DOI: 10.1055/s-00034612

Yearbook of Medical Informatics

Issue 01 · Volume 31 · August 2022 DOI: 10.1055/s-012-55902

Cover

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Cover IMIA Yearbook of Medical Informatics 2022

Table of Contents

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Contents IMIA Yearbook of Medical Informatics 2022

President's Statement

001
Yu Chuan, Jack Li: “It was the best of times, it was the worst of times”

Editorial

002
Mougin, Fleur; Hollis, Kate Fultz; Soualmia, Lina F.: Inclusive Digital Health

IAHSI Paper

007
Hersh, William R.; Haux, Reinhold; Huesing, Elaine; Ball, Marion J.; Kimura, Michio; Otero, Paula; Detmer, Don; Koch, Sabine; Saranto, Kaija K.; Wright, Graham: The International Academy of Health Sciences Informatics: 2021 Update

Position Paper

011
Botin, Lars: Datafication: the Flavor and Scent of Data

Keynote

015
Valdez, Rupa S.; Ancker, Jessica S.; Veinot, Tiffany C.: Provocations for Reimagining Informatics Approaches to Health Equity

Special Section: Inclusive Digital Health

Survey

020
Koehle, Han; Kronk, Clair; Lee, Young Ji: Digital Health Equity: Addressing Power, Usability, and Trust to Strengthen Health Systems

Working Group Contributions

033
Cresswell, Kathrin; Rigby, Michael; Georgiou, Andrew; Wong, Zoie Shui-Yee; Kukhareva, Polina; Medlock, Stephanie; De Keizer, Nicolet F.; Magrabi, Farah; Scott, Philip; Ammenwerth, Elske: The Role of Formative Evaluation in Promoting Digitally-based Health Equity and Reducing Bias for Resilient Health Systems: The Case of Patient Portals
040
Haghi, Mostafa; Benis, Arriel; Deserno, Thomas M.: Accident & Emergency Informatics and One Digital Health
047
Kuziemsky, Craig; Liaw, Siaw-Teng; Leston, Meredith; Pearce, Christopher; Jonnagaddala, Jitendra; de Lusignan, Simon: Towards Equitable and Resilient Digital Primary Care Systems: An International Comparison and Insight for Moving Forward
060
Kuziemsky, Craig; Hunter, Inga; Udayasankaran, Jai Ganesh; Ranatunga, Prasad; Kulatunga, Gumindu; John, Sheila; John, Oommen; Flórez-Arango, José F.; Ito, Marcia; Ho, Kendall; Gogia, Shahi B.; Araujo, Kleber; Rajput, Vije Kumar; Meijer, Wouter J.; Basu, Arindam: Telehealth as a Means of Enabling Health Equity
067
Paton, Chris; Braa, Jørn; Muhire, Andrew; Marco-Ruiz, Luis; Kobayashi, Shinji; Fraser, Hamish; Falcón, Luis; Marcelo, Alvin: Open Source Digital Health Software for Resilient, Accessible and Equitable Healthcare Systems
074
Peute, Linda W.; Wildenbos, Gaby-Anne; Engelsma, Thomas; Lesselroth, Blake J.; Lichtner, Valentina; Monkman, Helen; Neal, David; Van Velsen, Lex; Jaspers, Monique W.; Marcilly, Romaric: Overcoming Challenges to Inclusive User-based Testing of Health Information Technology with Vulnerable Older Adults: Recommendations from a Human Factors Engineering Expert Inquiry
082
Rivera-Romero, Octavio; Gabarron, Elia; Miron-Shatz, Talya; Petersen, Carolyn; Denecke, Kerstin: Social Media, Digital Health Literacy, and Digital Ethics in the Light of Health Equity
Supplementary Material
088
Román-Villarán, Esther; Ammenwerth, Elske; Wijayaratne, Jayathri; Parra-Calderón, Carlos Luis: Desiderata for a New Generation of EHRs for Inclusive Healthcare
094
Ronquillo, Charlene Esteban; Mitchell, James; Alhuwail, Dari; Peltonen, Laura-Maria; Topaz, Maxim; Block, Lorraine J.: The Untapped Potential of Nursing and Allied Health Data for Improved Representation of Social Determinants of Health and Intersectionality in Artificial Intelligence Applications: A Rapid Review

Synopsis

100
Dixon, Brian E.; Holmes, John H.: Special Section on Inclusive Digital Health: Notable Papers on Addressing Bias, Equity, and Literacy to Strengthen Health Systems

