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DOI: 10.1055/a-1689-7524
Präsentation von Palliativstationen und SAPV-Teams im Internet – eine korpusbasierte Metaanalyse von Webseiten[1]
Presenting Palliative Care Units and Specialized Outpatient Palliative Care Teams on the Internet – a Corpus-Based Meta-Analysis of Websites
Zusammenfassung
Hintergrund Internetseiten stellen eine wichtige Säule in der Darstellungs- und Informationspolitik palliativmedizinischer Angebote dar. Sie fungieren als Anlaufstelle für Patienten und Angehörige, aber auch für medizinisch interessierte Laien.
Methoden Es wurden 488 auf dem Wegweiser Palliativmedizin (Stand 31.7.2019) verlinkte Webseiten untersucht (242 Palliativstationen; 246 SAPV-Teams). Die Selbstdarstellung von palliativmedizinischen Versorgungsangeboten auf Webseiten wurde unter Einsatz von Keyword-Recherchen und manueller Suchanfragen analysiert.
Ergebnisse Palliativmedizinische Webseiten stellen das Konzept von Palliativversorgung im Allgemeinen dar, umreißen den Anwendungsbereich palliativen Handelns, nennen wichtige Erkrankungen und Symptome und heben die Besonderheiten des eigenen Angebots hervor. Die Webseiten der SAPV und der Palliativstationen unterscheiden sich im Hinblick auf ihre Selbstdarstellung und auf die Darstellung der eigenen Professionalität.
Diskussion Eine inhaltliche Verengung der Webseiten auf Krebserkrankungen und die Symptome Schmerz, Luftnot und Übelkeit/Erbrechen spiegelt nicht die aktuelle fachliche Diskussion über u. a. neurodegenerative Erkrankungsbilder und psychosoziale Symptome wider.
Schlussfolgerung Die Webseiten könnten dahingehend ergänzt werden, Patienten und Angehörigen das Wiedererkennen ihrer eigenen Situation zu ermöglichen und das Aufgabenfeld der Palliativversorgung umfassender abzubilden.
Abstract
Background Websites play an important role in providing information about palliative services; both for patients, relatives and interested laypersons.
Method We analysed 488 websites from Wegweiser Palliativmedizin (31.7.2019; 242 inpatient services; 246 were outpatient services). We use statistical keywords and manual queries to explore descriptions of the services and frequently named symptoms.
Results Both types websites contain general information on palliative medicine and more specific information on the sort of care units in question. Differences between in- and outpatient units relate to the way that professionality aspects are portrayed.
Discussion The websites describe a narrow spectrum of diseases (cancer) and symptoms (pain, shortness of breath, nausea), which hardly matches the current academic discourse including e. g. neuro-degenerative conditions and psycho-social symptoms.
Conclusion We propose that the sites could be extended with this information in order to enable patients and relatives to relate the services to their own situation and to more comprehensively depict the scope of palliative medicine.
Keywords
specialist palliative care - palliative medicine - information - general public - applied linguistics1 Die Studie wurde im Rahmen des vom Universitätsbund der Friedrich-Alexander-Universität Erlangen-Nürnberg geförderten Projekts PalaDin (Palliativmedizin als Diskurs – interdisziplinär) durchgeführt.
Publication History
Article published online:
06 December 2021
© 2021. Thieme. All rights reserved.
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Literatur
- 1 Leitlinienprogramm Onkologie (Deutsche Krebsgesellschaft DK, AWMF). Palliativmedizin für Patienten mit einer nicht-heilbaren Krebserkrankung. Langversion 2.1. In: AWMF-Registernummer: 128/001OL ed; 2020
- 2 Hider PN, Griffin G, Walker M. et al. The information-seeking behavior of clinical staff in a large health care organization. J Med Libr Assoc 2009; 97: 47-50 DOI: 10.3163/1536-5050.97.1.009.
- 3 Jones J, Schilling K, Pesut D. Barriers and benefits associated with nurses information seeking related to patient education needs on clinical nursing units. Open Nurs J 2011; 5: 24-30 DOI: 10.2174/1874434601105010024.
- 4 Tieman J, Bradley SL. Systematic review of the types of methods and approaches used to assess the effectiveness of healthcare information websites. Aust J Prim Health 2013; 19: 319-324 DOI: 10.1071/PY13030.
- 5 Tieman J. Ensuring Quality in Online Palliative Care Resources. Cancers (Basel) 2016; 8 DOI: 10.3390/cancers8120113.
- 6 Deutsche Gesellschaft für Palliativmedizin. Wegweiser der Deutschen Gesellschaft für Palliativmedizin. https://www.wegweiser-hospiz-palliativmedizin.de/ Letzter Aufruf: 28. 11. 2021
- 7 Scott D, Hudson P, Charnley K. et al. Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland. BMC Palliat Care 2019; 18: 74 DOI: 10.1186/s12904-019-0457-y.
- 8 Pereira J, Bruera E. The Internet as a Resource for Palliative Care and Hospice: A Review and Proposals. Journal of Pain and Symptom Management 1998; 16: 59-68 DOI: 10.1016/S0885-3924(98)00022-0.
