Key words psychosomatics - fertility disorders - guideline - reproductive medicine
I Guideline Information
Guidelines program of the DGGG, OEGGG and SGGG
For information on the guidelines program, please refer to the end of this guideline.
Citation format
Psychosomatically Oriented Diagnostics and Therapy for Fertility Disorders. Guideline
of the DGPFG (S2k-Level, AWMF Registry Number 016/003, December 2019). Geburtsh Frauenheilk
2021; 81: 749 – 768
Guideline documents
The complete long version and a slide version of this guideline as well as a list
of the conflicts of interest of all of the authors are available in German on the
homepage of the AWMF: http://www.awmf.org/leitlinien/detail/ll/016-003.html
Guideline authors
See [Tables 1 ] and [2 ].
Table 1 Lead author and/or coordinating guideline author.
Author
AWMF professional society
Prof. Dr. sc. hum. Dipl.-Psych. Tewes Wischmann (lead author)
German Society for Psychomatic Gynecology and Obstetrics [Deutsche Gesellschaft für
Psychomatische Frauenheilkunde und Geburtshilfe e. V.] (DGPFG)
Prof. Dr. med. Heribert Kentenich
German Society for Gynecological Endocrinology and Reproductive Medicine [Deutsche
Gesellschaft für Gynäkologische Endokrinologie und Fortpflanzungsmedizin e. V.] (DGGEF)
Table 2 Contributing guideline authors and mandate holders.
Author
Mandate holder
DGGG working group/AWMF/non-AWMF professional society/organization/association
* Author of the long version of the guideline text.
PD Dr. Ada Borkenhagen*
German Psychoanalytic Society [Deutsche Psychoanalytische Gesellschaft] (DPG)
Prof. Dr. Matthias David*
–
Dr. Almut Dorn*
German Association for Psychiatry, Psychotherapy and Psychosomatics [Deutsche Gesellschaft
für Psychiatrie, Psychotherapie und Nervenheilkunde] (DGPPN)
Prof. Dr. Christoph Dorn*
–
Dr. Friedrich Gagsteiger
Professional Association of Gynecologists [Berufsverband der Frauenärzte] (BVF)
Dr. Maren Goeckenjan
German Society for Reproductive Medicine [Deutsche Gesellschaft für Reproduktionsmedizin]
(DGRM)
Prof. Dr. Heribert Kentenich*
German Society of Gynecological Endocrinology and Reproductive Medicine [Deutsche
Gesellschaft für Gynäkologische Endokrinologie und Fortpflanzungsmedizin] (DGGEF)
Prof. Dr. Annika Ludwig*
–
Dipl.-Psych. Anne Meier-Credner
Donor Offspring Association [Verein Spenderkinder]
Michelle Röhrig
Endometriosis Association [Endometriose-Vereinigung]
Dr. Dipl.-Psych. Ingrid Rothe-Kirchberger
German Society for Psychoanalysis, Psychosomatics and Psychodynamic Psychology [Deutsche
Gesellschaft für Psychoanalyse, Psychotherapie, Psychosomatik und Tiefenpsychologie
e. V.] (DGPT)
M. Sc. Psych. Maren Schick*
German Society of Medical Psychology [Deutsche Gesellschaft für Medizinische Psychologie]
(DGMP)
Prof. Dr. Stefan Siegel
German Society for Sexual Medicine, Sexual Therapy and Sexual Science [Deutsche Gesellschaft
für Sexualmedizin, Sexualtherapie und Sexualwissenschaft] (DGSMTW)
Dr. Andreas Tandler-Schneider
Association of Centers for Reproductive Medicine [Bundesverband Reproduktionsmedizinischer
Zentren] (BRZ)
Dr. Petra Thorn*
Infertility Counseling Network Germany [Beratungsnetzwerk Kinderwunsch Deutschland]
(BKiD)
Dr. Anna Julka Weblus*
German Society for Gynecology and Obstetrics [Deutsche Gesellschaft für Gynäkologie
und Geburtshilfe] (DGGG)
Prof. Dr. Tewes Wischmann*
German Society for Psychosomatic Gynecology and Obstetrics [Deutsche Gesellschaft
für Psychosomatische Frauenheilkunde und Geburtshilfe] (DGPFG)
This guideline was moderated by Dr. med. Monika Nothacker (AWMF-certified guideline
moderator).