Best Paper Selection

105
Best Paper Selection

Section 1: Bioinformatics and Translational Informatics

Survey

106
Tang, Alice; Woldemariam, Sarah; Roger, Jacquelyn; Sirota, Marina: Translational Bioinformatics to Enable Precision Medicine for All: Elevating Equity across Molecular, Clinical, and Digital Realms

Synopsis

116
Benton, Mary Lauren; McGrath, Scott Patrick: 2021 Bioinformatics and Translational Informatics Best Papers

Best Paper Selection

120
Best Paper Selection

Section 2: Cancer Informatics

Survey

121
Chaunzwa, Tafadzwa L.; del Rey, Maria Quiles; Bitterman, Danielle S.: Clinical Informatics Approaches to Understand and Address Cancer Disparities

Synopsis

131
Warner, Jeremy L.; Rooney, Michael K.; Patt, Debra: Cancer Informatics 2022: Real-World Data Yields Important Insights into the Conduct of Clinical Trials and Registries

Best Paper Selection

135
Best Paper Selection

Section 3: Clinical Information Systems

Survey

136
Viitanen, Johanna; Valkonen, Paula; Savolainen, Kaisa; Karisalmi, Nina; Hölsä, Sini; Kujala, Sari: Patient Experience from an eHealth Perspective: A Scoping Review of Approaches and Recent Trends
Supplementary Material

Synopsis

146
Hackl, Werner O.; Hoerbst, Alexander: “All Quiet on the Western Front” - Clinical Information Systems Research in the Year 2021

Best Paper Selection

151
Best Paper Selection

Section 4: Clinical Research Informatics

Survey

152
Kargl, Michaela; Plass, Markus; Müller, Heimo: A Literature Review on Ethics for AI in Biomedical Research and Biobanking

Synopsis

161
Daniel, Christel; Tannier, Xavier; Kalra, Dipak: Clinical Research Informatics

Best Paper Selection

165
Best Paper Selection

Section 5: Consumer Health Informatics and Education

Survey

167
Valdez, Rupa S.; Rogers, Courtney C.: Consumer Health Informatics for Racial and Ethnic Minoritized Communities: Minor Progress, Major Opportunities

Synopsis

173
Staccini, Pascal; Lau, Annie Y.S.: Consuming Health Information and Vulnerable Populations: Factors of Engagement and Ongoing Usage

Best Paper Selection

181
Best Paper Selection

Section 6: Decision Support

Survey

184
Stipelman, Carole H.; Kukhareva, Polina V.; Trepman, Elly; Nguyen, Quang-Tuyen; Valdez, Lourdes; Kenost, Colleen; Hightower, Maia; Kawamoto, Kensaku: Electronic Health Record-Integrated Clinical Decision Support for Clinicians Serving Populations Facing Health Care Disparities: Literature Review
Supplementary Material

Synopsis

199
Borbolla, Damian; Colicchio, Tiago K.: Clinical Decision Support Systems: Contributions from 2021

Best Paper Selection

202
Best Paper Selection

Section 7: Health Information Exchange

Survey

203
Sarkar, Indra Neil: Transforming Health Data to Actionable Information: Recent Progress and Future Opportunities in Health Information Exchange

Synopsis

215
Bloomrosen, Meryl; Berner, Eta S.: Findings from the 2022 Yearbook Section on Health Information Exchange

Best Paper Selection

219
Best Paper Selection

Section 8: Human Factors and Organizational Issues

Synopsis

221
Senathirajah, Yalini; Solomonides, Anthony E.: Best Papers in Human Factors and Sociotechnical Development

Best Paper Selection

226
Best Paper Selection

Section 9: Knowledge Representation and Management

Survey

228
Hastings, Janna: Achieving Inclusivity by Design: Social and Contextual Information in Medical Knowledge

Synopsis

236
Cui, Licong; Dhombres, Ferdinand; Charlet, Jean: Knowledge Representation and Management: Notable Contributions in 2021

Best Paper Selection

241
Best Paper Selection

Section 10: Natural Language Processing

Survey

243
Aramaki, Eiji; Wakamiya, Shoko; Yada, Shuntaro; Nakamura, Yuta: Natural Language Processing: from Bedside to Everywhere

Synopsis

254
Grabar, Natalia; Grouin, Cyril: Year 2021: COVID-19, Information Extraction and BERTization among the Hottest Topics in Medical Natural Language Processing

