Keywords
patient portals - hospitalization - medical informatics - engagement - empowerment
Background and Significance
Background and Significance
The patient experience during hospitalization is often stressful as each patient faces
the uncertainty of changes in their health. The hospital setting, however, can serve
as a trigger for patient engagement, whereby patients are integrated as active participants
in their ongoing health care.[1]
[2]
[3] As such, aspects of patient experience in the hospital setting have been shown to
positively influence health outcomes; patients reporting positive patient–provider
communication[4] or optimal shared decision making[5] achieve better health outcomes including self-reported physical and mental health,
adherence to quality of care measures (e.g., statin and aspirin use), and decreased
emergency room visits, as compared with those reporting poor patient experience. Identifying
the factors that influence the patient experience is important for implementing strategies
that support patient engagement and ultimately achieve better health outcomes.
With the goal of improving patient engagement, the movement toward patient-centered
care seeks to address factors such as care coordination, communication, and involvement
of family and friends that influence the patient experience.[6] Hospitals that have achieved high performance in patient-centered care have identified
strategies that have improved patient experience, such as a culture of commitment
to serving patients and their families; an effort to enhance patient–provider interactions
through responsiveness, proactive communication, and caring behaviors; and an effort
to educate care providers on the importance of patient experiences.[7] In this context, patient portals have emerged as a technology that helps hospitals
provide patient-centered care by increasing accessibility to health information and
supporting patient–provider communication.[8]
[9]
Recent studies provide evidence that patients are eager to adopt patient portals to
access their personal health information (PHI) as well as maintain relationships with
their providers.[10] As a reflection of this interest, the use of patient portals to manage PHI and communicate
with care providers has continually increased over time.[11]
[12] While predominantly implemented in the outpatient setting, patient portals have
nonetheless been shown to improve patient engagement with their health care and providers.[8]
Patient portals tailored for the inpatient experience are gaining interest as a means
to improve patient-centered care during hospitalization. Studies have noted that patients
find access to their PHI helpful during hospitalization, and desire additional information
regarding their health care in a format that can help them remember details that may
otherwise only be provided verbally from a care provider.[13]
[14] Inpatient portals, like outpatient portals, provide access to medical information
and a patient–provider communication platform. Currently, studies of inpatient portals
lag behind those of outpatient portals, and there is a recognized need for research
that examines the impact of inpatient portals on patient-centered care and health
outcomes.[15]
Objective
We conducted this study to improve our understanding about the role of a portal in
the context of inpatient care. We were interested in learning about the use of inpatient
portal features and the implications of portal use from the perspectives of both patients
who had used the portal while in the hospital and care team members involved in the
care of hospitalized patients.
Methods
Study Design
We conducted an extensive qualitative study, including interviews with both patients
and care team members, as part of a system-wide implementation of an inpatient portal
at a large Midwestern academic medical center (AMC) consisting of six hospitals and
53 outpatient units. This AMC utilizes the Epic Systems Corporation (Verona, Wisconsin,
United States) electronic health record (EHR) which includes the outpatient portal,
MyChart, and the inpatient portal, MyChart Bedside. Upon admission, nurses conduct
an assessment to determine if the patient should be offered an Android tablet equipped
with the MyChart Bedside application, based on the following criteria: over age 18,
English speaking, nonprisoner, and physically and cognitively capable of managing
the technology. Both tablet use and study participation are voluntary. After the patient
agrees that they would like access to the tablet during their hospital stay, the care
team provisions the tablet, syncs it with the patient's EHR, and instructs the patient
to create an account and personal identification number. The tablet is connected to
the Internet so that patients can also use it for other purposes such as accessing
social media, email, and entertainment.
The MyChart Bedside application consists of eight features listed in [Table 1]. Each hospital unit determines their own workflow for provisioning the tablet to
patients and documenting patient acceptance of the tablet. The majority of units require
a nurse to assess eligibility and interest in tablet use, but the actual provisioning
of the tablet to the patient is often the task of the unit's patient care assistant
(i.e., a nursing assistant). All care team members were trained in the provisioning
process and overall purpose of MyChart Bedside through a variety of means including
in-service training, online modules, and peer-to-peer demonstrations; further, “super
users” who received additional training were available on most units.
