Transition in Esophageal Atresia: Medical, Psychosocial, and Structural Aspects of Lifelong Care

Abstract

Esophageal atresia (EA) is often perceived as a pediatric surgical diagnosis with treatment concluded after repair. In reality, EA represents a complex chronic condition requiring lifelong monitoring. Beyond surgical sequelae, patients are at risk for gastrointestinal, respiratory, and musculoskeletal long-term complications, frequently accompanied by associated malformations and psychosocial challenges. Transition from pediatric to adult-centered healthcare is particularly critical but remains insufficiently structured in Germany. Comprehensive, multidisciplinary teams for adults are scarce, and existing pilot projects are limited to single institutions. Consequently, pediatricians often act as key coordinators during transition, while patient organizations provide essential support through information, peer networks, and practical tools. Sustainable care structures – including dedicated transition centers, interdisciplinary networks, and standardized transfer protocols – are urgently needed to ensure continuity of care. Such frameworks would help to secure medical safety, psychosocial stability, and an independent quality of life for individuals with EA into adulthood.

Keywords

oesophageal atresia/esophageal atresia - transition - adult medicine - chronic condition - holistic care

Publication History

Article published online:
10 October 2025

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