Keywords
problem-oriented model - patient safety - human factors engineering - pediatric trauma
- care coordination
Background and Significance
Background and Significance
Context of Pediatric Trauma
Pediatric trauma is the leading cause of death among children aged 1 to 18 years.[1] The emergent and complex pediatric trauma care process can be hazardous to children.[2] In particular, communication and coordination among care team members can be affected
by incomplete information, uncertainty, and time pressure.[3] Traumatically injured children generally experience many transitions of care and
are treated by multiple clinicians including physicians from different services.[4]
[5] We previously identified 53 roles involved in the pediatric trauma care process
at a children's hospital.[5]
[6] These roles include different groups of physicians that may not be involved in every
transition but still require a clear assessment of the patient's hospital course,
including a list of the patient's injuries, treatments, current status, and relevant
past medical history. One consequence of suboptimal information flow, for example,
known injuries and suspected problems, are missed injuries, which, according to one
study, occur in 16% of pediatric trauma patients.[7]
Emergence of the Electronic Problem List
A possible solution for documenting and communicating information about the patient
and his/her injuries is use of the electronic problem list (PL), a standard part of
the electronic health record (EHR). In 1968, Dr. Larry Weed introduced the concept
of the PL, which has become the focus of the problem-oriented medical record in a
computerized system. Weed[8] advocated that physicians take a systematic approach to the medical record by organizing
data around each problem to avoid missing details and improving continuity of care.
The increased use of the EHR offers an opportunity for physician notes to be organized
around problems on the PL and associated patient data (e.g., imaging and medications).[9] For example, the problem-oriented model allows EHR users to click on the PL and
view a dynamic display of relevant labs, imaging, procedure data, and consultant notes.[10] Another approach is problem-based documentation, where clinicians document assessments
and plans for each problem on the PL.[11]
[12] The increasing use of the EHR may help to implement Weed's vision and better support
physician work so that recorded problems are connected to the relevant patient information
in other parts of the EHR.[10]
[13]
Research on the Electronic Problem List: Outpatient Settings
Most studies on the electronic PL are performed in outpatient care settings.[14]
[15]
[16]
[17]
[18]
[19]
[20]
[21] Makam et al[18] reported that 70% of primary care providers (PCPs) who responded to a survey on
the use of and satisfaction with the EHR thought that the PL was helpful. Research
in the outpatient setting has also examined physician use of the PL. Analysis of a
random selection of 100,000 medical records demonstrated that PCPs were more likely
to add problems to the PL than specialists.[22] Accuracy and completeness of the PL remain major issues.[15]
[17] For example, PL completeness for diabetes patients was measured in a retrospective
analysis of EHR data from 10 healthcare facilities (e.g., academic medical center,
community hospital, and regional health system). Results showed that PL completeness
ranged from 60 to 99%, as measured by the ratio of outpatients having diabetes coded
on their PL to the number of patients with HbA1c levels greater than 7%.[21] A survey with mostly PCPs incorporated clinical scenarios to understand their actions
toward the PL,[23] showing differing opinions about PL content, particularly which problems to include
(e.g., family history and surgeries), and whether the PL should be structured with
discrete or free-text fields. To address issues of PL accuracy and completeness, informatics
methods such as natural language processing have been used to populate the electronic
PL.[16]
[19]
[24]
[25]
[26]
[27] Electronic alerts in 28 primary care clinics used medication and laboratory-problem
associations to identify undocumented problems for 17 conditions;[27] subsequent alerts for physicians to add these problems increased documentation during
a 6-month period from 3,739 problems to 10,016 problems. PL accuracy and completeness
can also be improved by better understanding how physicians perceive and would like
to use the PL.
Extending Research on the Electronic Problem List from Outpatient to Inpatient Settings
Differences between outpatient and inpatient settings may shed light on variations
in physician PL usage and help understand why PL content may be incomplete or inaccurate.