II Guideline Application
Purpose and objectives
The number of diagnostic procedures and therapies carried out in Europe to treat fertility
disorders has continually increased over the last few years. Scientific research is
increasingly focusing on the psychosocial and psychosomatic aspects of fertility disorders,
but they are barely or only inadequately acknowledged in everyday life. This is why,
in 2019/2020, it was thought to be time to update AWMF guideline no. 016-003 (dating
from 2014).
The aim of the guideline is to evaluate recent scientific literature and expert opinions
and compile recommendations to provide optimal psychosomatically oriented care to
women and men (and couples) whose wish to have children has not been fulfilled. Care
of these patients ranges from diagnostic procedures to potential therapies to considering
alternative perspectives and successfully managing the crisis posed by a fertility
disorder.
Targeted area of patient care
Outpatient care is offered to women, men, and couples of reproductive age who are
involuntarily childless.
Target user group/target audience
All inpatient-based and outpatient-based physicians who are involved in the care and
treatment of infertile women, men, and couples who wish to have children. This includes,
in particular, gynecologists, andrologists, physicians specializing in gynecological
endocrinology and reproductive medicine (fertility specialists). Other target users
are psychologists, medical and psychological psychotherapeutists, psychiatrists, psychosomatic
physicians and other counselors and professionals involved in the psychosocial and
psychosomatic care of individuals and couples with fertility disorders.
Adoption and period of validity
This version 4.0 of the guideline was adopted at the consensus conference held on
December 9, 2019. If changes are urgently required, the guideline may be updated earlier.
Similarly, if a guideline continues to reflect the current state of knowledge, its
period of validity may be extended for a maximum period of 5 years (meaning that this
guideline is maximally valid until December 8, 2024).
III Methodology
Basic principles
The method used to prepare this guideline was determined by the class to which this
guideline was assigned. The AWMF Guidance Manual (version 1.0) has set out the respective
rules and requirements for different classes of guidelines. Guidelines are differentiated
into lowest (S1), intermediate (S2), and highest (S3) class.
This guideline has been classified as: S2k .
Grading of recommendations
The grading of evidence based on the systematic search, selection, evaluation and
synthesis of an evidence base which is then used to grade the recommendations is not
envisaged for S2k guidelines. The different individual statements and recommendations
are only differentiated linguistically, not by the use of symbols ([Table 3 ]).
Table 3 Grading of recommendations (in English, according to Lomotan et al. Qual Saf Health
Care 2010).
Description of binding character
Expression
Strong recommendation with highly binding character
must/must not
Regular recommendation with moderately binding character
should/should not
Open recommendation with limited binding character
may/may not
Statements
Expositions or explanations of specific facts, circumstances or problems without any
direct recommendations for action included in this guideline are referred to as “Statements”.
It is not possible to provide any information about the grading of evidence for these Statements.
Achieving consensus and level of consensus
At structured NIH-type consensus-based conferences (S2k/S3 level), authorized participants
attending the session vote on draft statements and recommendations. The process is
as follows. A recommendation is presented, its contents are discussed, proposed changes
are put forward, and finally, all proposed changes are voted on. If a consensus is
not achieved (> 75% of votes), there is another round of discussions, followed by
a repeat vote. Finally, the extent of consensus is determined based on the number
of participants ([Table 4 ]).
Table 4 Level of consensus based on extent of agreement.
Symbol
Level of consensus
Extent of agreement in percent
+++
Strong consensus
> 95% of participants agree
++
Consensus
> 75 – 95% of participants agree
+
Majority agreement
> 50 – 75% of participants agree
–
No consensus
< 51% of participants agree
Expert consensus
As the name already implies, this refers to consensus decisions taken specifically
with regard to recommendations/statements made without a prior systematic search of
the literature (S2k) or where evidence is lacking (S2e/S3). The term “expert consensus”
(EC) used here is synonymous with terminology used in other guidelines such as “good
clinical practice” (GCP) or “clinical consensus point” (CCP). The strength of the
recommendation is graded as previously described in the chapter on the grading of
recommendations; it is only expressed semantically (“must”/“must not” or “should”/“should
not” or “may”/“may not”) without the use of symbols.
