Subscribe to RSS
DOI: 10.1055/s-0041-107502
Transition bei chronischen Erkrankungen der Kindheit und Jugend
Publication History
Publication Date:
07 March 2016 (online)
Gesundheitspersonen kommt eine wichtige Aufgabe in der Betreuung von Jugendlichen mit einer chronischen Erkrankung zu. Adoleszenz ist per se keine einfache Zeit, so sind Jugendliche mit einer chronischen Erkrankung zusätzlich damit konfrontiert, Verantwortung für sich und ihre Erkrankung zu übernehmen. Gerade der Transfer von der Kinder- in die Erwachsenenmedizin kann dazu führen, dass Jugendliche die Behandlung abbrechen und es vermehrt zu Notfallsituationen kommt. Somit gehört es zur Verantwortung der betreuenden Kindermediziner, frühzeitig sicherzustellen, dass die Selbstmanagementkompetenzen dieser Jugendlichen gefördert werden und eine adäquate Weiterbetreuung organisiert ist. Dem übernehmenden Erwachsenenteam obliegt es, die Familie willkommen zu heißen und jugendspezifische Themen gemeinsam weiter anzugehen. Diese Themen regelmäßig anzusprechen, sich genügend Zeit für den Jugendlichen zu nehmen und Gespräche unter vier Augen anzubieten, hat sich für eine erfolgreiche Transition als hilfreich erwiesen.
-
Literatur
- 1 Michaud P-A, Suris J-C, Viner R. The adolescent with a chronic condition: epidemiology, developmental issues and health care provision. WHO Discussion Papers on Adolescence. Genf: World Health Organization; 2007
- 2 Michel G, Von der Weid N, Zwahlen M et al. Incidence of childhood cancer in Switzerland: the Swiss childhood cancer registry. Pediatric blood & cancer 2008; 50: 46-51
- 3 Diller L. Adult Primary Care after Childhood Acute Lymphoblastic Leukemia. New England Journal of Medicine 2011; 365: 1417-1424
- 4 Wallace WHB, Thompson L, Anderson RA. Long term follow-up of survivors of childhood cancer: summary of updated SIGN guidance. 2013: 346
- 5 Essig S, Li Q, Chen Y et al. Risk of late effects of treatment in children newly diagnosed with standard-risk acute lymphoblastic leukaemia: a report from the Childhood Cancer Survivor Study cohort. The lancet oncology 2014; 15: 841-851
- 6 Webb G, Mulder BJ, Aboulhosn J et al. The care of adults with congenital heart disease across the globe: Current assessment and future perspective: A position statement from the International Society for Adult Congenital Heart Disease (ISACHD). Int J Cardiol 2015; 195: 326-333
- 7 Menting ME, Cuypers JA, Opic P et al. The unnatural history of the ventricular septal defect: outcome up to 40 years after surgical closure. J Am Coll Cardiol 2015; 65: 1941-1951
- 8 Schwerzmann M. Congenital heart disease clinics – how to keep patients on board. Progress in Pediatric Cardiology 2012; 34: 113-117
- 9 Goossens E, Stephani I, Hilderson D et al. Transfer of adolescents with congenital heart disease from pediatric cardiology to adult health care: an analysis of transfer destinations. J Am Coll Cardiol 2011; 57: 2368-2374
- 10 Meleis AI, Sawyer LM, Im EO et al. Experiencing transitions: an emerging middle-range theory. Advances in nursing science 2000; 23: 12-28
- 11 Rutishauser C, Navratil F. Zwischen Pädiatrie und Erwachsenenmedizin – ärztliche Betreuung Jugendlicher in der Schweiz. Schweiz Med Forum 2004; 4: 1159-1165
- 12 Paul M, Ford T, Kramer T et al. Transfers and transitions between child and adult mental health services. Br J Psychiatry Suppl 2013; 54: 36-40
- 13 Sable C, Foster E, Uzark K et al. Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association. Circulation 2011; 123: 1454-1485
- 14 Rutishauser C, Sawyer SM, Ambresin AE. Transition of young people with chronic conditions: a cross-sectional study of patient perceptions before and after transfer from pediatric to adult health care. Eur J Pediatr 2014; 173: 1067-1074
- 15 Caflisch M. Wenn chronisch kranke Jugendliche erwachsen werden. Pädiatrie 2013; 2: 4-10
- 16 Tuchman LK, Schwartz LA, Sawicki GS et al. Cystic Fibrosis and Transition to Adult Medical Care. Pediatrics 2010; 125: 566-573
- 17 Moceri P, Goosens E, Hascoet S et al. From adolescents to adults with congenital heart disease: the role of transition. Eur J Pediatr 2015; 174: 847-854
- 18 Suris JC, Akre C. Key elements for, and indicators of, a successful transition: an international delphi study. J Adolesc Health 2015; 56: 612-618
- 19 Lyons SK, Libman IM, Sperling MA. Diabetes in the Adolescent: Transitional Issues. J of Clin Endocrinology & Metabolism 2013; 98: 4639-4645
- 20 Lugasi T, Achille M, Stevenson M. Patients´ perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies. J Adolesc Health 2011; 48: 429-440
- 21 American Academy of Pediatrics. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 2011; 128: 182-200
- 22 Nagra A, McGinnity PM, Davis N et al. Implementing transition: Ready Steady Go. Arch Dis Child Educ Pract Ed 2015; 100: 313-320
- 23 Betz CL, Redcay G. Dimensions of the transition service coordinator role. J Spec Pediatr Nurs 2005; 10: 49-59
- 24 Annunziato RA, Baisley MC, Arrato N et al. Strangers headed to a strange land?. A pilot study of using a transition coordinator to improve transfer from pediatric to adult services. J Pediatr 2013; 163: 1628-1633
- 25 Fredericks EM. Nonadherence and the transition to adulthood. Liver Transpl 2009; 15: 63-69
- 26 Kovacs AH, McCrindle BW. So hard to say goodbye: transition from paediatric to adult cardiology care. Nat Rev Cardiol 2014; 11: 51-62
- 27 American Academy of Pediatrics, American Academy of Family Physicians and Amercian College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 2002; 110: 1304-1306
- 28 Blum RW. Introduction. Improving transition for adolescents with special health care needs from pediatric to adult-centered health care. Pediatrics 2002; 110: 1301-1303
- 29 Lotstein DS, Ghandour R, Cash A et al. Planning for health care transitions: results from the 2005–2006 National Survey of Children With Special Health Care Needs. Pediatrics 2009; 123: 145-152
- 30 Baumann T. Jugendliche in der „Walk-in Praxis“. Praxis 2013; 102: 1129-1135
- 31 Goldenring JM, Rosen DS. Getting into adolescent heads: an essential update. Contemporary Pediatrics 2004; 21: 64-90