Wright et al[28] performed 264 hours of observations and interviewed 63 clinicians across multiple
specialties to understand their PL use. They identified several themes that described
PL utilization behaviors, especially noting (1) ownership and responsibility for maintaining
the PL, (2) presentation and organization to support automatically sorting or grouping
problems in the EHR, and (3) accuracy of the PL as a reliable source of information.
Zhou et al[29] studied how the PL supported information sharing between different clinicians, for
example, specialist, general medicine hospitalists, and PCPs. They performed more
than 750 hours of field observations, reviewed patient medical records, and interviewed
physicians and nurse practitioners. They found that PCPs were more likely to update
the PL because it saved time during the patient's next visit and helped to maintain
continuity of care. Some specialists thought that because they spent significant time
writing clinical notes, spending extra time adding problems to the PL was unnecessary.
Zhou et al[29] argued that mixed perceptions about PL content results in not all clinicians using
it for the same purpose. For example, one group of physicians used the PL as a place
to put comments about patients they wanted another physician to know about. Understanding
physician views and perceptions of the PL is necessary to improve its design and better
support physicians' information needs.
The PL could be designed to avoid fragmented care planning and support care coordination
by integrating priorities from various clinical disciplines. Collins et al[30] argued that the collaborative nature of a shared PL among different disciplines
has design implications to support clinicians with overlapping information needs.
Based on a literature review, they proposed five sociotechnical requirements to support
the patient-centered PL. One of the sociotechnical requirements is to categorize problems
based on priority ranking for discipline-specific needs. The researchers suggested
that PL users view their priority rankings of problems alongside others' to understand
different perspectives and improve PL management. Improving PL use for different groups
of users could result in a more complete and accurate PL and, therefore, enhanced
care coordination.
Only one study evaluated PL use in an inpatient pediatric setting; PL use was measured
by at least one problem documented on the PL at the time of discharge.[11] A series of interventions, for example, resident and fellow training on the PL,
handouts, and teaching about PL use during rounds, was implemented to improve PL documentation.
Hospitalists and residents on the documentation committee provided feedback on interventions
by sending biweekly e-mails with daily PL usage graphs; PL use improved from 27 to
97%.[11] Research on the PL in pediatric settings is limited, especially studies describing
how physicians think it could be used in a pediatric inpatient setting.
Objectives
Our study aims to describe perceptions of physicians from different services involved
in acute pediatric trauma (i.e., physicians in pediatric emergency department [ED],
pediatric surgery, pediatric anesthesiology, and pediatric intensive care unit [PICU])
about the potential PL functionality. We identify how physicians define the PL and
its goals, characteristics, and information elements and compare PL perceptions of
physicians from different services involved in the acute pediatric trauma care process.
Methods
Setting and Participants
This study is part of a larger project aimed at developing health IT (information
technology) design requirements to support care transitions for pediatric trauma.[31] The participating hospital is an American College of Surgeons certified level 1
pediatric and adult trauma center[32]
[33] with an 87-bed children's hospital, a 21-bed PICU, and 8 pediatric operating rooms.
The pediatric trauma center receives between 250 and 300 level 1 and 2 pediatric trauma
cases per year (∼50 level 1 patients and 250 level 2 patients per year) and between
400 and 450 unleveled traumas per year. There were 1,487 pediatric traumas between
2013 and 2017.[5] The participating hospital implemented a system-wide EHR (Epic Systems Corporation,
Verona, Wisconsin, United States) in 2008. This preliminary, exploratory study was
granted exemption from the University of Wisconsin-Madison Institutional Review Board.
Interview data collection occurred between July and November 2016. We used purposive
sampling to interview three various physicians (resident, fellow, attending) in each
of the four services: ED, surgery, anesthesia, and PICU.[34] We asked members of our research team, that is, attending physicians from pediatric
emergency medicine (EM), surgery, anesthesia, critical care, and hospitalist services,
and the hospital's pediatric trauma nursing program manager, for suggestions on how
to identify potential participants. We e-mailed potential participants with a description
of the project. Participation was voluntary, and all participants provided verbal
consent. We interviewed seven males and five females.