IV Guideline
1 Definition and scope
The following guidelines cover psychosomatically oriented diagnostic procedures and
treatments for involuntary childlessness. The WHO defines infertility as a failure
to achieve a pregnancy after twelve months or more of regular unprotected sexual intercourse.
It can be assumed that biological, psychological and social factors play a role in
the development, course, diagnostic procedures, and treatment of involuntary childlessness.
In this guideline, the terms fertility disorders or subfertility are used synonymously
for sterility or infertility as most couples are not definitely or permanently infertile.
2 Psychosomatic diagnostics
Statement 2.1-S1
The prevalence of psychopathological abnormalities is not higher in women and men
who are involuntarily childless, even if no organic causes of the childlessness could
be identified.
A behavior-related fertility disorder (which could be potentially related to psychosocial
causes) is found in 5% or at most 10% of all couples.
For many couples, experiencing a fertility disorder as well as the psychological impact
of assisted reproductive treatment is a significant emotional burden. Both women and
men experience this as stressful.
However, according to the findings of a number of large studies and meta-analyses,
the direct impact of everyday stresses on a fertility disorder and on the success
of IVF/ICSI treatment is relatively negligible (cf. also Section 3.1). It is not possible
to generalize these findings to couples who are not being treated (cf. AWMF-LL 015-085).
Level of consensus: +++
Recommendation 2.1-E1
As involuntary childlessness generally puts a strain on both partners in a relationship,
psychosomatically oriented treatment should be explicitly offered to the involuntarily
childless couple.
Existing counseling services should be expanded to also address the needs of the male
partner, couples with a migrant background, and couples in all social classes (cf.
also Section 4.1.5).
These counseling services should be offered proactively and in a non-stigmatizing
manner, and the threshold for counseling (financially and organizationally) should
be low.
Lifestyle and behavioral factors known to lower fertility should be proactively addressed
during the coupleʼs psychosomatically oriented counseling.
Level of consensus: +++
3.1 Prognostic criteria for achieving pregnancy in involuntarily childless couples
Statement 3.1-S2
The womanʼs age, duration of infertility und behavioral factors are significant prognostic
preconditions for achieving pregnancy.
Based on general or specific psychosocial factors (e.g., anxiety, depression or specific
partnership-related aspects), it is not possible to predict whether a woman will become
pregnant after she has undergone reproductive medical treatment.
Psychological stress is known to be a possible consequence of a fertility disorder.
Increased depression and anxiety may result from the psychological burden during or
following unsuccessful assisted reproductive treatment.
Whether psychological stress could be a causative factor for infertility is still
being discussed. The direct impact of everyday stresses on a fertility disorder or
on the success of IVF/ICSI treatment is considered to be negligible (cf. also Section
2.1).
Level of consensus: +++
Recommendation 3.1-E2
More consideration should be given to psychosocial factors in the context of assisted
reproductive treatment and additionally, accompanying psychosomatically oriented counseling
sessions should focus on them.
Level of consensus: +++
3.2 Pregnancy, childrenʼs health, and family dynamics after successful assisted reproduction
Statement: 3.2-S3
The risk of complications of pregnancy is higher after ART compared to spontaneous
conceptions. During the course of the pregnancy, there is a higher probability of
preeclampsia (1.5 times higher), placenta praevia (3 times higher), stillbirth (2.5
times higher), lower birth weight (1.7 times higher) and growth restriction (1.5 times
higher).
Proposed causes of these increased complications of pregnancy and neonatal complications
are currently being discussed and mainly point to subfertility as a background risk
but also the direct impact of fertility treatment.
