Applied Clinical Informatics, Table of Contents Appl Clin Inform 2016; 07(02): 355-367DOI: 10.4338/ACI-2015-11-RA-0156 Research Article - H3IT Special Topic Schattauer GmbH Assessing commercially available personal health records for home healthRecommendations for design Laura Kneale 1 University of Washington Biomedical and Health Informatics , Yong Choi 1 University of Washington Biomedical and Health Informatics , George Demiris 1 University of Washington Biomedical and Health Informatics 2 University of Washington School of Nursing› Author AffiliationsRecommend Article Abstract Full Text PDF Download Keywords KeywordsPersonal health record - personal health records - home health nursing - qualitative research References References 1 Osborn R, Moulds D, Squires D, Doty MM, Anderson C. International survey of older adults finds shortcomings in access, coordination, and patient-centered care. Health Aff (Millwood) 2014; 33 (12) 2247-2255 doi: 10.1377/hlthaff.2014.0947. PubMed PMID: 25410260. 2 Olsen RM, Hellzen O, Skotnes LH, Enmarker I. Breakdown in informational continuity of care during hospitalization of older home-living patients: a case study. Int J Integr Care 2014; 14: e012 PubMed PMID: 24868195; PubMed Central PMCID: PMC4027933. 3 Dykes PC, Samal L, Donahue M, Greenberg JO, Hurley AC, Hasan O, O’Malley TA, Venkatesh AK, Volk LA, Bates DW. A patient-centered longitudinal care plan: vision versus reality. J Am Med Inform Assoc. 2014; 21 (06) 1082-1090 doi: 10.1136/amiajnl-2013–002454. PubMed PMID: 24996874; PubMed Central PMCID: PMC4215040. 4 Bowles KH, Pham J, O’Connor M, Horowitz D. Information deficits in home care: a barrier to evidencebased disease management. HHCMP 2010; 22 (04) 278-285. 5 Connecting for Health, Markle Foundation. The personal health working group: final report. New York: NY; Markle Foundation[Internet]. 2003. [cited 2015 December 1]. 58 p. Available from: http://www.markle.org/publications/1429-personal-health-working-group-final-report. 6 myPHR [Internet]. Chicago: IL; The American Health Information Management Association; c2015 [cited 2015 November 5]. Available from: http://www.myphr.com/. 7 What is a personal health record? [Internet]. Washington: Department of Health and Human Services; 2013. [cited 2015 November 30]. Available from: https://www.healthit.gov/providers-professionals/faqs/what-personal-health-record. 8 Turvey C, Klein D, Fix G, Hogan TP, Woods S, Simon SR, Charlton M, Vaughan-Sarrazin M, Zulman DM, Dindo L, Wakefield B, Graham G, Nazi K. Blue Button use by patients to access and share health record information using the Department of Veterans Affairs’ online patient portal. J Am Med Inform Assoc 2014; 21 (04) 657-663 doi: 10.1136/amiajnl-2014–002723. PubMed PMID: 24740865; PubMed Central PMCID: PMC4078285. 9 Dey JG, Johnson M, Pajerowski W, Tanamor M, Ward A. Home Health Study Report. Baltimore: Centers for Medicare and Medicaid Services; 2011 10 Choose a PHR [Internet]. Chicago: IL; the American Health Information Management Association c2015 [cited 2015 November 5]. Available from: http://myphr.com/resources/choose.aspx. 11 Carrion ISenor, Fernandez-Aleman JL, Toval A. Are personal health records safe? A review of free webaccessible personal health record privacy policies. J Med Internet Res 2012; 14 (04) e114 doi: 10.2196/jmir.1904. PubMed PMID: 22917868; PubMed Central PMCID: PMC3510685. 12 Pai HH, Lau F, Barnett J, Jones S. Meeting the health information needs of prostate cancer patients using personal health records. Curr Oncol 2013; 20 (06) e561-e569 doi: 10.3747/co.20.1584. PubMed PMID: 24311957; PubMed Central PMCID: PMC3851353. 13 Millerick Y. Case study 6: an account of a patient’s journey following a diagnosis of left ventricular systolic dysfunction of ischaemic aetiology. In: Stewart S, Blue L. editors. Improving Outcomes in Chronic Heart Failure: A practical guide to specialist. 2nd ed.. London: BMJ Publishing Group; 2004: 226-32. 