Table 1
Features of MyChart Bedside inpatient portal
|
Portal function
|
MyChart Bedside portal feature
|
Example quotation describing patient use
|
|
Scheduling
|
Happening soon
|
“They can look on there and see what time their medications are due. They can look
to see when their upcoming tests are.”
|
|
Health information
|
My health
|
“I've seen a lot love looking up their medications, what's my, what are my next medications
due, and their vitals.”
|
|
Health education
|
To learn
|
“I had a guy who finished all his education modules and I'm like would you like more?
He goes, ‘No it's okay’. But he completed every single one that was on there.”
|
|
Secure messaging
|
Messages
|
“Somebody like wanted to see a social worker, they just had like a discharge question
about their facility…somebody else like had, they wanted their nurse to explain something
about medication.”
|
|
View care team
|
Taking care of me
|
“They get their care team, like us. We show on there our pictures and little bit of
history you know.”
|
|
Order meals
|
Dining on demand
|
“I see them order food a lot on it, which is nice.”
|
|
Request a service or item
|
I would like
|
“We had a patient order flowers for their wife and he…had delivered here for when
she came to visit and that kind of thing we have had a couple of those where if we
hadn't of started this we wouldn't have known that was necessarily an option.”
|
|
Make notes
|
Note to self
|
“I actually had a deaf patient that was unable to speak and it was much easier for
him to type out his messages.”
|
All interviews were conducted between January 2017 and May 2018. The Ohio State University's
Institutional Review Board approved this study.
Data Collection
Patient Interviews: We conducted two phases of telephone interviews with patients randomly selected
from all discharged patients who had consented to our study. Phase 1 interviews (n = 60) took place 15 days after discharge and phase 2 interviews (n = 60) took place 6 months after discharge. We investigated these two time periods
to capture information that went beyond initial impressions of portal use by the patient,
providing immediate impressions from the first phase of interviews, and more lasting
impressions 6 months postdischarge. The demographic characteristics of these interviewed
patients are presented in [Table 2], by phase.
Table 2
Interviewees, by interview phase
|
Patient interviewees
|
Care team member interviewees
|
|
Phase 1
(15 days postdischarge)
|
Phase 2
(6 months postdischarge)
|
|
Phase 1 (within 4 weeks of implementation)
|
Phase 2
(6 months postimplementation)
|
Phase 3
(12 months postimplementation)
|
|
Mean age, years (SD)
|
49.4 (14.3)
|
49.4 (13.7)
|
Nurses
|
74
|
80
|
73
|
|
Percent male
|
30
|
25
|
Patient care assistants and unit clinic assistants
|
31
|
32
|
41
|
|
Total participants
|
60
|
60
|
Total participants
|
105
|
112
|
114
|
Abbreviation: SD, standard deviation.
We used a semistructured interview guide that asked questions about patients' experiences
with the inpatient portal and benefits they perceived from using this new technology.
Please see the [Supplementary Material] (available in the online version) for a copy of the patient interview guides. Interviews
lasted approximately 15 minutes each and were audio-recorded and then transcribed
verbatim. Interview transcripts were deidentified so that interviewee information
was not included.
Care Team Member Interviews: With care team members, we conducted three phases of in-person interviews with nurses,
patient care assistants, and unit clinic assistants (i.e., unit administrative assistants)
across the 53 hospital units. Phase 1 interviews (n = 105) took place within 4 weeks of implementation of the MyChart Bedside application;
phase 2 interviews (n = 112) were conducted 6 months postimplementation; and phase 3 (n = 114) interviews were conducted 12 months postimplementation. We conducted multiple
phases of interviews with staff because we were interested in following their perceptions
about inpatient portal use over time as they gained greater exposure to the inpatient
portal and observed patients' use of the portal tool. Across phases, we completed
331 care team member interviews, as shown in [Table 2].
