German Translation of the Caregiver Priorities and Child Health Index of Life with Disabilities Questionnaire: Test–Retest Reliability and Correlation with Gross Motor Function in Children with Cerebral Palsy

Nikolai H. Jung; Olga Brix; Peter Bernius; A. Sebastian Schroeder; Gerhard J. Kluger; Andreas Beyerlein; Shannon Weir; Rudiger von Kries; Unni G. Narayanan; Volker Mall; Steffen Berweck

doi:10.1055/s-0034-1372304

Neuropediatrics, Inhaltsverzeichnis

Neuropediatrics 2014; 45(05): 289-293
DOI: 10.1055/s-0034-1372304

Original Article

Georg Thieme Verlag KG Stuttgart · New York

German Translation of the Caregiver Priorities and Child Health Index of Life with Disabilities Questionnaire: Test–Retest Reliability and Correlation with Gross Motor Function in Children with Cerebral Palsy

Autor*innen

Nikolai H. Jung

¹Department of Pediatrics, Technische Universität München, Kinderzentrum München gemeinnützige GmbH, Munich, Germany
Olga Brix

²Department of Pediatric Neurology and Developmental Medicine, Hauner Children's Hospital, University of Munich, Munich, Germany
Peter Bernius

³Schön Klinik Harlaching, Clinic for Pediatric Orthopedics, Munich, Germany
A. Sebastian Schroeder

²Department of Pediatric Neurology and Developmental Medicine, Hauner Children's Hospital, University of Munich, Munich, Germany
Gerhard J. Kluger

⁴Schön Klinik Vogtareuth, Clinic for Neuropediatrics and Neurorehabilitation, Vogtareuth, Germany
Andreas Beyerlein

⁵Institute of Diabetes Research, Helmholtz Zentrum München, Munich, Germany, and Forschergruppe Diabetes der Technischen Universität München, Munich, Germany
Shannon Weir

⁶Division of Orthopedic Surgery, The Hospital for Sick Children, University of Toronto, Toronto, Canada
Rudiger von Kries

⁷Institute for Social Pediatrics and Adolescent Medicine, Ludwig-Maximilians-Universität, Munich, Germany
Unni G. Narayanan

⁶Division of Orthopedic Surgery, The Hospital for Sick Children, University of Toronto, Toronto, Canada
Volker Mall^*

¹Department of Pediatrics, Technische Universität München, Kinderzentrum München gemeinnützige GmbH, Munich, Germany
Steffen Berweck^*

²Department of Pediatric Neurology and Developmental Medicine, Hauner Children's Hospital, University of Munich, Munich, Germany

⁴Schön Klinik Vogtareuth, Clinic for Neuropediatrics and Neurorehabilitation, Vogtareuth, Germany

Abstract

We aimed to translate the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) questionnaire into German and to evaluate its reliability and validity by studying the association between CPCHILD scores and gross motor function as measured by the gross motor function classification system (GMFCS) in children with cerebral palsy (CP). The original CPCHILD questionnaire and manual were translated and back translated. It was administered to primary caregivers of persons with CP (GMFCS levels III–V) and was completed a second time 2 weeks after the first to measure test–retest reliability (n = 17). Primary caregivers of 68 children with CP; GMFCS level III (n = 14), level IV (n = 28), and level V (n = 26) completed the questionnaire. Mean total CPCHILD scores across GMFCS levels were 67.1 ± 14.9 for GMFCS level III, 56.6 ± 11.8 for level IV, and 44.3 ± 12.9 for level V. Good correlation (r = − 0.56) was observed between GMFCS and total scores test–retest reliability showed intraclass correlation coefficients between 0.4 and 0.9. The German CPCHILD yielded similar test–retest reliability and score distributions across the GMFCS level as the original version. The best correlations were observed for domains that are close to the functional deficits.

Keywords

cerebral palsy - health-related quality of life - CPCHILD - gross motor function

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Referenzen

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