Multiple pregnancies have a higher risk of complications of pregnancy and preterm
birth with all the consequent neonatal and postnatal complications. This also applies
to singleton pregnancies after a pregnancy which was initially conceived as a multiple
pregnancy (“vanishing twin”).
Compared to the risk factor “multiple pregnancy”, the type of conception appears to
be less important, meaning that it is no longer significant for twin pregnancies.
Level of consensus: +++
Recommendation 3.2-E3
Infertile couples wanting to have children must be informed about the increased risk
of pregnancy complications.
Multiple pregnancies must be avoided where possible, even if the couple explicitly
wants to have a multiple pregnancy. This also affects the problem of the “vanishing
twin”.
Couples must be informed in detail about the increased risks associated with a multiple
pregnancy before starting fertility treatment. Couples may be advised that if a twin
pregnancy occurs, the pregnancy risks do not appear to be higher than those occurring
after spontaneous conception of twins.
Level of consensus: +++
Statement 3.2-S4
The risk of malformation after IVF and ICSI is, on average, 1.3 times higher (about
every 12th pregnancy) compared to spontaneous conception (about every 15th pregnancy).
Level of consensus: +++
Recommendation 3.2-E4
Infertile couples wanting to have children must be informed about the increased risk
of malformations after IVF and ICSI.
Level of consensus: +++
Statement 3.2-S5
The risk of hypertensive disorder of pregnancy, preterm birth, and low birth weight
are higher after implantation of a donor egg compared to conventional IVF treatment.
Level of consensus: +++
Recommendation 3.2-E5
Couples should be advised about the increased risks following implantation of a donor
egg (compared to conventional IVF treatment) and these risks should be taken into
account when caring for a pregnant woman who has been implanted with a donor egg.
Level of consensus: +++
Statement 3.2-S6
The risk of pregnancy complications with surrogacy is comparable to the level of risk
associated with conventional ART but higher than that of spontaneous conception.
Level of consensus: +++
Statement 3.2-S7
Children conceived with ART develop similarly to spontaneously conceived children,
provided they are born at term and with a normal birth weight. According to the most
recent studies, the overall risk of malignancy does not appear to be significantly
increased. Some studies have reported higher neurological morbidity rates, but these
appear to be due most likely to the higher rate of multiple pregnancy. Despite a possibly
slightly higher relative risk, the absolute risk for the individual child remains
low.
Data on cardiovascular risk factors must be treated with caution because of the limited
cohort sizes and heterogeneity of the studies. Some studies have reported higher blood
pressure in children and adolescents following ART, but other studies were unable
to confirm this.
Initial data on puberty development and surrogacy parameters on the fertility of boys
conceived with ICSI suggest that their fertility in later life may be lower.
Further data on the long-term health of children and adolescents are required.
Level of consensus: +++
Recommendation 3.2-E6
Infertile couples must be informed about the overall lower absolute risks to the health
and development of (singleton) children conceived with ART, based on current knowledge.
Because of the increased risk associated with multiple pregnancy due to the higher
rate of preterm births associated with a multiple pregnancy, couples must be informed
about these risks.
The risk of multiple pregnancy after ART must be kept to a minimum (“single embryo
transfer”).
Level of consensus: +++
Statement 3.2-S8
Children conceived with donated gametes appear to develop normally.
There is currently insufficient evidence about the psychosocial development of children
born through surrogacy.
Level of consensus: +++
Recommendation 3.2-E7
Women (and their partners) who have a miscarriage after fertility treatment should
be offered low-threshold psychosomatic support.
Level of consensus: ++
Statement 3.2-S9
If couples have been unable to have a child for a long time, it is conceivable that
they will have a lot of anxiety about the pregnancy and the child. Moreover, couples
may idealize parenthood and therefore place high demands on themselves as parents.
The existing data show that the risk of postpartum depression is not higher after
ART. The data on pregnancy-related anxiety are inconsistent. Some studies have pointed
to higher pregnancy-related anxiety, but other studies have not confirmed this.
Level of consensus: +++
Statement 3.2-S10
There are no differences in family dynamics after assisted reproduction using the
partnerʼs sperm compared to spontaneous conception.