We used a different semistructured interview guide to conduct care team member interviews
and asked questions about both care team members' experiences and perceptions of patients'
experiences with the inpatient portal (i.e., based on their observations and recollections).
Please see the [Supplementary Material] (available in the online version) for a copy of the care team member interview guides.
Interviewees were invited to participate in these brief interviews by research team
members who visited each unit across the six hospitals. Any care team member who was
available during the hour-long timeframe when the research team was on their unit
was able to participate in an interview if they were interested. Care team member
interviews lasted from 5 to 20 minutes each with an average duration of 10 minutes.
These interviews were audio-recorded, transcribed verbatim, and deidentified.
Data Analysis
Consistent with rigorous qualitative methods,[16] transcribed interviews were both inductively and deductively analyzed. Our first
step was to develop a preliminary coding dictionary based on questions asked in the
interviews.[17] The subsequent step involved four members of the research team coding four transcripts
to refine the coding dictionary and explore the emergence of new codes in the data.
The refined dictionary was used by two members of the research team to code all remaining
transcripts. Frequent meetings were held throughout the coding process to ensure reliability
of coding and agreement about the creation and definitions of new codes as they emerged,
consistent with a grounded theory approach.[18] Saturation of the themes was achieved, as reflected by the consistency of comments
from patients and care team members around the key concepts that emerged. This comprehensive
and iterative approach to our analysis thus ensures the trustworthiness of our methods
with respect to credibility, transferability, dependability, and confirmability of
our findings.[19] We used ATLAS.ti (version 6.0) qualitative data analysis software to support our
coding and analysis process.
Considering patients' and care team members' experiences with the inpatient portal,
we were interested in perspectives about both use of the portal features and the implications
of portal use, as we describe below.
Results
Use of Portal Features
Patients and care team members reported patients' use of all portal features; representative
quotations describing the use of these features are presented in [Table 1]. Across interviews, however, use of three main features was most commonly reportedly:
(1) ordering meals; (2) looking up health information; and (3) viewing the care team.
The feature of secure messaging was also available, but used less frequently. Below
we describe patients' and care team members' perspectives about the use of these four
features in greater detail, with additional example quotations from each informant
group presented in [Table 3].
Table 3
Patients' and care team members' perspectives about inpatient portal feature use
|
Use of portal features
|
Patients' perspectives
|
Care team members' perspectives
|
|
Dining on demand
|
“I find it very convenient to make meal choices using that…my favorite feature was
being able to get on there and order my meals and…and, you know, not have to worry
about fiddling around with paper menus and all of that mess.”
“To be honest I really liked being able to look at all the menu stuff.”
|
“As far as like being able to order their meals and stuff, that seems to be the biggest
thing that they…that I've noticed that patients tend to like. The fact that they can
see that their meal plan, they can order on the tablets. It…I think it's been pretty
positive as far as things go.”
“They're definitely getting the ‘Dining on demand’ if they're able to have a tablet
they're able to do that which is really good. The PCAs [patient care assistants] don't
have to go in there and do it for them.”
|
|
Looking up health information
|
“I liked the…the MyChart Bedside was better because I could just log into it and look
and see the results versus having to wait for the doctor or the nurse to come in and
tell me the results.”
“I liked the schedule that was on there of what the various times of when I was going
to receive my medicine and everything. That way I knew what was coming. I just liked
the organization of it.”
|
“The patients can look at their last, their vital signs so if they have questions–‘Hey
what's my temperature? My blood pressure? My pulse?’–they can look at it on the tablet.
They can look at when their meds are due. So, if you have a patient that's always
like, ‘I need my meds at this time’, they can look on there and see what time their
medications are due. They can look to see when their upcoming tests are.”
“Why you're here, all your meds, what's coming up later today, stuff like that. So,
I've seen them look at it…”
|
|
Viewing the care team
|
“Well the care team, I would go down and the doctors, I would look at the doctors
on duty today you know and the nurses on duty…I figured that out you know which was
wonderful. That gives you a name and a face that way you don't know…you know a stranger
coming into your room. You know some people are uncomfortable with a stranger coming
into the room which you know, I understand that. You know, you don't know with people
nowadays you don't know what is going to happen.”
