Neuropediatrics 2011; 42 - V03
DOI: 10.1055/s-0031-1273952

CPchild – caregiver priorities and child health index of live with disabilities – initial validation in a german cohort

O Brix 1, N Jung 2, A Beyerlein 3, P Bernius 4, B Pereira 2, AS Schroeder 1, G Kluger 5, S Weir 6, R von Kries 3, U Narayanan 6, V Mall 2, S Berweck 5
  • 1Dr. von Haunersches Kinderspital, Ludwig-Maximilians-Universität München, Klinik für Neuropädiatrie und Sozialpädiatrie, München, Germany
  • 2Zentrum für Kinder- und Jugendmedizin, Klinik II: Neuropädiatrie und Muskelerkrankungen, Freiburg, Germany
  • 3Ludwig-Maximilians-Universität München, Institut für Soziale Pädiatrie und Jugendmedizin, München, Germany
  • 4Schön Klinik Harlaching, Klinik für Kinderorthopädie, München, Germany
  • 5Schön Klinik Vogtareuth, Klinik für Neuropädiatrie und neurologische Rehabilitation, Vogtareuth, Germany
  • 6The Hospital for Sick Children, Division of Orthopedic Surgery, Toronto, Canada

Objective: Validity of the translated „CP Child„ in a german cohort of children with severe cerebral palsy (GMFCS 3–5).

Methods: Translation and retranslation of the original questionnaire and manual. Validation with n=62 families, who were invited to participate by personal contact or letter. The families were recruited from special outpatient clinics in Munich and Freiburg, Germany. The CPCHILD© currently consists of 37 items distributed over among 6 sections representing the following domains: 1. Activities of Daily Living/Personal Care (9 items), 2. Positioning, Transferring & Mobility (8 items), 3. Comfort & Emotions (9 items), 4. Communication & Social Interaction (7 items), 5. Health (3 items), 6. Overall Quality of Life (1 item). Testing and scoring followed the manual and interpretation guide.

Results: The analysis of the scores include: Reliability, face validity, construct validity in relation to GMFCS.

Discussion: The german translation of the „CP Child„ seems to be a valid questionnaire for measuring HRQL in severely affected children and adolescents.