CC BY-NC-ND 4.0 · Yearb Med Inform 2020; 29(01): 026-031
DOI: 10.1055/s-0040-1701966
Keynote
Georg Thieme Verlag KG Stuttgart

Ethics in Health Informatics

Kenneth W. Goodman
1   Institute for Bioethics and Health Policy, University of Miami Miller School of Medicine, Miami, USA
› Author Affiliations
Further Information

Publication History

Publication Date:
17 April 2020 (online)

Summary

Contemporary bioethics was fledged and is sustained by challenges posed by new technologies. These technologies have affected many lives. Yet health informatics affects more lives than any of them. The challenges include the development and the appropriate uses and users of machine learning software, the balancing of privacy rights against the needs of public health and clinical practice in a time of Big Data analytics, whether and how to use this technology, and the role of ethics and standards in health policy. Historical antecedents in statistics and evidence-based practice foreshadow some of the difficulties now faced, but the scope and scale of these challenges requires that ethics, too, be brought to scale in parallel, especially given the size of contemporary data sets and the processing power of new computers. Fortunately, applied ethics affords a variety of tools to help identify and rank applicable values, support best practices, and contribute to standards. The bioethics community can in partnership with the informatics community arrive at policies that promote the health sciences while reaffirming the many and varied rights that patients expect will be honored.

 
  • References

  • 1 Morar FS. Reinventing machines: the transmission history of the Leibniz Calculator. Brit J Hist Sci 2015; 48 (01) 123-16
  • 2 Goodman KW. Health information technology and globalization. In: Chadwick R, ten Have H, Meslin EM. , editors. Health Care Ethics: Core and Emerging Issues. Los Angeles: Sage; 2011: 117-25 . See also references therein.
  • 3 Goodman KW. Ethics, Medicine and Information Technology: Intelligent Machines and the Transformation of Health Care. Cambridge: Cambridge University Press; 2016
  • 4 Thomas PS, Castro da Silva B, Barto AG, Giguere S, Brun Y, Brunskill E. Preventing undesirable behavior of intelligent machines. Science 2019; 366: 999-1004
  • 5 Miller RA, Schaffner KF, Meisel A. Ethical and legal issues related to the use of computer programs in clinical medicine. Ann Int Med 1985; 102: 529-36
  • 6 Anderson JG, Aydin CE. Evaluating medical information systems: social contexts and ethical challenges. In: Goodman KW. , editor. Ethics, Computing, and Medicine: Informatics and the Transformation of Health Care. Cambridge: Cambridge University Press; 1998: 57-74
  • 7 Liu Y, Cameron Chen PH, Krause J, Peng L. How to read articles that use machine learning. JAMA 2019; 322 (18) 1806-16
  • 8 Louis PCA. Essay on Clinical Instruction. . P. Martin, trans., London: S. Highley; 1834. (Cited in: Huth EJ, Murray TJ. , editors. Medicine in Quotations: Views of Health and Disease Through the Ages. Philadelphia: American College of Physicians; 2006
  • 9 Cozzens M, Miller SJ. The Mathematics of Encryption: An Elementary Introduction. Providence, Rhode Island: American Mathematical Society; 2013
  • 10 Goodman KW. Ethics, information technology and public health: new challenges for the clinician-patient relationship. J Law Med Ethics 2010; 38 (01) 58-63
  • 11 Malin B, Goodman KW. Between access and privacy: challenges in sharing health data. Yearb Med Inform 2018; 55-9
  • 12 UNESCO. The Right to enjoy the benefits of scientific progress and its applications. Paris: UNESCO, 2009. Available from: https://unesdoc.unesco.org/ark:/48223/pf0000185558
  • 13 Institute of Medicine. The Learning Healthcare System: Workshop Summary (IOM Roundtable on Evidence-Based Medicine). Washington, DC: The National Academies Press; 2007
  • 14 Friedman CP, Rubin JC, Sullivan KJ. Toward an information infrastructure for global health development. Yearb Med Inform 2017; 16-23
  • 15 Lee LM, Gostin LO. Ethical collection, storage, and use of public health data: A proposal for a national privacy protection. JAMA 2009; 302 (01) 82-4
  • 16 Faden RR, Kass NE, Goodman SN, Pronovost P, Tunis S, Beauchamp TL. An ethics framework for a learning health care system: a departure from traditional research ethics and clinical ethics. Hastings Cent Rep 2013; 43 (S1): S16-S27
  • 17 Salerno J, Knoppers BM, Lee LM, Hlaing WM, Goodman KW. Ethics, big data and computing in epidemiology and public health. Ann Epidemiol 2017; 27: 297-301
  • 18 Petersen C, Berner ES, Embi PJ, Fultz Hollis K, Goodman KW, Koppel R, Lehmann CU. , et al. AMIA's code of professional and ethical conduct. J Am Med Inform Assoc 2018; 25 (11) 1579-82
  • 19 Kluge EH, The IMIA. Code of Ethics: Revision 2016. International Medical Informatics Association 2016. Available from: https://imia-medinfo.org/wp/wp-content/uploads/2015/07/IMIA-COde-of-Ethics-Short.pdf