CC BY 4.0 · Journal of Health and Allied Sciences NU
DOI: 10.1055/s-0043-1769081
Review Article

Nursing Perspective of Providing Palliative Care to the Children—A Narrative Review

1   Nursing Services, Dr. BRAIRCH, AIIMS, Delhi, India
Jyoti Sarin
2   MM College of Nursing, Maharishi Markandeshwar University, Mullana, Ambala, Haryana, India
Rakesh Garg
3   Onco-Anesthesia and Palliative Medicine, Dr. BRAIRCH, AIIMS, New Delhi, India
› Author Affiliations


Introduction Palliative care of children (PCC) is a philosophical and a structured approach to providing tailored care to children with life-threatening diseases. Understanding the role of nurses and empowering them to take up the role of palliative care nurse are imperative to strengthen these services and make the palliative care services more accessible to the patients.

Method The literature search was done in two database, PubMed and Scopus, using keyword and Medical Subject Headings (MeSH) terms such as children, palliative care, end of life, hospice, bereavement, and nursing. Records were screened by authors and relevant articles were included in the review.

Discussion PCC should start with the diagnosis of the illness continue through all the phases of illness. Bereavement support to the family is also a part of palliative care. Nurses are in a key position to play important role in the PCC team. Nurses play various roles such as direct care provider, communicator, patient advocate, respite nurse, and counselor.

Conclusion PCC is aimed to improve the quality of life of the child and family. It is crucial to achieving universal health coverage. Role of nurse is vital in providing PCC.

Publication History

Article published online:
16 May 2023

© 2023. The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution License, permitting unrestricted use, distribution, and reproduction so long as the original work is properly cited. (

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  • References

  • 1 Standards of Practice for Pediatric Palliative Care and Hospice. Published online 2022. Accessed April 21, 2023 at:
  • 2 Connor SR, Bermedo MCS. Worldwide Hospice Palliative Care Alliance, World Health Organization. Global Atlas of Palliative Care; 2020
  • 3 Muckaden M, Dighe M, Balaji P. et al. Paediatric palliative care: theory to practice. Indian J Palliat Care 2011; 17 (Suppl): S52-S60
  • 4 Docherty SL, Thaxton C, Allison C, Barfield RC, Tamburro RF. The nursing dimension of providing palliative care to children and adolescents with cancer. Clin Med Insights Pediatr 2012; 6: 75-88 DOI: 10.4137/CMPed.S8208.
  • 5 De Clercq E, Rost M, Rakic M. et al. The conceptual understanding of pediatric palliative care: a Swiss healthcare perspective. BMC Palliat Care 2019; 18 (01) 55 DOI: 10.1186/s12904-019-0438-1.
  • 6 Johnston DL, Vadeboncoeur C. Palliative care consultation in pediatric oncology. Support Care Cancer 2012; 20 (04) 799-803
  • 7 Ranallo L. Improving the quality of end-of-life care in pediatric oncology patients through the early implementation of palliative care. J Pediatr Oncol Nurs 2017; 34 (06) 374-380
  • 8 National Quality Forum. A National Framework and Preferred Practices for Palliative and Hospice Care Quality: A Consensus Report. National Quality Forum; 2006
  • 9 World Health Organization. Integrating Palliative Care and Symptom Relief into Paediatrics: A WHO Guide for Health-Care Planners, Implementers and Managers. World Health Organization; 2018. Accessed April 21, 2023 at:
  • 10 Chelazzi C, Villa G, Lanini I, Romagnoli S, Latronico N. The adult and pediatric palliative care: differences and shared issues. J Anesthesia Analgesia Crit Care 2023; 3 (01) 1 DOI: 10.1186/s44158-023-00085-8.
  • 11 Kochen EM, Boelen PA, Teunissen SCCM. et al; emBRACE Working Group. Health care professionals' experiences with Preloss care in pediatrics: goals, strategies, obstacles, and facilitators. J Pain Symptom Manage 2021; 62 (01) 107-116
  • 12 Tamburro RF, Shaffer ML, Hahnlen NC, Felker P, Ceneviva GD. Care goals and decisions for children referred to a pediatric palliative care program. J Palliat Med 2011; 14 (05) 607-613
  • 13 Williams LJ. Palliative care and population management: utilization of palliative care in pediatric critical care nursing. Crit Care Nurs Clin North Am 2022; 34 (01) 13-18
  • 14 Weaver MS, Heinze KE, Bell CJ. et al; Pediatric Palliative Care Special Interest Group at Children's National Health System. Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: an integrative review. Palliat Med 2016; 30 (03) 212-223
  • 15 Wiener L, McConnell DG, Latella L, Ludi E. Cultural and religious considerations in pediatric palliative care. Palliat Support Care 2013; 11 (01) 47-67
  • 16 Suurmond J, Lieveld A, van de Wetering M, Schouten-van Meeteren AYN. Towards culturally competent paediatric oncology care. A qualitative study from the perspective of care providers. Eur J Cancer Care (Engl) 2017; 26 (06) DOI: 10.1111/ecc.12680.
  • 17 Hendricks-Ferguson VL, Sawin KJ, Montgomery K. et al. Novice nurses' experiences with palliative and end-of-life communication. J Pediatr Oncol Nurs 2015; 32 (04) 240-252
  • 18 França JR, da Costa SF, Lopes MEL, da Nóbrega MM, de França IS. The importance of communication in pediatric oncology palliative care: focus on Humanistic Nursing Theory. Rev Lat Am Enfermagem 2013; 21 (03) 780-786
  • 19 Ling J. Respite support for children with a life-limiting condition and their parents: a literature review. Int J Palliat Nurs 2012; 18 (03) 129-134
  • 20 Smith CH, Graham CA, Herbert AR. Respite needs of families receiving palliative care. J Paediatr Child Health 2017; 53 (02) 173-179
  • 21 Ebadinejad Z, Fakhr-Movahedi A. Palliative care strategies of Iranian nurses for children dying from cancer: a qualitative study. East Mediterr Health J 2022; 27 (08) 577-583
  • 22 Schuelke T, Crawford C, Kentor R. et al. Current grief support in pediatric palliative care. Children (Basel) 2021; 8 (04) 278 DOI: 10.3390/children8040278.
  • 23 Akard TF, Hendricks-Ferguson VL, Gilmer MJ. Pediatric palliative care nursing. Ann Palliat Med 2019; 8 (1, Suppl 1): S39-S48
  • 24 Sousa ADRSE, Silva LFD, Paiva ED. Nursing interventions in palliative care in pediatric oncology: an integrative review. Rev Bras Enferm 2019; 72 (02) 531-540
  • 25 Pyke-Grimm KA, Fisher B, Haskamp A, Bell CJ, Newman AR. Providing palliative and hospice care to children, adolescents and young adults with cancer. Semin Oncol Nurs 2021; 37 (03) 151166 DOI: 10.1016/j.soncn.2021.151166.
  • 26 Abuhammad S, Almasri R. Impact of educational programs on nurses' knowledge and attitude toward pediatric palliative care. Palliat Support Care 2022; 20 (03) 397-406
  • 27 O'Shea ER, Campbell SH, Engler AJ, Beauregard R, Chamberlin EC, Currie LM. Effectiveness of a perinatal and pediatric End-of-Life Nursing Education Consortium (ELNEC) curricula integration. Nurse Educ Today 2015; 35 (06) 765-770
  • 28 Chong L, Abdullah A. Community palliative care nurses' challenges and coping strategies on delivering home-based pediatric palliative care. Am J Hosp Palliat Care 2017; 34 (02) 125-131