Journal of Pediatric Epilepsy 2020; 09(04): 119-124
DOI: 10.1055/s-0040-1716826
Review Article

Transition to Adult Care in Youth with Epilepsy: One Center's Experience with a Transition Program and Its Integration within Telemedicine

Gina L. Jones
1  Department of Pediatric Neurology, Children's Mercy Hospital, Kansas City, Missouri, United States
,
Teresa Hickam
2  Transition Program, Children's Mercy Hospital, Kansas City, Missouri, United States
,
Courtney Wellman
3  Neurology Clinic, Children's Mercy Hospital, Kansas City, Missouri, United States
,
Ann Modrcin
4  Department of Pediatric Rehabilitation, Children's Mercy Hospital, Kansas City, Missouri, United States
,
Ahmed Abdelmoity
1  Department of Pediatric Neurology, Children's Mercy Hospital, Kansas City, Missouri, United States
,
Jean-Baptiste Le Pichon
1  Department of Pediatric Neurology, Children's Mercy Hospital, Kansas City, Missouri, United States
› Author Affiliations

Abstract

Neurology patients often have disorders that require life-long care and ongoing treatment. The transition of pediatric neurology patients to adult neurology care, particularly in epilepsy, is an evolving concept that is recognized as important for patients and families. Children's Mercy Hospital, Kansas City has an established transition program that has been integrated into the neurology clinic as a part of standard care. Our experience and utilization of a transition program has provided our patients with a unique opportunity, empowering them to navigate their own care and create a seamless transition to adult neurology. Through a collaboration with the American Academy of Pediatrics and the Department of Health Resources and Services Administration, we have proposed a practice model designed to create a medical home for children and youth with epilepsy in rural underserved areas of Kansas. One of the core end points of this study is transition of care for youth with epilepsy using telemedicine. In this article, we describe our experience with a transition program for epilepsy patients and describe the very early implementation of this program to a telemedicine transition program designed for underserved rural populations.



Publication History

Received: 26 July 2020

Accepted: 06 August 2020

Publication Date:
23 September 2020 (online)

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