A multiple birth may be associated with a higher psychosocial risk (both for the parents
and the children), particularly in the case of births of more than two children.
Level of consensus: +++
3.3 Psychological consequences of involuntary childlessness
Statement 3.3-S11
Long-term changes to the psychosocial situation of couples for whom assisted reproductive
treatment was unsuccessful show that the unfulfilled wish to have children often plays
a big role in the coupleʼs life. Infertility is perceived by many affected people
as a difficult stage in their lives. Most couples cope with the situation over the
long term and their psychological wellbeing is no longer affected later on.
In the long term, there is very little difference in the quality of life and life
situation between childless people and people who had children with fertility treatment.
However, for some of the affected persons, involuntary childlessness remains a life
event which repeatedly triggers feelings of regret (e.g., in certain stages of life
such as menopause or when people of the same age become grandparents) and may require
repeated efforts to adapt.
Involuntary childlessness becomes a constant burden when the capacity to develop new
perspectives on life is limited. This capacity is influenced by the individualʼs psychological
predisposition, the course of the infertility crisis, the motives behind the wish
to have children, the intensity of the wish to have children, the individualʼs satisfaction
with their partner and the attribution of the cause. Severe social isolation has been
found to be an unfavorable prognostic factor.
Level of consensus: +++
Recommendation 3.3-E8
Couples or women who have remained involuntarily childless should be informed about
the largely favorable prognosis in terms of quality of life and partnership but also
about possible risk factors (e.g., social isolation) and protective factors (e.g.,
early development of new life goals and concepts). In cases with an unfavorable course,
affected persons should be pointed in the direction of appropriate psychosomatically
oriented counseling options.
Level of consensus: +++
4.1 Diagnostic measures from a psychosomatic point of view
Statement 4.1-S12
From a scientific point of view, there are (still) no clear psychological contraindications
for assisted reproductive treatment. Individual decisions should be taken based on
the coupleʼs reproductive autonomy and following interdisciplinary consultation about
the childʼs best interests.
Level of consensus: +++
Recommendation 4.1-E9
A first talk and a final discussion should be held with the couple (unless the issue
affects a single woman wanting to have a child; cf. Section 4.3.5).
Psychosomatically oriented counseling should be optional with low-threshold availability
at every timepoint during medical diagnostic procedures and treatment. Prior to starting
treatment with donated gametes or donated/adopted embryos, the couple or individual
must be offered psychosomatic counseling. Whether or not the offer of counseling is
taken up must be recorded.
Counseling should also be available to couples/individuals who have not (yet) started
or are no longer receiving assisted reproductive treatment.
In principle, psychosomatically oriented diagnostics must be carried out during the
initial discussion (with the couple) (cf. also the German Medical Association 2018):
They should particularly be used in the following situations:
counseling or accompanying discussions prior to invasive medical procedures (e.g.,
when switching from IUI to IVF, prior to starting treatment abroad or similar),
prior to gamete donation or embryo donation/adoption,
prior to fetocide,
if the partner has a chronic illness,
in the event of multiple pregnancy,
if reproductive medical treatment is unsuccessful (failure to become pregnant, miscarriage
or stillbirth), and
in the final discussion.
Level of consensus: ++
4.2 Treatment
Recommendation 4.2-E10
Medical care provided in the context of infertility treatment must be carried out
in accordance with the principles of primary psychosomatic care. Psychosocial aspects
must be included more in the treatment of infertility.
Assisted reproductive treatment must allow space for the need for psychosocial counseling.
Irrespective of the reproductive medical treatment, low-threshold, psychosomatically
oriented counseling must always be available.
The need for counseling increases when using donated gametes (cf. Recommendation E16 – E19)
or embryos (cf. Recommendation E22).
Level of consensus: +++
4.3 Counseling and psychotherapy
Statement 4.3-S13
The limited number of available studies on the effects of psychosocial interventions
in subfertile women and men emphasizes the importance of carrying out more high-quality,
methodologically sound research into psychosocial counseling and treatment for fertility
disorders.
