Yearb Med Inform 2017; 26(01): 235-240
DOI: 10.15265/IY-2017-034
Section 11: Public Health and Epidemiology Informatics
Surveys
Georg Thieme Verlag KG Stuttgart

Health Data for Public Health: Towards New Ways of Combining Data Sources to Support Research Efforts in Europe

A. Burgun1, E. Bernal-Delgado2, W. Kuchinke3, T. van Staa4, J. Cunningham4, E. Lettieri5, C. Mazzali5, D. Oksen6, F. Estupiñan2, A. Barone7, G. Chène8
  • 1Inserm, UMR 1138, Centre de Recherche des Cordeliers, AP-HP, Paris Descartes University, Paris, France
  • 2Institute for Health Sciences in Aragon (IACS), BridgeHealth Consortium, Zaragoza, Spain
  • 3University of Dusseldorf, Dusseldorf, Germany
  • 4Health eResearch Centre, Farr Institute, University of Manchester, Manchester, United Kingdom
  • 5Politecnico Milano, Milano, Italy
  • 6Public Health Institute, Inserm, AVIESAN, Paris, France
  • 7Lombardia Informatica, Milano, Italy
  • 8Inserm, UMR 1219, CIC1401-EC, Univ. Bordeaux, ISPED, CHU Bordeaux, Bordeaux, France
Further Information

Publication History

Publication Date:
11 September 2017 (online)

Summary

Objectives: To present the European landscape regarding the re-use of health administrative data for research. Methods: We present some collaborative projects and solutions that have been developed by Nordic countries, Italy, Spain, France, Germany, and the UK, to facilitate access to their health data for research purposes.

Results: Research in public health is transitioning from siloed systems to more accessible and re-usable data resources. Following the example of the Nordic countries, several European countries aim at facilitating the re-use of their health administrative databases for research purposes. However, the ecosystem is still a complex patchwork, with different rules, policies, and processes for data provision.

Conclusion: The challenges are such that with the abundance of health administrative data, only a European, overarching public health research infrastructure, is able to efficiently facilitate access to this data and accelerate research based on these highly valuable resources.