CC BY-NC-ND 4.0 · Laryngorhinootologie 2021; 100(S 02): S258
DOI: 10.1055/s-0041-1728563
Abstracts
Phoniatrics

The International BVFP Registry: Prospective Data Collection

O Guntinas-Lichius
1   Universitätsklinikum Jena, Fazialis-Nerv-Zentrum Jena, Jena
,
R Hagen
3   Universitätsklinikum Würzburg, Klinik und Poliklinik für Hals-, Nasen- und Ohrenkrankheiten, plastische und ästhetische Operationen, Würzburg
,
A Müller
4   SRH Wald-Klinikum, Klinik für Hals-Nasen-Ohrenheilkunde/Plastische Operationen, Gera
,
M Gugatschka
5   LKH-Universitätsklinikum Graz, Hals-Nasen-Ohren-Universitätsklinik, klinische Abteilung für Phoniatrie, Graz, Austria
,
C Pototschnig
6   Medizinische Universität Innsbruck, Universitätsklinik für Hals-, Nasen- und Ohrenheilkunde, Innsbruck, Austria
,
PG. Zorowka
7   Medizinische Universität Innsbruck, Universitätsklinik für Hör-, Stimm- und Sprachstörungen, Innsbruck, Austria
,
S Yaremchuk
8   Medizinische Akademie der Wissenschaften, Klinik für Hals-, Nasen- und Ohrenheilkunde, Prof. Kolomiychenko, Kiew, Ukraine
,
M Grosheva
9   Uniklinik Köln, Klinik und Poliklinik für Hals-, Nasen- und Ohrenheilkunde, Kopf- und Hals-Chirurgie, Köln
,
JT. Maurer
10   Universitätsklinikum Mannheim, Sektion für Schlafmedizin, Universitäts-HNO-Klinik, Mannheim
,
J-C Kölmel
11   Katharinenhospital Stuttgart, Klinik für Hals-, Nasen-, Ohrenkrankheiten, Plastische Operationen, Stuttgart
,
B Schneider-Stickler
12   Medizinische Universität Wien, Universitätsklinik für Hals-, Nasen- und Ohrenkrankheiten, Wien, Austria
,
T Nawka
13   Charité #x2013; Universitätsmedizin Berlin, Klinik für Audiologie und Phoniatrie, Berlin
› Author Affiliations
› Further Information
Also available at
 
 

    Introduction Bilateral vocal fold paralysis (BVFP) is a rare disease mainly of iatrogenic origin that in most cases critically reduce the respiratory patency of the affected patients and in the worst cases may become life-threating. Currently it is mainly diagnosed by medical history and video(strobo)laryngoscopy assessment. Its current golden standard is surgical glottal enlargement or tracheotomy in emergency cases. No standardized diagnostic, treatment, and follow-up protocol exists for this disease, thus the comparison among the results obtained worldwide is difficult, as we showed in our previous publication of 329 retrospective cases within an international registry conducted in 11 hospitals in EU and Ukraine

    Methods Currently we are prospectively collecting BVFP cases in 15 hospitals, including quality of life (QoL) questionnaires. The hospitals are trying to perform respiratory and voice quality assessment as well as administer QoL questionnaires pre-treatment and at regular visits within 2-year post-treatment

    Results 47 patients have been prospectively enrolled so far. 28 patients completed the 6m; 19 the 12m; and 13 then 24m follow-up. For these patients at least a voice quality and respiratory test, a QoL, a voice, a respiratory, a swallow, a sleep quality questionnaire are available at baseline and one or more follows-up

    Conclusions The results of the prospectively recruited patients shall provide a better insight on how the collection of regular objective voice and respiratory assessment and of subjective QoL questionnaire can help the follow-up of BVFP patients and increase their compliance with post-treatment follow-up.

    Poster-PDF A-1346.pdf

    MED-EL Elektromedizinische Geräte GmbH


    #

    Conflict of interest

    Der Erstautor gibt keinen Interessenskonflikt an.

    Address for correspondence

    Univ. Prof. Dr. med. Guntinas-Lichius Orlando
    Universitätsklinikum Jena, Klinik für Hals-, Nasen- und Ohrenheilkunde
    Jena

    Publication History

    Article published online:
    13 May 2021

    © 2021. The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial-License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/).

    Georg Thieme Verlag KG
    Rüdigerstraße 14, 70469 Stuttgart, Germany