The studies consulted for this review (the majority focused on behavioral therapies
and combined treatments) reported predominantly positive effects, with psychosocial
interventions reducing the psychological stresses associated with reproductive medical
treatment; the studies are, however, inconclusive with regard to increased pregnancy
rates in subgroups.
To date, the increasing number of internet-based support programs have also been insufficiently
scientifically evaluated.
Level of consensus: +++
Recommendation 4.3-E11
All persons who decide to begin fertility treatment must be given the opportunity
to obtain information, explanations and counseling in the sense of emotional support
and help to deal with problems.
Counseling services should be independent of treatment and address all women and men,
particularly if they have previously had negative experiences of subfertility or had
several unsuccessful treatment attempts.
Psychosomatic interventions should primarily aim to provide information, improve psychological
wellbeing, and reduce stress.
Level of consensus: +++
4.3.1 Prevention of fertility disorders
Statement 4.3-S14
Older age, overweight, underweight and smoking, sexually transmitted diseases, and
eating disorders are all factors with a clear negative impact on fertility.
There are very few controlled studies which can provide proof of the impact of targeted
preventive measures.
The general publicʼs knowledge about basic physiological facts regarding fertility
and reproduction is generally low.
Level of consensus: +++
Recommendation 4.3-E12
Information materials on fertility and the diagnosis/treatment of fertility problems
must be provided, tailored to the specific target group.
Information on how fertility depends on age and on fertility-related risk factors
must be provided.
Level of consensus: +++
Statement 4.3-S15
People with cancer often have a good survival prognosis after they have completed
cancer treatment.
Measures to protect fertility may include cryopreservation of oocytes, pronuclear
stage oocytes, embryos and ovarian tissue, sperm cells and testicular tissue and the
administration of GnRH analogs.
The German Fertiprotekt network can be contacted for information materials; it records
measures carried out to protect fertility in Germany.
Level of consensus: +++
Recommendation 4.3-E13
All patients of reproductive age affected by cancer, children and their parents must
be offered biological and psychosocial counseling about fertility protection early
on.
Affected patients should be provided with low-threshold information about the options
and limits to fertility protection both orally and in writing (e.g., “blue guidebooks”)
to make it possible for them to make decisions based on informed consent.
Level of consensus: +++
4.3.2 Older couples wanting to have children
Statement 4.3-S16
From a psychological point of view, there are a number of benefits of late parenthood,
although the medical risks of motherhood after the age of 40 and fatherhood after
the age of 50 should not be underestimated.
Counseling which also takes the childʼs wellbeing into account should actively address
the psychosocial risks for medium-term and long-term child development and family
development (including for children who have already been born) associated with late
parenthood.
This counseling service covers all treatment options for late parenthood and the creation
of families using donated gametes or donated/adopted embryos. Psychosomatically oriented
counseling services should also explicitly address the partner, where applicable.
Level of consensus: +++
Recommendation 4.3-E14
Before embarking on late parenthood, women and men must be given the opportunity to
obtain comprehensive and differentiated information, explanations, and counseling
about the chances and risks from a medical and a psychosocial standpoint.
They should have low-threshold access to psychosomatically oriented counseling already
before commencing ART (as well as during and after starting a family).
Cryopreservation of gametes to start a family at a later point in time should be recorded
by a central agency (e.g., FertiProtekt or DIR).
Level of consensus: +++
5 Reproductive medicine for couples with migration background
Statement 5-S17
While many couples have personal and partner-related reasons for wanting to have children,
the wish to have children expressed by couples from especially pronatalist countries
is often also strongly influenced by social motives.
The pressures on many couples with a migration background when a desired and expected
pregnancy does not occur appears to be particularly high and may lead to increased
psychological stress for both partners.
Level of consensus: +++
Recommendation 5-E15
Before giving detailed explanations about the course of reproductive medical treatments,
the treating physician should get an overview of the respective coupleʼs existing
knowledge of biological processes and sexuality.
Couples with a migration background should also be informed in detail about the causes
of infertility to help to reduce at least part of the possibly existing feelings of
guilt and shame associated with involuntary childlessness.
