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Does being ‘well off’ help people with epilepsy cope better? The social impact of epilepsy
Received: 05 July 2016
Accepted: 15 November 2016
06 May 2018 (online)
Introduction Studies demonstrate that there is a positive association between socioeconomic status (SES) and personal control where higher SES groups are likely to have higher personal control and better health outcomes. People with epilepsy however usually show lower levels of personal control. This paper aims to explore the relationship between self-rated prosperity and personal control in an epilepsy sample.
Methods Using the results of the 2013 Australian Epilepsy Longitudinal Survey (AELS) a group was identified who perceived themselves as prosperous or very comfortable. Hypothesising that prosperity would provide greater personal control, we compared this group with other groups from HILDA Wave 11, a random sample of the Australian population surveyed in 2011. HILDA is a household, labour and income study funded by the Australian government.
Results All respondents in Wave 3 (AELS) had lower levels of personal control than the HILDA Wave 11 groups. In a comparison between Wave 3 of those reporting themselves as prosperous or very comfortable with similar groups in HILDA Wave 11, prosperous people from Wave 3 demonstrated much lower levels of personal control than the HILDA Wave 11 group.
Conclusion Personal control is considered to have far-reaching consequences for people's health. The effects of stigma and the unpredictability of epilepsy far outweigh the effects of prosperity for people with epilepsy compared to a random sample of the Australian population.
- 1 Bandura A. Social cognitive theory. Vasta R. Annals of Child Development, vol. 6: Six Theories of Child Development. 1989. JAI Press; Greenwich, CT: 1-60
- 2 Seeman M, Lewis S. Powerlessness, health and mortality: a longitudinal study of older men and mature women. Soc Sci Med 41 1995; 517-525
- 3 Wilkinon RG, Pickett P. The Spirit Level: Why More Equal Societies Almost Always Do Better. 2009. Allen Lane; London:
- 4 Marmot MG, Furhrer R, Ettner SL, Marks NF, Bumpass LL, Ryff CD. Contribution of psychosocial factors to socioeconomic differences in health. Milbank Q 76 1998; 403-448
- 5 Marmot MG, Wilkinson RG. Psychosocial and material pathways in the relation between income and health: a response to Lynch et al.. BMJ 322 2001; 1233-1236
- 6 Peterson C, Stunkard AJ. Personal control and health promotion. Soc Sci Med 28 1989; 819-828
- 7 Pearlin L, Schooler C. The structure of coping. J Health Soc Behav 19 1978; 2-21
- 8 Seeman M. Personal Control in Psychosocial Notebook. Research Network on SES and Health. 2008. University of California; San Francisco: http://www.macses.ucsf.edu/research/psychosocial/control.php Accessed 21.03.15
- 9 Skinner E. A guide to constructs of control. J Pers Soc Psychol 71 1996; 549-570
- 10 Ross C, Mirowsky J. The sense of personal control: structural causes and emotional consequences. Aneshensel CS, Phelan JC, Bierman A. Handbook of the Sociology of Mental Health. 2013. Springer; Netherlands: 379-402
- 11 OECD Education at a glance. OECD Indicators at a glance 2012. http://www.oecd.org/australia/EAG2012%20-%20Country%20note%20-%20Australia.pdf Accessed 18.07.15.