14 Administration on Aging, Administration for Community Living. A Profile of Older Americans. 2012. Washington: U.S; Department of Human and Health Services. 2012: 14. 15 Hines AL, Barrett ML, Jiang HJ, Steiner CA. Conditions with the largest number of adult hospital readmissions by payer. 2011. Rockville (MD): The Agency for Healthcare Research and Quality; 2014 16 Medem iHealthRecord [Internet]. Mountain View: CA: Intuit; c2015 [cited 2015 July 15]; Available from: http://www.medemphr.mymedfusion.com. 17 MyWellnessHub [Internet]. [cited 2015 July 15]. Available from: http://phr.emrystick.com. 18 MiVIA: Connecting Patients and Clinicians Nationwide. [Internet]. Sonoma: CA: MiVIA; c2013 [cited 2015 July 15]. Available from: https://www.mivia.org. 19 MyHealthFolders.com [Internet]. St. Louis: MO: BJC; c2015. [cited 2015 July 15]. Available from: https://www.myhealthfolders.com. 20 MyChart [Internet]. Verona: WI: Epic Systems; c1999-2013 [cited 2015 July 15]. Available from: https://www.mychartlink.com/MyChart/. 21 ZebraHealth [Internet]. Kirkland, WA: ZebraHealth Inc; [cited 2015 July 15]. Available from: https://www.zebrahealth.com. 22 About My Health: Experience. Learn. Share [Internet]. Nottingham: UK: EDIO Healthcare; [cited 2015 July 15]. Available from: http://www.aboutmyhealth.org/. 23 MedicAlert Foundation [Internet]. Turlock, CA: MedicAlert Foundation; [cited 2015 July 15]. Available from: http://www.medicalert.org/. 24 dLife: It’s your diabetes life [Internet]. LifeMed Media. c2015 [cited 2015 July 15]. Available from: http://www.dlife.com. 25 Zweena [Internet]. Hopewell: NJ; Zweena Health. [cited 2015 July 15]. Available from: http://zweena- health.com/. 26 No More Clip Board [Internet]. Fort Wayne: IN; No More Clipboard. c2015 [cited 2015 November 5]. Available from: https://www.nomoreclipboard.com/. 27 Healthspek [Internet]. Healthspek. c2015. [cited 2015 November 5]. Available from: http://www.health spek.com/. 28 Health Companion [Internet]. San Diego: CA; Health Companion, Inc.; c. 2009-2015 [cited 2015 November 5]. Available from: https://www.healthcompanion.com/. 29 HealthVault [Internet]. Redmond, WA: Microsoft; c2015. [cited 2015 November 5]. Available from: https://www.healthvault.com/us/en. 30 RememberItNow [Internet]. Orinda: CA; RememberItNow LLC. [cited 2015 November 5]. Available from: http://www.rememberitnow.com/index.php. 31 MyMedWall [Internet]. [cited 2015 November 5]. Available from: https://secure.mymedwall.com/phr/. 32 Doclopedia [Internet]. Phoenix: AZ; Doclopedia Marketplace Development. [cited 2015 November 5]. Available from: https://www.doclopedia.com/. 33 Wells S, Rozenblum R, Park A, Dunn M, Bates DW. Personal health records for patients with chronic disease: a major opportunity. Appl Clin Inform 2014; 05 (02) 416-429 doi: 10.4338/ACI-2014–01-RA-0002. PubMed PMID: 25024758; PubMed Central PMCID: PMC4081745. 34 Studeny J, Coustasse A. Personal health records: is rapid adoption hindering interoperability?. Perspect Health Inf Manag. 2014 11. 1e PubMed PMID: 25214822; PubMed Central PMCID: PMC4142513. 35 Smith A. Older Adults and technology use: adoption is increasing, but many seniors remain isolated from digital life. Washington: DC: Pew Research Center; 2014: 27. 36 Gu Y, Day K. Propensity of people with long-term conditions to use personal health records. Stud Health Technol Inform 2013; 188 46-51 PubMed PMID: 23823287. 37 Prey J, Ryan B, Quian M, Restaino S, Bakken S, Feiner SK, Schnall R, Hripcsak G, Han J, Vawdrey D. Interim Results of a Randomized Controlled Trial on Inpatient Engagement. AMIA Annu Symp Proc. 2015 38 Sockolow PS, Bowles KH, Adelsberger MC, Chittams JL, Liao C. Impact of homecare electronic health record on timeliness of clinical documentation, reimbursement, and patient outcomes. Appl Clin Inform 2014; 05 (02) 445-462 doi: 10.4338/ACI-2013–12-RA-0106. PubMed PMID: 25024760; PubMed Central PMCID: PMC4081747.
