Eur J Pediatr Surg 2014; 24(01): 070-074
DOI: 10.1055/s-0033-1353491
Original Article
Georg Thieme Verlag KG Stuttgart · New York

Anxiety and Quality of Life of Parents with Children Diagnosed with an Anorectal Malformation or Hirschsprung Disease

Marieke Witvliet
1  Department of Pediatric Surgery, Pediatric Surgical Center of Amsterdam, Emma Children's Hospital AMC and VU Medical Center, Amsterdam, The Netherlands
,
Christine Sleeboom
1  Department of Pediatric Surgery, Pediatric Surgical Center of Amsterdam, Emma Children's Hospital AMC and VU Medical Center, Amsterdam, The Netherlands
,
Justin de Jong
1  Department of Pediatric Surgery, Pediatric Surgical Center of Amsterdam, Emma Children's Hospital AMC and VU Medical Center, Amsterdam, The Netherlands
,
Anton van Dijk
2  Department of Pediatric Surgery, University Medical Center Groningen, Groningen, The Netherlands
,
Sander Zwaveling
3  Department of Pediatric Surgery, Wilhelmina Children's Hospital UMCU, Utrecht, The Netherlands
,
Alida van der Steeg
1  Department of Pediatric Surgery, Pediatric Surgical Center of Amsterdam, Emma Children's Hospital AMC and VU Medical Center, Amsterdam, The Netherlands
4  Department of Medical Psychology, Center of Research on Psychology in Somatic Diseases (CoRPS), Tilburg University, Tilburg, The Netherlands
› Author Affiliations
Further Information

Publication History

14 May 2013

16 July 2013

Publication Date:
21 August 2013 (eFirst)

Abstract

Aim The aim of this study was to investigate the difference in anxiety and quality of life (QOL) between mothers and fathers of children with anorectal malformations (ARM) or Hirschsprung disease (HD). In addition, anxiety of parents of newborns was compared with parents of children in the age-group of 10 to 13 years.

Methods Parents of 44 patients with ARM or HD completed the World Health Organization Quality of Life (WHOQOL)-BREF (26 items) and the Spielberger State-Trait Anxiety Inventory (STAI-trait 10 items, STAI-state 6 items). They were divided into two groups according to their children's age (0–4 years and 10–13 years).

Results Overall mothers scored significantly worse than fathers on state anxiety (p = 0.005). Trait anxiety was not significantly different between mothers and fathers. The psychological domain of the WHOQOL-BREF was significantly different between parents (p = 0.016), with mothers scoring worse. Dividing the group in newborns and school going children mothers of newborns showed significantly more state anxiety compared with fathers of newborns (p = 0.016). In the group of older children, both anxiety and QOL were not significantly different between fathers and mothers. Comparing mothers of newborns with mothers of older children, the first group scored higher on state anxiety, but this difference was not significant (p = 0.138; 95% confidence interval, 0.535–3.717).

Conclusions Mothers of newborns have a higher level of anxiety than fathers of newborns with ARM or HD. When children with ARM or HD become older, this difference in anxiety between parents is not significant anymore. This may be explained by coping strategies.