Data Collection Methods
Based on discussion with experts at the Johns Hopkins University and the University
of Wisconsin-Madison and on the literature, we developed an initial version of the
PL interview guide. Using the initial version of the interview guide, we interviewed
three physicians on our research team and, based on their feedback, we made some minor
revisions to questions in the guide ([Appendix A]). We used the updated version of the interview guide for the rest of the interviews.
Pairs of human factors researchers conducted the 12 semistructured interviews. The
average interview duration was 54 minutes (range: 41 to 88 minutes), for a total of
10 hours and 44 minutes. Interviews were audio-recorded and transcribed by a professional
transcription service. The interview guide contained questions on the ideal PL, not
the current PL functionality, including definition, use and content that should be
included. See [Appendix A] for the full interview guide.
Data Analysis Methods
Interview transcripts were uploaded to Dedoose, a qualitative data analysis software,
and coded by the human factors researchers. Excerpts from the interview transcripts
related to the PL were coded in three categories: (1) goals, (2) characteristics,
and (3) patient-related information. Multiple goals, characteristics, and patient-related
information elements emerged from the inductive, multistep coding process; these lists
were created and used in Dedoose. Two researchers first individually coded a single
interview in Dedoose and met to review their coding. The researchers discussed disagreement
in coding and reached consensus about the coding structure after discussion. The process
was repeated in Dedoose for a second interview. This allowed refinement of the three
categories of (1) goals, (2) characteristics, and (3) patient-related information.
Two researchers separately coded the rest of the interviews in Dedoose and continually
discussed their coding to assure consistency. Four researchers reviewed the coding
iteratively, and refined or combined codes and revised definitions as the data analysis
proceeded until saturation was achieved.[35]
We presented our preliminary findings to all research team members, a form of member
checking, which is a strategy to ensure rigor in qualitative data analysis.[34] Members of the research team reviewed the definitions and suggested combining certain
codes (e.g. pain with medications); their feedback was incorporated in the final coding.
We computed frequencies for each goal and characteristic (see the Total column in
[Tables 1] and [2]), and patient-related information (see the Include/exclude column in [Table 3]) across all the four services. We computed totals for the four different services
across all goals, as well as all characteristics to compare which service mentioned
goals or characteristics more often.
Table 1
PL Goals by Service and Policy sorted by frequency
PL goals
|
Definitions
|
Services
|
ED, N = 3
|
Surgery, N = 3
|
Anesthesia, N = 3
|
PICU, N = 3
|
Total, N = 12
|
1. To communicate with others
|
The PL helps physicians communicate with other clinicians involved or getting involved
in the patient's care (i.e., what has been done and needs to be done). These clinicians
may be distributed across services, environments, time, etc.
|
✓✓
|
✓✓
|
✓✓
|
✓✓✓
|
9
|
2. To make sense of the patient's problems[a]
|
The PL provides an overall assessment of what's going on with the patient; this is
particularly helpful when meeting or caring for the patient the first time.
|
✓✓
|
✓
|
✓✓
|
✓✓✓
|
8
|
3. To document the patient's problems[a]
|
Patient's injuries and problems are recorded as they are identified; this helps to
avoid missed injuries. All problems, big and small, should be captured.
|
✓✓
|
✓
|
✓
|
✓✓✓
|
7
|
4. To make decisions about the care plan[a]
|
The PL helps with what to do next to care for the patient, e.g., to define, review,
and revise the care plan. It is helpful to anticipate and plan how to proceed with
caring for the patient.
|
✓
|
✓
|
✓
|
✓✓
|
5
|
5. To know who is involved in the patient's care
|
The PL helps to identify who is caring for the patient.
|
|
✓✓
|
|
✓✓
|
4
|
Total
|
|
7
|
7
|
6
|
13
|
|
Abbreviations: ED, emergency department; PICU, pediatric intensive care unit; PL,
problem list.
Note: A checkmark indicates that one interviewee mentioned that goal.
a Indicates that the goal was mentioned in the hospital policy.