- 12 Saunders P. A Perennial Problem: Employment, Joblessness and Poverty. SPRC Discussion Paper 146. 2006: 12
- 13 Oakes JM, Rossi PH. The measurement of SES in health research: current practice and steps towards a new approach. Soc Sci Med 56 2003; 773
- 14 Draper G, Turrell G, Oldenburg B. Health Inequalities in Australia: Mortality. Health Inequalities Monitoring Series No. 1.. 2004. Queensland University of Technology and the Australian Institute of Health and Welfare; Canberra:
- 15 Turrell G, Stanley L, de Looper M, Oldenberg B. Health Inequalities in Australia: Morbidity, Health Risk Behaviours, Risk Factors and Health Service Use. Health Inequalities Monitoring Series No. 2.. 2006. Queensland University of Technology Australian Institute of Health and Welfare; Canberra:
- 16 Swerissen H, Belfrage J, Weeks A. et al. A randomised control trial of a self-management program for people with a chronic illness from Vietnamese, Chinese, Italian and Greek backgrounds. Patient Educ Couns 64 2006; 360-368
- 17 Ferrie J. Work, Stress and Health: Findings from the Whitehall II Studies. 2004. International Centre for Health and Society Department of Epidemiology and Public Health London University College;
- 18 Goldman DP, Smith JP. Can patient self-management help explain the SES health gradient?. Proc Natl Acad Sci 99 2002; 10929-10934 http://www.pnas.org_cgi_doi_10.1073_pnas.162086599 Accessed 25.01.15
- 19 McLaughlan DP, Pachene NA, McFarland K. The impact of depression, seizure variables and local control on health related quality of life in a community dwelling sample of older adults. Seizure 19 2010; 232-236
- 20 Hermann B, Jacoby A. The psychosocial impact of epilepsy in adults. Epilepsy Behav 15 2009; S11-S16
- 21 Edwards RR, Telfair J, Cecil H, Lenoci J. Reliability and validity of a self-efficacy instrument specific to Sickle Cell Disease. Behav Res Ther 38 2000; 951-963
- 22 Mindful Project Recommendations for the European Health Interview Survey EHIS Health Determinants Module. 2006 http://ec.europa.eu/health/ph_projects/2003/action1/docs/2003_1_11_frep_a15_en.pdf Accessed 18.02.15
- 23 Lynch JW, Kaplan GA. Socioeconomic factors. Berkman LF, Kawachi I. Social Epidemiology. 2000. Oxford University Press; New York: 13-35
- 24 Austin JK, McLeod J, Dunn DW, Shen J, Perkins SM. Measuring stigma in children with epilepsy and their parents; Instrument development and testing. Epilepsy Behav 5 2004; 472-482
- 25 Peterson CL, Walker C, Shears G. The social context of anxiety and depression: exploring the role of anxiety and depression in the lives of Australian adults with epilepsy. Epilepsy Behav 34 2014; 29-33
- 26 Jacoby A. Epilepsy and the quality of everyday life. Findings from a study of people with well-controlled epilepsy. Soc Sci Med 34 1992; 657-666
- 27 Kellet MW, Smith DF, Baker GA, Chadwick GW. Quality of life after epilepsy surgery. J Neurol Psychiatry 62 1997; 53-58
- 28 Amir M, Rosimer J, Knoll A, Neufeld MY. Self-efficacy and social support as mediators in the relation between disease severity and quality of life in patients with epilepsy. Epilepsia 40 1999; 16-24
- 29 Smith D, Chadwick D, Baker D, Davis G, Dewey M. Seizure severity and the quality of life. Epilepsia 34 1993; S31-S35
- 30 Taylor J, Jacoby A, Baker GA, Marson AG, Ring A. Factors predictive of resilience and vulnerability n new-onset epilepsy. Epilepsia 52 2011; 610-618
- 31 Schachter SC. Improving quality of life beyond seizure control. Epileptic Disord 7 2005; S3-S9
- 32 Au A, Chan F, Li K, Leung P, Li P, Chan J. Cognitive behavioural group treatment programs for adults with epilepsy in Hong Kong. Epilepsy Behav 4 2003; 441-446
- 33 Szaflarski M. Social determinants of health in epilepsy. Epilepsy Behav 41 2014; 283-289
- 34 Asadi-Pooya AA, Schilling CA, Glasser D, Tracy JI, Sperling MR. Health locus of control in patients with epilepsy and its relationship to anxiety, depression and seizure control. Epilepsy Behav 11 2007; 347-350
- 35 Australian Government Dept. of Human Services. Income test for low income Health Care Card. http://www.humanservices.gov.au/customer/enablers/centrelink/low-income-health-care-card/income-test Accessed 29.07.14.
- 36 Fair Work Australia, http://www.fairwork.gov.au Accessed 29.07.14.
- 37 Australian Council of Social Service (ACOSS) Poverty in Australia 2014. http://www.acoss.org.au/images/uploads//ACOSS_poverty_in_Australia_2014.pdf Accessed 30.07.14.