Abstract
Background: Continuum of care is an important concern for childhood cancer survivors. Studies
from high-income countries indicate a significant development in services to these
survivors. Similar information is unavailable from India. Methods: An online survey form was developed and sent to 86 centers. Data were collected over
a 6-month period in 2017. Results: Fifty nine centers responded (44.1% private sector, 33.9% public, and 22.0% charitable
trust). The services are mainly provided (91%) within routine oncology clinics. There
is no upper age limit (61%) or time period limit (63%) for follow-up at most of the
centers. The major barriers for follow-up are distance, lack of knowledge, lack of
adequate facilities, and patient priority for follow-up. Conclusion: This survey provides baseline information on current service provided to childhood
cancer survivors in India. There is a need to inform, educate, and sensitize the survivor
and their family as well as improving services.
Keywords
Childhood cancer - health-care services - India - survivorship