“I remembered who was my care team that day, but at least I could go back and see
who was on my care team, well like if I forgot someone's name, like a PCA's [patient
care assistant’s] name, I could look on there and see exactly who is caring for me
for that day…Especially the doctors, because there may be a couple different doctors
coming in at different days.”
|
“I think they like seeing the pictures of people because they'll remember, ‘Oh yeah
that nurse got me a pop, towel, a blanket,’ you know that type of stuff. So sometimes
it is nice when they do have that feature they can go back and see who their team
was.”
“They can see who their doctors are and their nurses. That is sometimes super confusing
to patients because they have so many people in and out of their room so knowing,
being able to see if they…this is my medicine doctor, this is my orthopedic doctor,
that is super helpful to them.”
|
|
Secure messaging
|
“If you didn't understand something from the doctor you could message him and ask
him.”
“My phone wouldn't work when I was in the hospital for some reason so using the my…using
the tablet was really good. I got to look at my charts and see my bloodwork and see
how things were going, and I also it let me venture out to check my emails. I messaged
my doctors to see what the…cause like when you look at your bloodwork it's got this
scale and it's got numbers and I didn't know what they were. So I, it let me hit a
button and ask them questions: ‘What does this mean?’ and ‘Am I okay? Am I going to
live?’”
|
“We always tell them if it's something you need right now use your call light and
if it's just kind of something you have a question about a med, not right now, just
kind of want to put it on the radar just use that and so that way we don't forget
instead of writing it up on their board or something and so that way it keeps flagging.”
“I'm in the room all the time. If they have a question they can ask me. I don't have
time to sit and answer text messages from patients. It's faster for me to go into
the room and say, ‘This is what's going on, I’m going to update you. Do you have any
questions? If you do write them down.'”
|
Ordering Meals
By far, interviewees noted that the most common feature patients used was the “Dining
on demand” function that allowed patients to order their meals. As one patient explained,
“I liked ordering from the menu and seeing the different options that way.” Care team
members similarly noted that patients appeared to appreciate this feature. One remarked
how, “The most thing they like to do is the ‘Dining on demand.’ Because they can see
pictures and understand.”
Looking Up Health Information
A majority of patients also reported that they had used the portal to look up information
while they had been in the hospital and noted that they liked being able to see their
vital signs on a regular basis. As one patient told us, “I was able to see my vitals,
because sometimes the nurses are kind of in a hurry so they would just hurry up take
my vitals and say thank you, even if it was in the middle of the night and I was sleeping
or something. So, I could check the next morning and see what my vitals were the night
before.” Another patient noted how having access to that information at any time was
helpful so that one could go back and review the information on their own time: “Definitely
because when you're medicated and you're in pain, you don't always remember everything
when they're telling you, test results or, you know, what you can do. So, it's helpful
to have it to be able to go back and refresh, you know, what you've maybe not heard
clearly.” Care team members echoed this sentiment. As one reflected, “So, I think
that's like good for them to have it right there in front of them, so that they can
look at them and know what medications they're taking and stuff like that. So, they
can compare like what they're taking at home, what's new, what's old.”
Viewing Their Care Team
A third feature commonly noted as useful was the ability for patients to view the
care team while they were in the hospital. Patients reported that they liked being
able to see their providers' names and faces, and this helped them to remember who
was on their care team. One patient stated, “Well if I wasn't sure of somebody's name
or something, it was kind of cool because it had everyone's pictures there so I was
able to remember names a lot easier...” Several patients particularly appreciated
the ability to see care team members because it helped them recognize their own physicians.