Table 2
PL Characteristics by Service and Policy sorted by frequency
PL characteristics
|
Definitions
|
Services
|
ED, N = 3
|
Surgery, N = 3
|
Anesthesia, N = 3
|
PICU, N = 3
|
Total
|
1. Completeness[a]
|
Reflecting changes over time, since trauma occurred
|
✓✓✓
|
✓✓✓
|
✓✓
|
✓✓✓
|
11
|
2. Efficiency
|
Fast to use; not too much information
|
✓✓
|
✓✓
|
✓✓✓
|
✓✓✓
|
10
|
3. Accessibility
|
Available when and where needed
|
✓✓
|
✓✓✓
|
✓✓
|
✓✓
|
9
|
4. Multiple users[a]
|
Shared and supporting multiple roles and their perspectives
|
✓✓
|
✓✓
|
✓
|
✓✓
|
7
|
5. Organized
|
Order of the problems structured by organ system or injury priority
|
✓✓
|
✓✓✓
|
✓
|
✓
|
7
|
6. Created before arrival
|
To prepare before patient arrival
|
✓✓
|
✓
|
✓
|
✓✓
|
6
|
7. Representing uncertainty[a]
|
Represents uncertainty of patient's problem
|
✓✓
|
|
✓
|
✓
|
4
|
Total
|
|
15
|
14
|
11
|
14
|
|
Abbreviations: ED, emergency department; PICU, pediatric intensive care unit; PL,
problem list.
Note: A checkmark indicates that one interviewee mentioned the characteristic.
a Indicates that the characteristic was mentioned in the hospital policy.
Table 3
Patient-related Information by Service and Policy (sorted by frequency)
Patient-related Information
|
Definition
|
Services
|
ED, N = 3
|
Surgery, N = 3
|
Anesthesia, N = 3
|
PICU, N = 3
|
Include/exclude
|
1. Medications
|
Patient's medications
|
✓✓✓
|
✓✓✓XX
|
✓✓
|
✓✓✓
|
11 include, 2 exclude
|
2. Injuries[a]
|
List of the patient's injuries
|
✓✓✓
|
✓✓✓
|
✓
|
✓✓✓
|
10 include
|
3. Past medical history
|
Patient's past medical history
|
✓✓
|
✓✓XX
|
✓✓✓
|
✓✓
|
9 include, 2 exclude
|
4. Plan of care
|
Ongoing management of patient's problem
|
✓✓✓
|
✓✓X
|
✓X
|
✓✓✓
|
9 Include, 2 exclude
|
5. Allergies
|
Patient's allergies
|
✓✓
|
✓✓X
|
✓✓
|
✓✓
|
8 include, 1 exclude
|
6. Care completed
|
What has been done, specifically the care the patient has received
|
✓✓✓X
|
✓✓✓
|
✓
|
✓X
|
8 include, 2 exclude
|
7. Vitals
|
Patient's vitals
|
✓✓
|
✓✓✓XXX
|
✓
|
✓✓XX
|
8 include, 5 exclude
|
8. Events
|
What happened to the trauma patient (i.e., the events)
|
✓✓✓
|
|
✓
|
✓✓✓
|
7 include
|
9. Labs and imaging
|
Tests performed to detect, diagnose, or monitor any injury
|
✓✓
|
✓✓✓X
|
✓
|
✓X
|
7 include, 2 exclude
|
10. Teams involved
|
List of teams caring for the patient
|
✓✓
|
✓✓✓
|
✓
|
|
6 include
|
11. Non-trauma issues[a]
|
Active, ongoing issues are unrelated to the trauma (e.g., diabetes or asthma)
|
✓
|
✓XX
|
✓✓X
|
✓✓X
|
6 include, 4 exclude
|
12. Difficult airways
|
Patient's breathing status
|
✓✓
|
|
✓✓
|
✓
|
5 include
|
13. Date of birth
|
Patient's date of birth
|
✓
|
✓
|
✓
|
✓
|
4 include
|
14. Patient name
|
Patient's name
|
✓
|
|
✓
|
|
2 include
|
15. Patient weight
|
Patient's weight
|
|
|
✓✓
|
|
2 include
|
16. Immunizations
|
Immunizations the patient has
|
✓
|
|
|
✓
|
2 include
|
17. Last meal
|
The last meal the patient had
|
✓
|
|
✓
|
|
2 include
|
18. Prior anesthetics
|
Prior anesthetics that have been given
|
|
|
✓✓
|
|
2 include
|
19. IV access
|
IV access the patient has
|
|
X
|
✓
|
✓
|
2 include, 1 exclude
|
20. Gender
|
Patient's gender
|
✓
|
|
|
|
1 include
|
21. All inputs and outputs
|
The problem list should include urine output and intake
|
|
|
✓
|
|
1 include
|
22. Social support
|
Social support of the patient, who is with the patient, etc.
