The KEKS Health Folder and the KEKS Portal

Abstract

The importance of lifelong, structured follow-up for corrected esophageal atresia led to the development of a follow-up book. This was updated and digitized in 2024. The KEKS-Portal allows families to complete the forms themselves, reflects the patient perspective, and trains parents in symptom assessment. The new digital forms serve as preparation for clinic appointments and as a “Patient-Reported Outcome Measure” (PROM). KEKS uses the data for consultations and research. Additionally, families receive a free health folder with information on esophageal atresia. These offerings are an important support for families and clinics to structure and improve follow-up care.

Keywords

PROM - Patient-Reported Outcome Measure - follow-up care - oesophageal atresia/esophageal atresia

Publication History

Article published online:
10 October 2025

• Literatur/References

• 1 Steinbeck V, Ernst SC, Pross C. Patient-Reported Outcome Measures (PROMs): ein internationaler Vergleich. Herausforderungen und Erfolgsstrategien für die Umsetzung von PROMs in Deutschland. Bertelsmann Stiftung; 2021.