As one patient noted, “That was kind of a neat little feature of MyChart that I ran
into, the care team there, with names. Sometimes the doctor comes by and introduces
himself and the name goes right out of my head because I'm paying attention to other
things. So, I could go back and I get that name. And the pictures with it.” A care
team member similarly explained how a patient appreciated this feature: “And she was
92 and she's showing me, ‘Look here's the care team. What's your name? Let me find
you on here.’ ”
Sending Secure Messages
While the majority of patients interviewed did not indicate they had used the secure
messaging function, those patients who did noted that they appreciated the speed with
which they could have their problems addressed and/or their questions answered. One
patient stated, “Being able to message my providers when there's a problem or I have
a question without having to call in or waiting on a returned call, you know, being
able to basically get an answer right away from them.” Care team members reported
little use of secure messaging and explained this was likely due to how the tablets
were provisioned to the patients. As one explained, “I tell the patients that if you
do send a message, it should be routine in nature…and then two being you shouldn't
be time sensitive. Usually if they put a message in there they might not get a response
up to like 24 hours. So routine stuff that is not time sensitive. But certainly, they
can ask any question they like.” Staff also acknowledged the potential problem of
lack of knowledge about the secure messaging feature. As a nurse reflected, “I think
it's frustrating because family members are messaging their doctor and it's like,
‘I messaged this doctor two days ago and nobody got back to me.’ The doctors don't
really use that; it's just out there.”
Benefits of Access to Information via the Inpatient Portal
Patients' and care team members' comments describing patients' use of MyChart Bedside
during their hospitalization indicated that having information available via the portal
during their stay was beneficial in four main ways: (1) promoted independence; (2)
reduced anxiety; (3) informed families; and (4) increased empowerment. Below, we describe
each of these subthemes, and in [Table 4], we provide additional supporting quotes from our interviewed patients and care
team members.
Table 4
Benefits of access to information via the inpatient portal
|
Reported benefits
|
Comments from patients
|
Comments from care team members
|
|
Promotes independence
|
“I used it to plan my meals, stuff like that and it's just very helpful. I liked it.
Being informed. Having that there to basically have–know what's going on without actually
talking to the doctor or anything. It helps a lot.”
“Sometimes I had questions and they [care team members] weren't available. I could
always turn to that [MyChart Bedside] and see, you know, and answer my own questions.”
|
“I think is helpful you know and again people who know what their lab work means being
able to look at that and see what their lab work is I think it helps them be more
autonomous.”
“I think it makes them feel better because they know what to expect and they know
that they can look it up whenever they want instead of having to…because we have some
patients who really don't like to be a burden and they'll tell you that so being able
to access that information on their own really helps them be more at ease I think.”
|
|
Reduces anxiety
|
“So, I think that sometimes you're in the hospital and you're kind of like ‘What did
he say? What did she say?’ But with MyChart you can look it up and then you can even
you know more descriptions of the illness or you know whatever they're looking for
you at the time. It just gets understood better and you don't have to wonder.”
“I liked it so well because my health was quickly changing and I really didn't understand
all of why it was changing so quickly. And it helped me to understand those changes.”
|
“So, I think for in her sense, it helped her. She's already had that anxiety there,
just being sick, for being young, I think it kind of just eased her mind that she
could see it right in front of her.”
“They seem to have more, you know, say in the matter and kind of just probably more
comfort knowing what's coming next.”
|
|
Informs families
|
“…if the doctors already noted things and you can look it up when family members ask
when they come visit.”
“So, I had a better idea of when things were coming so even with family members, I
can kind of give them a heads up on things too. So, that really helped and I liked
that aspect of it.”
|
“I've seen family members like look at their family members' charts you know like
in the room and ask me questions and then I'll use [the portal] to look at this. They're
asking me a question about this so they're looking up, I mean it's crazy, they're
looking at their tablet asking me about a mediation or result or and then you know
I'm getting on [the electronic health record] and we're talking about it. And I mean,
I feel like it gives the family members a little bit more control, a feeling of like
okay get some answers and they can participate more in their family member's care.”
