Problems Faced by Married Women with Epilepsy in Indian Scenario: A Hospital-Based StudyFunding None.
Received: 02 August 2018
Accepted after revision: 29 September 2018
07 January 2019 (online)
Background Epilepsy is still being considered as a social stigma especially in developing countries such as India. This study was conducted to analyze the problems faced by married women with epilepsy in various aspects of personal and social life.
Objectives The main purpose of this article is to study the psychosocial problems, drug compliance, clinical course, attitude of in-laws, and effect of epilepsy on pregnancy and its outcome in married women with epilepsy in Indian scenario.
Design, Materials, and Methods This is a prospective observational study including 100 patients. Questionnaire-based face-to-face interview of all the patients was conducted. Patients were divided into informed and concealed groups and various attributes and their significance were compared. Statistical analysis was performed using SPSS-20.0 and Microsoft Office Excel software.
Results Out of 100 patients, a total of 58 (58%) patients had informed prior to marriage, while 42 (42%) concealed it. Attitude of husband was negative in 33% (14 out of 42) of concealed group and was statistically significant (p = 0.03). Statistically significant adverse marital outcome was observed in concealed group and Muslim community (p = 0.0001). Majority of the patients in both groups (86%) opined that it should be disclosed prior to marriage.
Conclusion In a developing country such as India, epilepsy is still considered a social stigma that can manifest as felt or enacted stigma. Previous studies clearly indicate increasing awareness. Social stigma associated with epilepsy can only be eliminated with collaborative efforts of healthcare professional, government, and general public.
- 1 Agarwal P, Mehndiratta MM, Antony AR. et al. Epilepsy in India: nuptiality behaviour and fertility. Seizure 2006; 15 (06) 409-415
- 2 Wada K, Kawata Y, Murakami T. et al. Sociomedical aspects of epileptic patients: their employment and marital status. Psychiatry Clin Neurosci 2001; 55 (02) 141-146
- 3 de Boer HM. Epilepsy and society. Epilepsia 1995; 36 (Suppl. 01) S8-S11
- 4 McLin WM, de Boer HM. Public perceptions about epilepsy. Epilepsia 1995; 36 (10) 957-959
- 5 Caveness WF, Gallup Jr GH. A survey of public attitudes toward epilepsy in 1979 with an indication of trends over the past thirty years. Epilepsia 1980; 21 (05) 509-518
- 6 Canger R, Cornaggia C. Public attitudes toward epilepsy in Italy: results of a survey and comparison with U.S.A. and West German data. Epilepsia 1985; 26 (03) 221-226
- 7 Jensen R, Dam M. Public attitudes toward epilepsy in Denmark. Epilepsia 1992; 33 (03) 459-463
- 8 Lai CW, Huang XS, Lai YHC, Zhang ZQ, Liu GJ, Yang MZ. Survey of public awareness, understanding, and attitudes toward epilepsy in Henan province, China. Epilepsia 1990; 31 (02) 182-187
- 9 Rwiza HT, Matuja WB, Kilonzo GP. et al. Knowledge, attitude, and practice toward epilepsy among rural Tanzanian residents. Epilepsia 1993; 34 (06) 1017-1023
- 10 Gambhir SK, Kumar V, Singhi PD, Goel RC. Public awareness, understanding & attitudes toward epilepsy. Indian J Med Res 1995; 102: 34-38
- 11 Santosh D, Kumar TS, Sarma PS, Radhakrishnan K. Women with onset of epilepsy prior to marriage: disclose or conceal?. Epilepsia 2007; 48 (05) 1007-1010
- 12 Krishnaiah B, Alwar SP, Ranganathan LN. Knowledge, attitude, and practice of people toward epilepsy in a South Indian village. J Neurosci Rural Pract 2016; 7 (03) 374-380
- 13 Singh G, Pauranik A, Menon B. et al. The dilemma of arranged marriages in people with epilepsy. An expert group appraisal. Epilepsy Behav 2016; 61: 242-247
- 14 Temkin O. The Falling Sickness. Baltimore: The Johns Hopkins University Press; 1945
- 15 Landover MD. The Legal Rights of Persons with Epilepsy. An Overview of Legal Issues and Laws Affecting Persons with Epilepsy, 6th ed.. Epilepsy Foundation of America; United States: 1992
- 16 Desai K. Indian Law of Marriage and Divorce. Nagpur, India: Wadhwa and Company; 2004
- 17 Varma S. India In Motion - Marriages Last the Longest in N India, Maha; least in NE: The Times of India: Article Date: 01.18.2016