- 9 Adolphs S, Brown B, Carter R. et al. Applying corpus linguistics in a health care context. Journal of Applied Linguistics and Professional Practice 2007; 1: 9-28
- 10 Baker P, Egbert J. Triangulating methodological approaches in corpus linguistic research. London: Routledge; 2018
- 11 McEnery T, Hardie A. Corpus linguistics: Method, theory and practice. Cambridge: Cambridge University Press; 2011
- 12 Schmid H. TreeTagger, A language independent part-of speech tagger. Proceedings of the ACL SIGDAT-Workshop Dublin, Ireland: 1995
- 13 Hardie A. CQPweb – combining power, flexibility and usability in a corpus analysis tool. International journal of corpus linguistics 2012; 17: 380-409
- 14 Evert S, Dykes N, Peters J. A quantitative evaluation of keyword measures for corpus-based discourse analysis. Corpora and Discourse conference Lancaster: 2018 https://stephanie-evert.de/PUB/EvertEtc2018_CAD_abstract.pdf
- 15 Kelley AS, Morrison RS. Palliative Care for the Seriously Ill. N Engl J Med 2015; 373: 747-755 DOI: 10.1056/NEJMra1404684.
- 16 Potter J, Hami F, Bryan T. et al. Symptoms in 400 patients referred to palliative care services: prevalence and patterns. Palliat Med 2003; 17: 310-314 DOI: 10.1191/0269216303pm760oa.
- 17 WHO. Global atlas of palliative care at the end of life. 2014
- 18 Radbruch L, Nauck F, Ostgathe C. et al. What are the problems in palliative care? Results from a representative survey. Support Care Cancer 2003; 11: 442-451 DOI: 10.1007/s00520-003-0472-6.
- 19 Stiel S, Matthies DM, Seuss D. et al. Symptoms and problem clusters in cancer and non-cancer patients in specialized palliative care-is there a difference?. J Pain Symptom Manage 2014; 48: 26-35 DOI: 10.1016/j.jpainsymman.2013.08.018.
- 20 Modonesi C, Scarpi E, Maltoni M. et al. Impact of palliative care unit admission on symptom control evaluated by the edmonton symptom assessment system. J Pain Symptom Manage 2005; 30: 367-373 DOI: 10.1016/j.jpainsymman.2005.04.007.
- 21 Hui D, dos Santos R, Chisholm GB. et al. Symptom Expression in the Last Seven Days of Life Among Cancer Patients Admitted to Acute Palliative Care Units. J Pain Symptom Manage 2015; 50: 488-494 DOI: 10.1016/j.jpainsymman.2014.09.003.
- 22 Solano JP, Gomes B, Higginson IJ. A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. J Pain Symptom Manage 2006; 31: 58-69 DOI: 10.1016/j.jpainsymman.2005.06.007.
- 23 Peters J, Heckel M, Habermann M. et al. Sprache in Bewegung – Schlüsselbegriffe der Palliativmedizin im Wandel der Zeit. Zeitschrift für Palliativmedizin 2019; 20: 125-131
- 24 Skelton JR, Wearn AM, Hobbs FD. "I" and "we": a concordancing analysis of how doctors and patients use first person pronouns in primary care consultations. Fam Pract 2002; 19: 484-488 DOI: 10.1093/fampra/19.5.484.
- 25 Addington-Hall JM, Higginson IJ. Palliative care for non-cancer patients. Oxford: Oxford University Press; 2006
- 26 Ostgathe C, Alt-Epping B, Golla H. et al. Non-cancer patients in specialized palliative care in Germany: what are the problems?. Palliat Med 2011; 25: 148-152 DOI: 10.1177/0269216310385370.
- 27 Bostwick D, Wolf S, Samsa G. et al. Comparing the Palliative Care Needs of Those With Cancer to Those With Common Non-Cancer Serious Illness. J Pain Symptom Manage 2017; 53: 1079-1084 e1071 DOI: 10.1016/j.jpainsymman.2017.02.014.
- 28 Dunning T, Martin P. Palliative and end of life care of people with diabetes: Issues, challenges and strategies. Diabetes Res Clin Pract 2018; 143: 454-463 DOI: 10.1016/j.diabres.2017.09.018.
- 29 Janssen DJ, Spruit MA, Uszko-Lencer NH. et al. Symptoms, comorbidities, and health care in advanced chronic obstructive pulmonary disease or chronic heart failure. J Palliat Med 2011; 14: 735-743 DOI: 10.1089/jpm.2010.0479.
- 30 Wysham NG, Cox CE, Wolf SP. et al. Symptom Burden of Chronic Lung Disease Compared with Lung Cancer at Time of Referral for Palliative Care Consultation. Ann Am Thorac Soc 2015; 12: 1294-1301 DOI: 10.1513/AnnalsATS.201503-180OC.
- 31 Kane PM, Vinen K, Murtagh FE. Palliative care for advanced renal disease: a summary of the evidence and future direction. Palliat Med 2013; 27: 817-821 DOI: 10.1177/0269216313491796.
- 32 Jaul E, Barron J, Rosenzweig JP. et al. An overview of co-morbidities and the development of pressure ulcers among older adults. BMC Geriatr 2018; 18: 305 DOI: 10.1186/s12877-018-0997-7.
- 33 Lethbridge L, Johnston GM, Turnbull G. Co-morbidities of persons dying of Parkinson’s disease. Prog Palliat Care 2013; 21: 140-145 DOI: 10.1179/1743291X12Y.0000000037.