Best Paper Selection

261
Best Paper Selection

Section 11: Public Health and Epidemiology Informatics

Survey

262
Swertz, Morris; van Enckevort, Esther; Oliveira, José Luis; Fortier, Isabel; Bergeron, Julie; Thurin, Nicolas H.; Hyde, Eleanor; Kellmann, Alexander; Pahoueshnja, Romin; Sturkenboom, Miriam; Cunnington, Marianne; Nybo Andersen, Anne-Marie; Marcon, Yannick; Gonçalves, Gonçalo; Gini, Rosa: Towards an Interoperable Ecosystem of Research Cohort and Real-world Data Catalogues Enabling Multi-center Studies
Supplementary Material

Synopsis

273
Diallo, Gayo; Bordea, Georgeta: Novelty in Public Health and Epidemiology Informatics

Best Paper Selection

276
Best Paper Selection

Section 12: Sensor, Signal and Imaging Informatics

Survey

277
Carmo, Diedre; Ribeiro, Jean; Dertkigil, Sergio; Appenzeller, Simone; Lotufo, Roberto; Rittner, Leticia: A Systematic Review of Automated Segmentation Methods and Public Datasets for the Lung and its Lobes and Findings on Computed Tomography Images
Supplementary Material

Synopsis

296
Baumgartner, Christian; Deserno, Thomas M.: Best Research Papers in the Field of Sensors, Signals, and Imaging Informatics 2021

Best Paper Selection

300
Best Paper Selection

Research & Education

303
Shortliffe, Edward H.: Informatics as Science
307
Veinot, Tiffany C.; Clarke, Phillipa J.; Romero, Daniel M.; Buis, Lorraine R.; Dillahunt, Tawanna R.; Vydiswaran, Vinod V.G.; Beals, Ashley; Brown, Lindsay; Richards, Olivia; Williamson, Alicia; Antonio, Marcy G.: Equitable Research PRAXIS: A Framework for Health Informatics Methods
Supplementary Material

History of Medical Informatics

317
Kulikowski, Casimir A.: Ethics in the History of Medical Informatics for Decision-Making: Early Challenges to Digital Health Goals

Information on IMIA

323
Information on IMIA
325
Honorary Fellows
326
IMIA Member Societies and Corresponding Members
327
Institutional Members
329
Addresses of IMIA Member Societies

Information on IMIA Regional Groups

340
Nakashima, Naoki; Maruf, Rafiqul Islam; Schaper, Louise; Wong, Chun Por; Choi, In Young; Hunter, Inga; Marcelo, Alvin; Tiongson, Nelson; John, Oommen; Gogia, Shashi Bhushan; Hsu, Chien Yeh; Lin, Ming-Chin Mark; Masud, Jakir Hossain Bhuiyan; Dissanayake, Vajira H. W.; Kijsanayotin, Boonchai: APAMI
347
Tchuitcheu, Ghislain Kouematchoua; Oluoch, Tom; Wanyee, Steven; da-Costa Vroom, Frances Baaba; Nguefack-Tsague, Georges; Were, Martin; Verbeke, Frank; Wright, Graham; Kamasaka, Carolyn: Pan African Health Informatics Association (HELINA)
350
Lúcio da Silva, Marcelo; Kiatake, Luis Gustavo Gasparini; Falcón de Legal, Edith; Orellana-Jimenez, Carlos; Curioso, Walter H.; Otero, Paula Daniela: Health Informatics Association for Latin-America and Caribbean (IMIA-LAC)
354
Ghazal, Hassan; Alshammari, Abdulwahhab; Taweel, Adel; ElBokl, Ahmed; Nejjari, Chakib; Alhuwail, Dari; Al-Thani, Dena; Al-Jafar, Eiman; Wahba, Hoda; Alrishidi, Mohammed; Hamdi, Mounir; Househ, Mowafa; El-Hassan, Osama; Alnafrani, Sana; Kalhori, Sharareh Rostam Niakan; Emara, Tamer; Alam, Tanvir; El Otmani Dehbi, Zineb; Al-Shorbaji, Najeeb: Middle East and North African Health Informatics Association (MENAHIA)
365
Cimino, James; Kushniruk, Andre; Casselman, Mark: North American Medical Informatics (NAMI)
369
Chronaki, Catherine; Benis, Arriel; Mantas, John; Gallos, Parisis; Delgado, Jaime; Parra Calderón, Carlos Luis: EFMI

Miscellaneous

374
Contributors to the 2022 IMIA Yearbook of Medical Informatics
375
Reviewers for the 2022 IMIA Yearbook of Medical Informatics
376
IMIA Yearbook Special Topics