“…the nurses can direct them there, they can be like, ‘Well you have your tablet let's
pull it up so that we can show your family member,’ or whatever…and like I said, it
also opens that line of communication with that patient's family for them to ask questions
in the future.”
|
|
Empowers patients
|
“Well it keeps you more in tune to your health. I mean it tells you, you got meds
coming. It tells you why you're taking the meds. There's advice that's good for everybody.
‘Cause doctors fail to realize that we don’t understand all that medical terminology.
Once they leave I click on that little thing and it tells you what it's for and it
gives you…like I was in there for osteomyelitis, okay, I click that, I already knew
what it was but I clicked it and, yep, it tells you what it is and what the symptoms
of it are and what they can do to fix it.”
“Oh, it was really nice cause, you know, you could look up, you know, nutritional
facts, stuff like that, you know…it gave me just kind of a another thing to look through
to kind of improve things on while I was there, so, you know, that was really nice.
Before I really wasn't probably doing a good job of taking care of myself.”
|
“I just think they feel more empowered, like they are more a part of their care, their
plan of care.”
“I think it makes them feel like they have more control of their care. Everybody likes
being in the driver seat and not the passenger.”
|
Promotes Independence
Both patients and care team members noted that access to MyChart Bedside while in
the hospital was beneficial because it enabled patients to do things more independently.
Prior to the availability of portals, patients would have to ask a care team member
for test results, for their schedule for the day, or to order meals for them. Offering
a portal in the inpatient environment allows the patient to do these actions on their
own. For example, one patient explained, “I liked being able to see what my bloodwork
was without having to wait on the doctors, see my test results.” Another patient reflected,
“You know, I'm the kind of person that's always thinking about the next meal, and
so for me to be able to, to put that order in myself, to look and order what I want…and
not have to wait for somebody to come around and take it…” Care team members also
noted this increased independence for patients. As one summarized, “Honestly, I think
MyChart Bedside does give a lot of independence for patients, and it gives them something
to be a part of their medical care.”
Reduces Anxiety
Patients' use of the inpatient portal during their stay also appeared to have the
potential to reduce anxiety for some patients. As one patient explained, “I think
that it caused less anxiety because I was able to look at what was going on while
I was in the hospital, the tests and the labs and everything they had done, and educate
myself on things.” Care team members similarly noted this impact. One reflected: “Patients
who are anxious about their care a little bit really like to be like, ‘Okay, I can
see what my vitals were from this morning.’ And they can always look up their meds,
and they like to know exactly when a med is due.”
Informs Families
Another benefit of inpatient portal use was noted around how access to information
in the portal helped keep families informed. As one patient explained, “When my family
came in, instead of waiting for a doctor to come in to ask questions, I pretty much
had, you know, I had all my medicines there on the tablet. I could just show my parents
or whatever, you know, everything that I was taking at the time and pretty much stuff
like that.” Similarly, care team members reflected how, “It's usually like family
members that will come in and maybe the doctors already reviewed things or whatever
and then they come in, and then that's a tool for them to go back in and look at results
and ask questions and stuff.”
Increases Patient Empowerment
A fourth important benefit of access to information via the patient portal was a noted
increase in patients' sense of control and empowerment during their stay. As one patient
reflected on the experience of care with the portal, “You could see your lab results
and medications and everything. I liked it. I mean it was easy to use and you, if
you didn't understand something from the doctor you could message him and ask him.
Knowing your medicine, picking out the meals, and knowing how many doctors were studying
your problems.” One care team member commented how, “I think they feel more informed,
like they have more control over what's going on with their care. They can question
things. ‘Hey, I didn’t say that this was okay. I saw that this changed. Why did it
change?' ” Another care team member summarized, “I think it gives them a sense of
control that they need when they have none.”