|
|
|
✓
|
|
1 include
|
Abbreviations: ED, emergency department; IV, intravenous; PICU, pediatric intensive
care unit.
Note: A checkmark (✓) indicates that one interviewee mentioned the information. The
number in front of “include” indicates a row total for how many interviewees mentioned
to include that information on the PL. An X indicates that one participant said that
piece of information should not be included on the PL. The number in front of “exclude”
indicates a row total for how many interviewees mentioned to not include that information
on the PL. Occasionally, an interviewee mentioned to include and exclude a piece of
information in the same interview.
a Indicates the patient-related information was mentioned in hospital policy to be
included on the PL.
We obtained a copy of the hospital's PL policy (formally called “PL etiquette”), which
was also coded for goals, characteristics, and patient-related information. We compared
our interview results to the coded hospital's PL policy.
Results
Goals of the Problem List
[Table 1] shows the five PL goals, their definitions, and the frequencies with which each
PL goal was mentioned across the four services (EM, surgery, anesthesia, PICU), as
well as whether the specific PL goal was included in the hospital's PL policy. Four
of the five PL goals were mentioned by at least one participant in each service: documenting
the patient's problems, making sense of the patient's problems, making decisions about
the care plan, and communicating with others. PICU physicians mentioned goals of the
PL more frequently than physicians in other services (see the Total column in [Table 1]).
Nine of the 12 participants mentioned the PL goal of communicating with others. A
PICU fellow mentioned that the PL should be used to communicate with physicians involved
in the child's care, “…closing the loop … getting the word out to everybody … what's important to a surgeon
… [and] what's important to me when I'm trying to take care of the patient overnight.”
Eight of the 12 participants mentioned the PL goal of making sense of the patient's
problems. An EM attending said the PL allows him to know of other medical problems,
“So a problem list for me is … a quick way to assess, does this patient have any other
medical problems?” A PICU attending talked about how the PL can inform him of treatment, “So a good problem list really informs all of the treatment and who is needed to be
part of the care team as well.”
Of the 12 participants, seven mentioned the PL goal of documenting the patient's problems;
these participants were mostly from EM, surgery, and PICU. A surgery resident mentioned
that the PL helps to distinguish who has what injury, “… especially trauma patients, all the patients tend to kind of blend together so it
helps us distinguish who has what injury, what side is the injury on, who's managing
that injury, what do we need to do for that injury?” A PICU resident said that the PL is a list of the patient's medical problems, “… A list of what the patient's medical problem [are] and conditions are … that are
being addressed in their current hospitalization.”
Five of the 12 participants, mostly from surgery and PICU, mentioned the PL goal of
making decisions about the care plan. An EM resident said that the PL helps in decisions
regarding next steps, “Any pertinent labs … [are] vital information [that] guides your next step … if they
don't know that information, they don't know what they're doing.” A surgery resident talked about the PL including the care plan, “…Our problem list is a list of injuries that the patient has. … if it's well updated
… the plan for those injuries, who's consulting,.... [and] what follow-up or further
things that they need.”
