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DOI: 10.1055/s-0038-1667367
Daily Life Coping with Mucopolysaccharidoses: A Few Devices Showing the Possibilities of Helping Morquio Patients
Publication History
28 October 2017
18 June 2018
Publication Date:
03 October 2018 (online)
Abstract
Mucopolysaccharidoses (MPS) show a strong involvement of the skeleton and the joints and partly a significant reduction in growth. Nevertheless, adult patients are particularly interested in being recognized as integrated members of society, and having families and professions. Because of their physical limitations, they always reach their limits. In recent years, numerous devices have come on the market and/or have been improved, which can make everyday life easier. Various improvements are due to new materials such as carbon or silicon and due to electronics/robotics. Amenities such as automated doors, motion detectors, lifts, smartphones with integrated remote control, among others, originally invented for normal consumers prove to be a great help for handicapped persons. What was meant for the masses proves to be extremely useful for patients with MPS.
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