Angehörige und Patienten in der ambulanten psychoonkologischen Versorgung: Zugangswege, psychische Belastungen und Unterstützungsbedürfnisse

Zusammenfassung

Die Unterstützungsbedürfnisse der Angehörigen von Krebspatienten werden in der psychosozialen Versorgung zu wenig beachtet. In der Spezialambulanz für Psychoonkologie am Universitätsklinikum Hamburg-Eppendorf wurde 132 Angehörigen und 362 Krebspatienten (Teilnahmequote > 95 %) bei telefonischer Anmeldung postalisch ein Screeningfragebogen zugesandt. Die Mehrzahl der Studienteilnehmer kommt auf Empfehlung Dritter in die Ambulanz. Mehr als 90 % der Angehörigen und Krebspatienten weisen hohe Disstresswerte auf; 49 % der Angehörigen, 59 % der Patienten haben eine moderate bis hohe Depressivität; 58 % der Angehörigen, 61 % der Patienten zeigen eine moderate bis hohe Ängstlichkeit; Geschlechtsunterschiede bestehen in beiden Gruppen nicht. Die häufigsten Unterstützungsbedürfnisse bei beiden Gruppen beziehen sich auf Progredienzangst, Ungewissheit, Traurigkeit und den Erhalt einer positiven Sichtweise. Die Ergebnisse unterstreichen den Bedarf an spezifischen psychoonkologischen Interventionen.

Abstract

Supportive care needs of family members of cancer patients are often overlooked within psychosocial care. A screening measure was sent to 132 family members and 362 cancer patients (response rate > 95 %) after telephone registration at a specialized outpatient clinic for psycho-oncology at the University Medical Center Hamburg-Eppendorf. The majority of participants was informed about the outpatient clinic for psycho-oncology through advice by third parties. More than 90 % of family members and cancer patients show high levels of distress; 49 % of family members and 59 % of patients had moderate to high levels of depression; 58 % of family members and 61 % of patients had moderate to high levels of anxiety. No gender differences were observed in both groups. Most frequent supportive care needs in both groups refer to fear of recurrence, dealing with uncertainty, sadness and keeping a positive outlook. Our findings emphasize the need for specific psycho-oncological interventions.

Schlüsselwörter

Disstress - Psychoonkologie - Krebs - ambulante Versorgung

Keywords

distress - psycho-oncology - cancer - outpatient care

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