DOI: 10.1055/s-00000015

European Journal of Pediatric Surgery

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Benjamin K, Vernon MK, Patrick DL, Perfetto E, Nestler-Parr S, Burke L.
Patient-reported outcome and observer-reported outcome assessment in rare disease clinical trials: an ISPOR COA Emerging Good Practices Task Force Report.

Value Health 2017;
20 (07) 838-855

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