinical oncology: official journal of the American Society of Clinical Oncology 20.12.2008; 26 (36) 5870-5876
    CrossrefPubMedGoogle Scholar
  • 23 Sveen J, Eilegard A, Steineck G. et al. They still grieve-a nationwide follow-up of young adults 2–9 years after losing a sibling to cancer. Psycho-oncology. 18.12.2013
    PubMedGoogle Scholar
  • 24 Kreicbergs UC, Lannen P, Onelov E. et al. Parental grief after losing a child to cancer: impact of professional and social support on long-term outcomes. Journal of clinical oncology: official journal of the American Society of Clinical Oncology. 01.08.2007; 25 (22) 3307-3312
    PubMedGoogle Scholar
  • 25 McConnell T, Scott D, Porter S. Healthcare staff’s experience in providing end-of-life care to children: A mixed-method review. Palliative medicine. 29.04.2016
    PubMedGoogle Scholar
  • 26 Brandon D, Ryan D, Sloane R. et al. Impact of a pediatric quality of life program on providers’ moral distress. MCN. The American journal of maternal child nursing May–Jun 2014; 39 (03) 189-197
    CrossrefPubMedGoogle Scholar
  • 27 Jonas DF, Bogetz JF. Identifying the Deliberate Prevention and Intervention Strategies of Pediatric Palliative Care Teams Supporting Providers during Times of Staff Distress. Journal of palliative medicine 06/2016; 19 (06) 679-683
    CrossrefPubMedGoogle Scholar