Abstract
The international classification of functioning (ICF) has provided a basic framework
for the measurement of outcomes in any health condition. This includes the assessment
of the level of activity, participation, and the quality of life of an individual
with hemophilia. The measure of activity is an assessment of the individual's ability
to perform daily tasks while participation assesses the social role of the individual.
The health-related quality of life is an assessment of the perception of the individual's
physical, mental, and social well-being. These functional outcomes are important to
understand the impact of the broad spectrum of interventions in the management of
hemophilia. The generic instruments used to measure these may be less sensitive than
the disease-specific measures but are useful for the comparison between cohorts with
different health conditions. Cross-cultural validity is essential for tools where
the question can vary in the context of different cultures.
Keywords
outcome assessment - activity - participation - quality of life