Discussion
Our study involved an institution-wide deployment of an inpatient portal system at
a large AMC exploring the use of the inpatient portal and implications of its use
from both patients' and providers' perspectives. The results of our study suggest
patients' preferences for using the portal to order meals, look up health information,
and view their care team members. Both patients and care team members were positive
about the usefulness of these features. Their views on secure messaging, however,
were equivocal. Although patients viewed this feature as a means to communicate with
their health care providers, care team members generally did not perceive the feature
as an effective method to communicate with patients, and there was concern about message
response time from doctors given the presence of multiple communication options in
the inpatient setting. Our findings support results from prior studies that demonstrated
the ability of inpatient portals to generally help improve patients' engagement and
experiences.[14]
[20]
[21] Moreover, the results of our study extend the literature due to our focus on a large
sample of adult inpatients, as well as our inclusion of the perspectives of care team
members about their patients.
Within the context of designing a more personalized health care system, Umar and Mundy
proposed a holistic model for understanding how patients can experience a sense of
ownership with their health and build stronger relationships with their providers.
Their model envisioned technology as a unifier, helping to improve patients': (1)
access to the right health information; (2) ability to develop knowledge around this
information to make informed decisions; (3) means to foster meaningful partnerships
with providers in regard to their health care; and (4) participation in activities
that enhance their self-efficacy (i.e., accountability, responsibility, and goal management).[22] We found that the views of the inpatient portal users in our study aligned with
Umar and Mundy's model. Patients noted that they appreciated the ability to do things
more independently, felt reduced anxiety, liked having their family members informed,
and felt more empowered with their health care. Care team members' comments confirmed
that they had similarly observed these benefits of portal use by patients and their
families.
Given the immense environmental and personal stressors faced by patients in isolated
hospital settings, providing them with near real-time access to their health information
through a portal appeared to allay many of their concerns and gave them the feeling
that they had more control over their health and illness, similar to findings from
other studies.[14]
[23] Patients in our study appreciated being able to know what was going on with their
care as well as the ability to plan during their hospital stay. Similarly, care team
members recognized that their patients felt more empowered and knew what to expect
with their care, suggesting alignment with Umar and Mundy's model where access to
technology fosters a patient's sense of self-efficacy. It has also been shown in other
studies that having patients able to manage and be in control of their care with the
help of portal information may be associated with increased patient safety.[24]
[25]
During hospital stays, poor access to personal information, communication barriers,
and uncertainty are factors that make patients prone to anxiety.[26]
[27]
[28]
[29]
[30] By providing patients access to their health information, inpatient portals may
help alleviate some of this anxiety by helping patients and their families better
understand both the care they are receiving as well as the experience of hospitalization.[31] Patients in our study recognized the ability to better educate themselves about
their condition and changes to their condition, while not having to wonder about the
unknown quite as much. Several care team members empathized with their patients and
also noted that the portal seemed to help ease patients' minds by making this information
about their condition available on their tablets.
It is possible that, conversely, information sharing through portals could overwhelm
patients and create more anxiety.[14]
[32]
[33] Further, the levels at which these factors play a role in the effective use of tablets
might be influenced by patient characteristics such as educational attainment and
health literacy,[6]
[34] and the design of the portal application itself.[35] While our interviews did not identify such challenges, it is important to conduct
more research to identify factors in the inpatient setting that facilitate or inhibit
portal use among patients as well as to evaluate the impact of information sharing
in this context. In addition, we also acknowledge the possibility of care team members
being negatively influenced by patients' use of the portals as portals provide another
source of information and means of communication during a patient's inpatient stay.
For example, Hefner et al. found that inpatient portal use and associated workflows
could be very confusing to care team members, highlighting the need for more training
on portal use and integration into patient care processes.[36] Additional study of care team members' perceptions and experiences can help improve
our understanding of these potential challenges with inpatient portal use.
As our findings show, inpatient portals can help not only patients but also their
families and caregivers be more engaged in the patient's care. With the patient's
consent, family members or caregivers can view laboratory and test results and plans
of care, allowing the patient and family to share the same information and, together,
to be more engaged. Patients in our study discussed sharing results on the portal
with their family members and reported that this helped everyone to be better informed.