Four of the 12 participants, all from surgery and the PICU, mentioned the PL goal
of knowing who is involved in care. One surgery attending described the usefulness
of knowing the other surgical services involved in the child's care, “It would be helpful to … know where everybody is at … this bone fracture … was managed
by orthopedics …”
Characteristics of the Problem List
[Table 2] shows the seven PL characteristics, their definitions, and frequencies across all
four services (EM, surgery, anesthesia, PICU), as well as the coding of the hospital's
PL policy. Six of the seven PL characteristics were mentioned by at least one participant
in each service: completeness, efficiency, accessibility, multiple users, organized,
PL created before arrival, and PL representing uncertainty. Overall, physicians in
all four services mentioned most of the characteristics (see the Total row in [Table 2]).
Of the 12 participants, 11 mentioned the PL characteristic of completeness. A PICU
resident talked about how it was helpful to have a PL with all of the problems there,
“Patients who are medically complex … have a very, very thorough problem list ... And
it's very helpful … that all the problems are in there.” An EM resident mentioned the need for every problem to be addressed, “Because a lot of times, what happens is you get these little injuries. They go to
the next phase, and it gets forgotten about … I don't think any problem is too small.
I think it all needs to be addressed, especially in kids.”
Of the 12 participants, 10 mentioned the PL characteristic of efficiency. An EM attending
talked about the need to communicate information efficiently, “How do we continue to communicate that information efficiently in a way that's value-added
and helpful to handoffs in those transitions of care?” An anesthesia attending mentioned the challenge of getting to key information quickly,
“I have to sift through telephone encounters … nurses calling the family … It's hard
to get the pertinent points quickly.”
Of the 12 participants, nine mentioned the PL characteristic of accessibility. An
anesthesia resident indicated that the PL should be easy to find, “Something that would be streamlined … [and] accessible … when you log into [EHR],
it comes up, or … you can find easily that's clear and concise.” A PICU fellow talked about the fact that information needs to be easily accessible,
for example, in a paper format, “If it's an easy-to-access thing, before the patient arrives … we could print it off
… I could have that sheet with me in the room and … then I'm not tied to a computer.”
Of the 12 participants, seven mentioned the PL characteristic of multiple users; these
interviewees were mostly from EM, surgery, and PICU. A PICU attending said, “We're always building that problem list. It's always … a construct in all of our minds.
The question is, how do we take all of our minds and put it into a ‘group think’,
a group-[generated] list that we can all sign off and say … I agree, that adequately
describes this patient.”
Seven of the 12 participants, mostly from EM and surgery, mentioned the PL characteristic
of organized. The PL could, for instance, be organized by organ system, as indicated
by a surgery attending, “I would rather have it by organ systems, because it makes you think … am I missing
something somewhere?” A PICU attending talked about organizing the PL in the context of other important
information, “So a problem existing just by itself is not enough. There needs to be subcategories
under that in terms of … what is the degree of that injury and what has [been] done
about it, and then, ideally, what is planned to be done about it.”
Of the 12 participants, six mentioned the need for the PL to be created before arrival.
A surgery resident said, “I think we should gather all the information that we can from that time when the trauma
happened and input it into our system.”
Four of the 12 participants from EM, anesthesia, and PICU mentioned the PL characteristic
of representing uncertainty. An EM resident talked about the need to indicate that
certain problems may not be fully identified and have a degree of uncertainty, “We don't know at that time, what all the problems are. We could say trauma or spleen
injury, but we don't know exactly [what] that spleen injury is going to be, [maybe]
they're going to remove the spleen.”
Patient-Related Information Associated with the Problem List
Physicians described a total of 22 information elements. [Table 3] lists the patient-related information, their definitions, and frequencies, denoted
by “include” and “exclude,” across all four services (EM, surgery, anesthesia, PICU),
as well as the coding of the hospital's PL policy. The 22 PL patient-related information
elements ranged from situation/background, such as patient name and gender, to objective
data such as medications and vitals, as well as assessment information such as injuries
and plan of care. Of the 22 PL patient-related information elements, 10 were mentioned
by physicians in the four services: medications, injuries, plan of care, past medical
history, allergies, care completed, vitals, labs and imaging, non-trauma issue, and
date of birth. A few participants mentioned information elements that should be excluded
from the PL, and other physicians could mention the same information elements as elements
that should be included in the PL. For example, a surgery resident mentioned that
vitals should be excluded and later mentioned that vitals should be included, “I can't see an injury that a vital sign is going to necessarily line up … in those
situations … even vitals in the field versus vitals when they arrive, that's important.”