When providing advice about subfertility and information about medical reproductive
treatment, specific culturally sensitive approaches should be used, which take account
of social and cultural aspects when interacting with subfertile women or couples with
a migration background.
Although it is important to be aware of the specific cultural and religious considerations
of the couple, the treating physician should be impartial when describing all the
treatment options and ask questions which invite the couple to present their personal
perspectives, concerns, and questions.
In many cases there may be problems communicating with immigrant women and their partners
because of language barriers. Centers of reproductive medicine should therefore have
appropriate information materials in different languages and, if necessary, also insist
on involving an interpreter. Using laypersons as interpreters should be avoided if
possible.
Level of consensus: +++
6 Starting a family with third party help
Statement 6-S18
There are no indications for adverse developments in children conceived with donated
sperm and growing up in heterosexual families, as long as these children are informed
about the conception and the sperm donation was not anonymous.
In Germany, persons conceived with donated sperm have the right to learn about their
genetic origin.
Level of consensus: +++
Recommendation 6-E16
Children should be given age-appropriate explanations early on (when they are still
of preschool age), not least because this avoids having difficult family secrets with
potential betrayals of confidence within the family.
If contacts between the child and the donor and/or half-siblings are planned, all
persons involved should be able to attend psychosomatically oriented counseling to
suitably prepare themselves, and such contacts should be accompanied by counseling,
if required.
Level of consensus: +++
Statement 6-S19
The motivation of lesbian couples to become parents does not differ much from that
of heterosexual couples. Lesbian couples face the task of deciding about who will
be the mother and the importance of the donor/genetic procreator for their future
family.
Children in lesbian families develop normally, and their psychosexual development
is also unremarkable.
Level of consensus: ++
Recommendation 6-E17
Children born to lesbian parents should be informed about how they were conceived
early on and, if they want to, be able to meet with the donor/genetic procreator,
irrespective of whether their parentsʼ treatment was carried out in the form of medically
assisted conception, privately, or abroad.
Level of consensus: ++
Statement 6-S20
There is very little data available on families born to single women who had fertility
treatment. Initial studies indicate that the children of these solo mums develop just
as well as those growing up with two parents and that solo mums also have no distinctive
characteristics. However, there are still no conclusive long-term studies.
Level of consensus: +++
Recommendation 6-E18
The special counseling needs of solo mums in terms of psychosocial care, safeguarding
and the childʼs legal position should be considered.
Level of consensus: +++
Statement 6-S21
Insemination with the sperm of a man known to the would-be parents changes traditional
and genetic family relationships.
There is no scientific knowledge available, particularly about the long-term effects
of this approach to create a family.
Level of consensus: +++
Recommendation 6-E19
All persons involved in this type of family creation must be offered comprehensive
psychosomatically oriented counseling.
Level of consensus: ++
Statement 6-S22
Studies have shown that men are prepared to donate sperm even if they can be identified
to the children conceived in this manner.
Because of the provisions of the German Sperm Donor Registry Act, men who donate sperm
for medically assisted conception procedures are no longer liable for child support
or similar.
Level of consensus: +++
Recommendation 6-E20
Men who donate sperm for medically assisted conception procedures must be informed
about the legal regulations, particularly about the childʼs right of information and
the possibility that the child could contact them.
They must also be informed about the possible consequences of DNA tests and gene databases.
Level of consensus: +++
Statement 6-S23
Co-parenting is a type of family about which there is very limited empirical evidence
and no scientific information.
Level of consensus: +++
Recommendation 6-E21
Persons involved in co-parenting families should obtain detailed advice beforehand
about all (potential) implications (including about who the legal parents are).
Level of consensus: +++
Statement 6-S24
According to currently available studies, children conceived by embryo donation/adoption
develop normally.
Level of consensus: +++
Recommendation 6-E22
Children conceived by embryo donation/adoption should be given an age-appropriate
explanation early on and have the right to know about their origin.
Psychosomatically oriented counseling must be offered to both the donating parent
and the parent accepting the donation. As with families created with the help of donated
gametes, all persons involved should have low-threshold access to psychosocial support
before there is any contact between the child (and their family) and the donor (and
their family).
