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DOI: 10.1055/s-0031-1273952
CPchild – caregiver priorities and child health index of live with disabilities – initial validation in a german cohort
Objective: Validity of the translated „CP Child„ in a german cohort of children with severe cerebral palsy (GMFCS 3–5).
Methods: Translation and retranslation of the original questionnaire and manual. Validation with n=62 families, who were invited to participate by personal contact or letter. The families were recruited from special outpatient clinics in Munich and Freiburg, Germany. The CPCHILD© currently consists of 37 items distributed over among 6 sections representing the following domains: 1. Activities of Daily Living/Personal Care (9 items), 2. Positioning, Transferring & Mobility (8 items), 3. Comfort & Emotions (9 items), 4. Communication & Social Interaction (7 items), 5. Health (3 items), 6. Overall Quality of Life (1 item). Testing and scoring followed the manual and interpretation guide.
Results: The analysis of the scores include: Reliability, face validity, construct validity in relation to GMFCS.
Discussion: The german translation of the „CP Child„ seems to be a valid questionnaire for measuring HRQL in severely affected children and adolescents.