There is general agreement about medications, injuries, and past medical history to
be included on or connected to the PL, as these elements were mentioned by 11, 10,
and 9 participants, respectively. There is less agreement about including in the PL
or connecting the PL to gender, all inputs and outputs, and social support, as these
information elements were each mentioned by one participant.
Of 12 participants, 10 mentioned injuries as one of the PL patient-related information
elements. An EM attending suggested that blood and pain control for injuries should
be on the PL, “… If I have a critical patient … with shock, head injury, belly trauma … we gave blood
… We gave pain control … not everything falls in perfectly in a problem list.” An anesthesia resident mentioned having “a story” of the injuries on the PL, including
information about what happened, airway access, blood given, and allergies, “… Having … more of a story of the injuries, what happened … they have an airway … two
IVs. They're getting a unit of blood... They have multiple long bone fractures. They're
known to have asthma and are allergic to sulfa.”
Coding of the Hospital's Problem List Policy
Three of the five PL goals identified by the interviewees are addressed in the PL
policy: documenting the patient's problems, making sense of the patient's problems,
and making decisions about the care plan ([Table 1]). Three of the seven characteristics are also mentioned in the PL policy: completeness,
multiple users, and uncertainty ([Table 2]). The PL policy includes 2 of the 22 patient-related information: injuries and non-trauma
issues ([Table 3]).
Discussion
When interviewed about the ideal electronic PL, 12 physicians across four services
involved in pediatric trauma care mentioned five goals for the PL, seven characteristics
of the PL, and 22 patient-related information elements. Many of the characteristics
and patient-related information elements were not found in the hospital's PL policy,
suggesting a gap in the formal PL functionality (as described in the policy) to meet
physician information needs.
Previous studies, primarily conducted in outpatient care settings, have described
a lack of consensus about what should be included on the PL.[23]
[28]
[29] Our results also demonstrate challenges in achieving consensus about information
elements that should be included in or connected to the PL. Nine of the 22 patient-related
information were identified by some physicians as related to the PL or as elements
that should be excluded from the PL ([Table 3]): for example, medications, past medical history, plan of care, and allergies. In
all instances, there were more mentions of inclusion in the PL than exclusion from
the PL. Physicians from different services involved in pediatric trauma care somewhat
agree that many information elements in the EHR are related to the PL. More than 75%
of the 22 patient-related information elements were mentioned by at least two participants
from different services ([Table 3]). These findings have design implications for the electronic PL to be organized
around related patient data, for example, imaging and medications. Organizing the
PL around other relevant patient data besides diagnoses and injuries could help support
physician clinical thinking and coordination of care.[8]
[9]
[10]
[13]
Our results confirm findings of previous PL research[14]
[15]
[16]
[17]
[18]
[19]
[21]
[28] that completeness and accuracy are two important characteristics of the PL. The
PL should be designed to support overlapping information needs between physicians
involved in the complex pediatric trauma care process as most participants mentioned
the PL goal of communicating with others and PL characteristic of completeness ([Tables 1] and [2]). Physicians described using the PL to communicate with other physicians distributed
across services and environments. The amount of information and organization of the
PL may depend on the child's stage of care, for example, ED versus PICU. Therefore,
PL goals and characteristics must not be considered independently as they interact.
In light of the systems approach recommended by human factors and systems engineering,[36]
[37] the PL should be designed to support interactions between goals and characteristics
to have a positive impact on patient safety by avoiding missed injuries while supporting
effective and efficient communication and coordination during in-hospital transitions,
for example, from the ED to the operating room to PICU.
