Abstract
Background Health informatics education is pivotal in integrating diversity, equity, inclusion,
and accessibility (DEIA) principles into curricula and leveraging data with equity
considerations. Integrating clinically driven data with other datasets is crucial
to comprehensive understanding of patient care demographics, experiences, and outcomes
to create equity-minded data storytelling. Publicly available Healthy People 2030
(HP2030) resources complement academic electronic health records, supporting tailored
learning activities in informatics education to enhance educational utility through
a DEIA lens.
Objectives This case report describes the expansion of an existing diversity, equity, and inclusion
(DEI) checklist to an updated DEIA checklist for preparing future informaticians to
collect and critically evaluate DEIA features using this checklist in creating equity-minded
data storytelling.
Methods The DEI-Oriented Data Storytelling Model and the HP2030 framework were utilized to
develop the DEIA checklist. We employed an informal cognitive walkthrough to expand
the DEIA checklist and evaluate the DEIA measures or characteristics within datasets
from the HP2030 social determinants of health (SDOH) five topics using this checklist.
Results We reviewed 76 available SDOH-related datasets and added six measures to “demographics”
and seven to “skills, abilities, and accessibility” of the DEIA checklist. Our evaluation
of the DEIA checklist verified HP2030's inclusion of all measures, except “religions/beliefs.”
All DEIA measures were linked to equity and accessibility, one in inclusion, and the
inclusion of three characteristics comprising the category “language” and six characteristics
comprising the category “images.”
Conclusion Results highlighted the accessibility and comprehensiveness of HP2030 demographic
data resources, considering SDOH factors and promoting inclusive data representation
to address health disparities. The DEIA checklist provides a structured tool in facilitating
unbiased data collection and visualization of SDOH-related data through an equity-informed
lens. Integrating an equity-minded data storytelling with frameworks like HP2030 enriches
health informatics education, broadens students' understanding of health disparities,
and supports evidence-based interventions for improved health outcomes.
Keywords
diversity - equity - inclusion - accessibility - data storytelling - health informatics
education.