Level of consensus: ++
Statement 6-S25
According to prospective comparative studies, the development of children conceived
by oocyte donation is unremarkable and does not differ from that of children conceived
spontaneously or with conventional ART, and they generally have a stable parent-child
bond. Long-term studies are not available.
Level of consensus: +++
Recommendation 6-E23
Children conceived by oocyte donation must have the right to know about their origins
and should be given age-appropriate explanations early on.
As with all types of families created by gamete donation or embryo donation/adoption,
the persons involved should have access to psychosomatically oriented support before
there is any contact between the child (and their family) and the donor (and their
family).
Level of consensus: +++
Statement 6-S26
Existing studies show that children born to surrogate mothers under legally regulated
conditions develop normally. Just like children born by gamete donation or embryo
donation/adoption, they are interested in their surrogate mother and should therefore
be able to contact them.
According to the limited studies available, this type of family does not appear to
be problematic, including for the surrogate mother herself, her children and the would-be
parents, if the family was created under legally regulated conditions.
Long-term studies are not available.
Level of consensus: +++
Recommendation 6-E24
Children born to surrogate mothers should be given an age-appropriate explanation
early on.
Level of consensus: +++
7 Gender incongruence and fertility
Statement 7-S27
Many trans people want to have children at some time in their life.
Some trans people seek to change their body in accordance with their gender identity,
using hormone treatments and/or surgery.
Most hormone treatments and particularly gender reassignment surgery may limit or
result in an irreversible loss of reproductive capacity.
The (long-term) effects of gender reassignment hormone treatment on fertility are
not clear.
There are no indications of any threats to the wellbeing of a child growing up with
a trans parent.
Level of consensus: +++
Recommendation 7-E25
Trans people should have access to all available options for reproductive medical
treatment.
Before starting gender reassignment treatment, all trans people must be advised about
the possible impact on fertility and the options to protect fertility and have a family.
Trans men who keep their reproductive organs should be advised about contraception.
Children who are conceived after gender reassignment should be informed both about
the reasons, type and circumstances of conception and about their parentsʼ gender
identity in an age-appropriate manner.
Interactions should be respectful and the trans personʼs preferred pronouns should
be used. Gender-neutral terms should be used during medical consultations and/or treatment.
Medical staff should be trained to understand the special concerns of trans patients.
Level of consensus: ++
8 Reproductive medical treatment abroad
Statement 8-S28
There is almost no scientific data available on couples and individuals who travel
abroad for subfertility treatment. Descriptions of individual cases and clinical experience,
however, show that there is great demand for medical, legal and psychosocial counseling
among these couples.
Level of consensus: ++
Recommendation 8-E26
Couples and individuals who intend to undergo subfertility procedures abroad that
are forbidden in Germany should be able to fall back on both medical and psychosocial
counseling in Germany. It is therefore necessary that such counseling is not subject
to prosecution.
Would-be parents should be made aware of the different legislation respecting subfertility
treatment abroad and the implications of that for creating a family.
Level of consensus: ++
9 Media offering information and advice
Statement 9-S29
Information materials about the course and the technical aspects of fertility treatment
probably help affected persons to cope with infertility and fertility treatment. Such
information may be provided in the form of brochures or educational films but also
online. The efficacy of these forms of psychosocial intervention should be evaluated.
Level of consensus: +++
Recommendation 9-E27
Up-to-date easy-access and low-threshold information on coping with infertility and
infertility treatments should be available to all persons wanting to have children.
Treating physicians should be made aware of the advantages of the internet (e.g.,
low-threshold availability of national and international guidelines and information
portals) and its downsides (e.g., few opportunities to validate other information).
Level of consensus: +++
10 Self-help groups
Recommendation 10-E28
Even though currently no scientific evaluations of the efficacy of self-help groups
for subfertile/infertile persons wanting to have children are available, couples/individuals
should be informed about such psychosocial offers of support and the relevant places
to contact.
Level of consensus: +++