There are some limitations to this study. First, our findings are limited by the small
sample size of 12 interviews with physicians involved in pediatric trauma. The data
may not capture the entire range of physicians' perceptions of the PL, for example,
hospitalists who may care for children with trauma injuries after a PICU stay. Second,
we collected data at a single, academic institution. Third, we interviewed only physicians
who are the primary users and generators of the PL; understanding the perspective
of other healthcare professions, for example, nurses, who interact with the child
and use the PL in the EHR would be useful. Fourth, we focused on in-hospital transitions.
Therefore, it is difficult to determine whether our results are generalizable to other
children's hospitals of varying trauma level verification or nonteaching hospitals.
More work is needed to evaluate and improve the design of the PL so that it accomplishes
the goals and characteristics identified in this study.
Conclusion
Physicians described the PL as more than a tool to document and share a list of problems
or injuries suffered by pediatric trauma patients. Physicians from four services involved
in pediatric trauma mentioned many other information elements connected to problems
on the PL, for example, medications and past medical history. A PL should support
physician cognitive work and the collaborative nature of the pediatric trauma care
process. Future studies could build on our results and examine the importance of the
goals, characteristics, and information elements of the PL as perceived by physicians
involved in pediatric trauma in other children's hospitals.
Clinical Relevance Statement
Clinical Relevance Statement
Our results have design implications for the electronic PL to be organized around
relevant patient data that could help support physician clinical thinking and coordination
of care. The electronic PL should be designed to balance its goals and characteristics
and have a positive impact on patient safety, for example, avoid missed injuries,
and support communication and coordination during transitions.
Multiple Choice Questions
Multiple Choice Questions
-
Physicians think of the PL as follows:
-
The PL is just a list of problems, injuries, and diagnoses of the patient, which are
not related to any other parts of the EHR.
-
The PL is a list of problems, injuries, and diagnoses of the patient, which should
be connected to other parts of the EHR, such as imaging and medications.
Correct Answer: The correct answer is option b. The results of our study clearly show that physicians
talk about the PL in relation to many other patient-related information elements.
-
The literature shows that the following characteristics of PL remain an issue.
-
Completeness.
-
Customizable.
-
Not shareable.
-
Duplicative.
Correct Answer: The correct answer is option a. PL completeness is often mentioned in the literature,
as well as by our study participants.
-
The hospital policy on PL describes the following information elements:
-
List of injuries and non-trauma issues.
-
List of non-trauma issues and medications.
-
List of medications and vitals.
-
List of vitals and allergies.
Correct Answer: The correct answer is option a. The results of our study show that hospital policy
mentioned to include injuries and non-trauma issues on the PL.
Appendix A: Interview Guide
Pediatric trauma expert interview guide
Interviewee code:
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Interviewee service:
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Interview date, time and duration:
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Interviewers:
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Reminder: any examples (based on your previous experiences of pediatric trauma admission and discharge
processes) you can provide that can help us understand your responses to our questions would
be helpful.
Job title/expertise
(ED charge nurse, peds transport team member, PICU nurse manager, etc.)
Your job/role
Can you please describe your role as related to pediatric trauma admissions and transfers?
Service Information
Can you please provide us with some background info about your service/unit?
Problem List
We would like to talk about the current problem list: how you would define it, what
it is, what it contains, what you do with it, and why it is important.
-
What is a problem list for you?
-
Terms they mentioned in the first interview: injuries, surgical issues, problems,
vitals (blood pressure), the “story,” burns, fractured bones, picture, neurologic
things, multiple issues, broken arms, lost consciousness, concerns, issues, multitrauma,
blunt injuries, missed injuries, what they are concerned about
-
What would you call that list?
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What do you do with the problem list?
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What does (or should) the list include?
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What is the content of the problem list?
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What information would you like to have?
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What is not included in the problem list? What does not belong to the problem list?
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Additional process questions, time permitting:
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Who uses it?
-
Is it used by a single person or by a team? How does it get updated?
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When does it get used?
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Where does it get used (physical location)?
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What technology is used for the problem list (electronic health record)?
-
Is there any information that is currently not contained in the problem list that
you wish would be captured? Why?
-
Whom else should we interview in your service/unit (e.g., other attending, fellow,
resident)?