Notably, access to a portal allows families to communicate with the care team asynchronously,
a benefit previously noted to decrease stress of parents of hospitalized children.[37] Moreover, while they are visiting, family members and caregivers can use the secure
messaging feature to send questions to the care team and receive answers upon their
next visit, which may then result in less pressure to be present to catch the care
team when they are in the patient's room. More engaged, better-informed caregivers
may also facilitate better care postdischarge. Such partnerships between patients,
caregivers, and their providers demonstrate a means through which a patient could
be more involved in their health care, with patients subsequently taking more ownership
of their health and building long-term relationships with care providers, imperatives
highlighted in the Umar and Mundy model.[22]
Our results interestingly demonstrated a generally unified view of inpatient portals
by patients and care team members. Care team members desired an experience for their
patients that converged with what patients wanted. This could signify a cultural shift
toward the use of patient portals as a potential tool to provide patient-centered
care and engage patients. Prior research has highlighted the misalignment between
stakeholders as being a critical barrier for the cultural incorporation of inpatient
portals, thus a shift in culture could facilitate the adoption, implementation, and
use of portals to better empower and engage patients and their families in the care
process.[31]
[38]
This study may be limited in some notable aspects. First, we examined patient and
provider perceptions related to portal use in a single health care system. This portal
is based on a platform designed by a commercial vendor and features provided across
different portal systems may be common. However, some portal features and policies
around portal implementation and use might vary across institutions and contribute
to variations in user experience. Second, our results may be biased toward inpatient
portal use, given that all patient participants had used the inpatient portal. These
patients could be more engaged in their care, and their views may vary from those
who are less engaged; nonetheless, their views present perspectives that can help
inform research and practice. Third, while physicians are clearly vital members of
care teams, physicians in this organization were not directly involved with portal
provisioning and had limited direct interactions with patients that enabled them to
learn about patients' experiences with the portal at the time of this study. We do
recognize that physicians are also impacted by patient portals and look forward to
including their perspectives in future work. Finally, responses were gathered at different
points in time and participants' views may be impacted by the time that had elapsed
since portal implementation (i.e., recall bias). However, our results indicated a
uniformity in views across time that signifies a stability in the findings that, in
turn, could be viewed as a strength of our study.
Conclusion
Inpatient portals are being recognized as an emerging technology that hospitals can
use to enhance the delivery of patient-centered care. Our study examined portal use
in this context and found important commonalities between patients' and care team
members' perspectives. Specifically, many features of the portal were reportedly useful,
and both patients and care team members noted that having access to health information
through the portal helped patients feel independent, empowered, in control of their
health, and less anxious. The shared perspectives of patients and care team members
about the benefits of inpatient portal use suggest the importance of this technology
in improving patients' experiences while in the hospital, as well as in enhancing
the patient centeredness of care.
Clinical Relevance Statement
Clinical Relevance Statement
Our findings provide early evidence supporting the potential for inpatient portals
to improve the patient centeredness of care delivery. Hospital administrators should
consider the specific utility of the portal features described in our study to ensure
inpatient portals support their organizational and unit needs. Additionally, our study
results suggest inpatient portals can help engage key stakeholders such as patients'
families and care team members, in addition to the patients they support. Improved
understanding of the potential influence and impact of inpatient portals can help
hospital administrators and providers in efforts to enhance the health care experience
for patients, their families, and their care team members.
Multiple Choice Questions
Multiple Choice Questions
-
What inpatient portal feature was used the least frequently?
-
Dining on demand.
-
View care team.
-
Secure messaging.
-
Health information.
Correct Answer: The correct answer is option c, secure messaging. Based on our study, a majority
of the patients interviewed did not indicate they had used this feature. Care team
members generally did not perceive the feature as an effective method to communicate
with patients, and there was concern about message response time from doctors given
the presence of multiple communication options in the inpatient setting.
-
What were the main ways in which the study patients found the information available
via the inpatient portal to be beneficial?
Correct Answer: The correct answer is option e, all of the above. Our study found that patients who
used the inpatient portal noted they appreciated the ability to do things more independently,
felt reduced anxiety, liked having their family members informed, and felt more empowered
about their health care. Care team members' comments confirmed that they had similarly
observed these benefits of portal use by patients and their families.
